https://www.gov.uk/government/publications/further-guidance-note-on-the-regulation-of-medicines-medical-devices-and-clinical-trials-if-theres-no-brexit-deal<\/a><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-01-16", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-16T17:20:56.507Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-01-07", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Orphan Drugs: Regulation"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, when his Department plans to publish its consultation on the regulation of orphan drugs after the UK leaves the EU.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "206025"}
, {"_about" : "http://data.parliament.uk/resources/1037138", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1037138/answer", "answerText" : {"_value" : "The Government\u2019s 2013 UK Strategy for Rare Diseases aims to improve the lives all those with a rare disease and is currently being implemented across England. The Strategy covers five areas including the role of research, with significant support from the National Institute of Health Research.<\/p>
<\/p>
In October 2018, the Secretary of State announced his ambition to sequence 5 million genomes in the next five years including 1 million whole genome sequences. This builds on the success of the transformative 100,000 Genomes Project which recruited people with rare, undiagnosed genetic diseases, and with cancer, and which reached 100,000 sequences in December 2018.<\/p>
<\/p>
The NHS Long Term Plan published on 7 January sets out the National Health Service\u2019s commitment to research and innovation to drive outcome improvement, including through targeted investment in genomics. It confirmed that the new NHS Genomic Medicine Service will sequence 500,000 whole genomes by 2023/24 as part of the NHS\u2019s contribution to the Government\u2019s ambition for genomics. The NHS has become the first national health care system to offer whole genome sequencing as part of routine care. Another 500,000 whole genomes will be sequenced through UK Biobank as was announced in the 2017 Life Sciences Sector deal. Together, these activities will significantly increase the volume of high-quality genomic data for research to advance our knowledge to diagnose and treat rare diseases and other conditions to complement the research dataset already generated by the 100,000 Genomes Project.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2019-01-10", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-10T15:18:43.31Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-01-07", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Rare Diseases"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what measures he is taking to utilise UK genomic medical research to improve outcomes for patients living with rare diseases.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "206026"}
, {"_about" : "http://data.parliament.uk/resources/1037139", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1037139/answer", "answerText" : {"_value" : "
The Government is committed to improving the lives of all those affected by a rare disease. Implementation plans by NHS England and the Department were published jointly in January 2018 and describe the actions and framework in place to deliver this commitment to improve the lives of those affected by rare disease, as defined in the UK Strategy for Rare Diseases.<\/p>
<\/p>
Through its technology appraisal and highly specialised technologies programmes, the National Institute for Health and Care Excellence (NICE) plays an important role in ensuring that patients, including patients with rare diseases, are able to benefit from effective new treatments. NICE has recommended a number of drugs for rare diseases through these programmes that are now routinely funded by the National Health Service for eligible patients.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4067", "label" : {"_value" : "Biography information for Steve Brine"}
}
, "answeringMemberConstituency" : {"_value" : "Winchester"}
, "answeringMemberPrinted" : {"_value" : "Steve Brine"}
, "dateOfAnswer" : {"_value" : "2019-01-15", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-15T16:13:10.783Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-01-07", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Rare Diseases"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the availability of treatments for patients with rare diseases since the introduction of the Orphan Medical Product Regulation 2000.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "206027"}
, {"_about" : "http://data.parliament.uk/resources/1029333", "AnsweringBody" : [{"_value" : "Department for International Development"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1029333/answer", "answerText" : {"_value" : "
DFID is aware of reports that USAID is currently unable to support coexistence projects in the West Bank and Gaza. The UK supports coexistence work both within green line Israel and across the Israel-OPTs boundary. All types of coexistence work can be valuable and help to foster greater understanding between communities from both sides of the conflict. Ultimately, however, the only way to achieve lasting coexistence is through a negotiated two-state solution that ends the occupation and delivers peace for both Israelis and Palestinians.<\/p>
<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1201", "label" : {"_value" : "Biography information for Alistair Burt"}
}
, "answeringMemberConstituency" : {"_value" : "North East Bedfordshire"}
, "answeringMemberPrinted" : {"_value" : "Alistair Burt"}
, "dateOfAnswer" : {"_value" : "2019-01-10", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-10T15:30:29.86Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "20"}
, "answeringDeptShortName" : {"_value" : "International Development"}
, "answeringDeptSortName" : {"_value" : "International Development"}
, "date" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Israel: Palestinians"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for International Development, what assessment her Department has made of the potential effect of the recently reported reductions in funding from the US to co-existence projects in Israel-Palestine on peace efforts in that region.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "204610"}
, {"_about" : "http://data.parliament.uk/resources/1029401", "AnsweringBody" : [{"_value" : "Department for Business, Energy and Industrial Strategy"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1029401/answer", "answerText" : {"_value" : "
Central BEIS have not let any infrastructure contracts over the past year. We do not hold this information for BEIS Arms Lengths Bodies therefore this information could only be obtained at disproportionate cost.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4068", "label" : {"_value" : "Biography information for Lord Harrington of Watford"}
}
, "answeringMemberConstituency" : {"_value" : "Watford"}
, "answeringMemberPrinted" : {"_value" : "Richard Harrington"}
, "dateOfAnswer" : {"_value" : "2019-01-08", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-08T09:23:22.653Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "201"}
, "answeringDeptShortName" : {"_value" : "Business, Energy and Industrial Strategy"}
, "answeringDeptSortName" : {"_value" : "Business, Energy and Industrial Strategy"}
, "date" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Department for Business, Energy and Industrial Strategy: Project Bank Accounts"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Business, Energy and Industrial Strategy, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "204611"}
, {"_about" : "http://data.parliament.uk/resources/1029403", "AnsweringBody" : [{"_value" : "Ministry of Defence"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1029403/answer", "answerText" : {"_value" : "
The Defence Infrastructure Organisation (DIO), on behalf of the Ministry of Defence, has let one infrastructure contract in the last year with the stipulation that a Project Bank Account (PBA) must be used. For all future procurements, DIO are reviewing the way in which PBAs can be embedded into contracts.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1487", "label" : {"_value" : "Biography information for Mr Tobias Ellwood"}
}
, "answeringMemberConstituency" : {"_value" : "Bournemouth East"}
, "answeringMemberPrinted" : {"_value" : "Mr Tobias Ellwood"}
, "dateOfAnswer" : {"_value" : "2019-01-10", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-10T15:13:10.45Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "11"}
, "answeringDeptShortName" : {"_value" : "Defence"}
, "answeringDeptSortName" : {"_value" : "Defence"}
, "date" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Ministry of Defence: Project Bank Accounts"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Defence, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "204612"}
, {"_about" : "http://data.parliament.uk/resources/1029406", "AnsweringBody" : [{"_value" : "Department for Education"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1029406/answer", "answerText" : {"_value" : "
The Department has not mandated the use of Project Bank Accounts on any of its infrastructure contracts in the last year. The Department has considered the use of Project Bank Accounts on infrastructure contracts, but due to the specific nature and size of procurements and contracts, there are compelling reasons not to mandate its use.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/111", "label" : {"_value" : "Biography information for Nick Gibb"}
}
, "answeringMemberConstituency" : {"_value" : "Bognor Regis and Littlehampton"}
, "answeringMemberPrinted" : {"_value" : "Nick Gibb"}
, "dateOfAnswer" : {"_value" : "2019-01-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-09T16:16:19.083Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "60"}
, "answeringDeptShortName" : {"_value" : "Education"}
, "answeringDeptSortName" : {"_value" : "Education"}
, "date" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Department for Education: Project Bank Accounts"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Education, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.", "registeredInterest" : {"_value" : "true", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "204613"}
, {"_about" : "http://data.parliament.uk/resources/1029407", "AnsweringBody" : [{"_value" : "Department for Environment, Food and Rural Affairs"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1029407/answer", "answerText" : {"_value" : "
The government\u2019s infrastructure contracts make provision for the use of Project Bank Accounts (PBAs), and departments have committed to use PBAs on all infrastructure projects unless there are compelling reasons not to do so. Due to the range of infrastructure projects undertaken by government, the approaches taken will vary.<\/p>
<\/p>
Ten infrastructure contracts overseen by the Environment Agency in the last year have been let with the stipulation that a PBA must be used.<\/p>
<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3934", "label" : {"_value" : "Biography information for George Eustice"}
}
, "answeringMemberConstituency" : {"_value" : "Camborne and Redruth"}
, "answeringMemberPrinted" : {"_value" : "George Eustice"}
, "dateOfAnswer" : {"_value" : "2019-01-11", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-01-11T12:53:48.613Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "13"}
, "answeringDeptShortName" : {"_value" : "Environment, Food and Rural Affairs"}
, "answeringDeptSortName" : {"_value" : "Environment, Food and Rural Affairs"}
, "date" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Department for Environment, Food and Rural Affairs: Project Bank Accounts"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Environment, Food and Rural Affairs, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4637", "label" : {"_value" : "Biography information for James Frith"}
}
, "tablingMemberConstituency" : {"_value" : "Bury North"}
, "tablingMemberPrinted" : [{"_value" : "James Frith"}
], "uin" : "204614"}
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