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NHS England has recently worked to understand, assess and provide information on the impact of the COVID-19 pandemic on patients with sickle cell disease. We recently published the UK Rare Diseases Framework, outlining our priorities to improve the lives of those living with rare conditions, including sickle cell disease. One of these priorities is improving access to specialist care, treatment and drugs.<\/p>

<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4380", "label" : {"_value" : "Biography information for Jo Churchill"} } , "answeringMemberConstituency" : {"_value" : "Bury St Edmunds"} , "answeringMemberPrinted" : {"_value" : "Jo Churchill"} , "dateOfAnswer" : {"_value" : "2021-07-13", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2021-07-13T21:02:56.507Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2021-07-13", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Sickle Cell Diseases: Health Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "What recent assessment he has made of the adequacy of NHS treatment for sickle cell patients.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4698", "label" : {"_value" : "Biography information for Janet Daby"} } , "tablingMemberConstituency" : {"_value" : "Lewisham East"} , "tablingMemberPrinted" : [{"_value" : "Janet Daby"} ], "uin" : "902646"} , {"_about" : "http://data.parliament.uk/resources/436908", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/436908/answer", "answerText" : {"_value" : "

Consumers must be able to trust data provided to inform their purchasing decisions. That is why the government pushed in Europe for the recently agreed changes to the way emissions are measured. <\/strong><\/p>

<\/strong><\/p>

I am pleased that real driving emissions will be measured from 2017 but, in the meantime, officials are retesting the emission performance of the most popular vehicles in Great Britain. We will publish a report of this work in spring 2016.<\/strong><\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/3996", "label" : {"_value" : "Biography information for Andrew Jones"} } , "answeringMemberConstituency" : {"_value" : "Harrogate and Knaresborough"} , "answeringMemberPrinted" : {"_value" : "Andrew Jones"} , "dateOfAnswer" : {"_value" : "2015-12-10", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2015-12-10T15:17:15.15Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "27"} , "answeringDeptShortName" : {"_value" : "Transport"} , "answeringDeptSortName" : {"_value" : "Transport"} , "date" : {"_value" : "2015-12-07", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Motor Vehicles: Exhaust Emissions"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Transport, what steps he is taking to ensure that consumers can have confidence in vehicle emissions data.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3998", "label" : {"_value" : "Biography information for Mark Menzies"} } , "tablingMemberConstituency" : {"_value" : "Fylde"} , "tablingMemberPrinted" : [{"_value" : "Mark Menzies"} ], "uin" : "902646"} ], "itemsPerPage" : 10, "page" : 0, "startIndex" : 1, "totalResults" : 2, "type" : ["http://purl.org/linked-data/api/vocab#ListEndpoint", "http://purl.org/linked-data/api/vocab#Page"]} }