Show Search Form

Search Results

registered interest	true false
date	exactly: or between: and
answering body
answering dept id
answering dept short name
answering dept sort name
hansard heading
house id
legislature	pref label
question text
tabling member constituency
tabling member printed
uin
answer	is ministerial correction true false date of answer exactly: or between: and answer text answering member constituency answering member printed grouped question UIN question first answered answering member label
tabling member	label

Search

1024698

registered interest
date	13/12/2018
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Orphan Drugs
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he is taking steps to introduce a revised definition for ultra-orphan medicine.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	202090
answer	answer is ministerial correction date of answer 20/12/2018 answer text <p>Currently, rare diseases are defined as conditions affecting no more than five in 10,000 people in the European Union. The new European Clinical Trial Regulation (Regulation (EU) No 536/2014) will introduce an ‘ultra-rare’ condition and states that clinical trials for the development of orphan medicinal products and those of medicines affecting no more than one person in 50,000 in the EU (ultra-rare diseases) should be fostered, and in such areas, a rapid yet in-depth assessment is of particular importance. The new clinical trials regulation is expected to be implemented in the EU in late 2020. The Government has confirmed that United Kingdom law will remain aligned with the parts of the new EU clinical trials Regulation that are within the UK’s control.</p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 20/12/2018 17:10:46 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4488 label Biography information for Martyn Day

63663

registered interest
date	24/06/2014
answering body	Foreign and Commonwealth Office
answering dept id	16
answering dept short name	Foreign and Commonwealth Office
answering dept sort name	Foreign and Commonwealth Office
hansard heading	Colombia
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Foreign and Commonwealth Affairs, if he will make representations to his Colombian counterpart supporting the requests for an investigation into the death of Thomas Rodriguez Cantillo, a SINTRAINAGRO trades union member killed on 9 May 2014.
tabling member constituency	Stoke-on-Trent South
tabling member printed	Robert Flello
uin	202090
answer	answer is ministerial correction date of answer 30/06/2014 answer text <p>I met representatives from six human rights organisations, including Oxfam and Christian Aid as well as Colombian non-governmental organisations (NGOs) during my visit to Bogotá last week. I also met two Deputy Ministers for Foreign Affairs, heads of the Colombian Government's major human rights agencies and representatives of the Attorney-General's office. I set out HM Government concern about the reported rise in attacks against human rights defenders and a lack of sentences for those responsible.</p> answering member constituency East Devon answering member printed Mr Hugo Swire grouped question UIN 202086 202087 202088 202091 question first answered 30/06/2014 13:43:25 answering member 1408 label Biography information for Lord Swire
tabling member	1569 label Biography information for Robert Flello