NHS England commissions a national epidermolysis bullosa (EB) service to provide diagnosis and assessment of infants, children, adolescents and adults with suspected or known EB, with treatment and long-term support. NHS England is aware that a number of innovative treatments for EB are either in trials or being considered by the National Institute for Health and Care Excellence (NICE). If any of these treatments are given a positive recommendation by NICE, NHS England will ensure that service provision is in place to deliver these treatments.<\/p>
The Department funds research through the National Institute for Health and Care Research (NIHR). While the usual practice of the NIHR is not to ring-fence funds for expenditure on particular topics, the NIHR welcomes funding applications for research into any aspect of health or care research, including therapies for rare conditions such as EB. These applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality. In the past five years, the NIHR has funded two studies into EB with a total award value of £3,022,759 and supported the delivery of over 25 studies via the NIHR\u2019s infrastructure.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4423", "label" : {"_value" : "Biography information for Will Quince"} } , "answeringMemberConstituency" : {"_value" : "Colchester"} , "answeringMemberPrinted" : {"_value" : "Will Quince"} , "dateOfAnswer" : {"_value" : "2022-09-21", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2022-09-21T15:42:28.22Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2022-09-02", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Epidermolysis Bullosa: Health Services and Research"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to support patients of Epidermolysis Bullosa on the NHS in England; and what assessment he has made of the potential merits of increasing funding into research on that condition.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4511", "label" : {"_value" : "Biography information for Dr Rupa Huq"} } , "tablingMemberConstituency" : {"_value" : "Ealing Central and Acton"} , "tablingMemberPrinted" : [{"_value" : "Dr Rupa Huq"} ], "uin" : "45330"} , {"_about" : "http://data.parliament.uk/resources/1194282", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1194282/answer", "answerText" : {"_value" : "
The General Medical Council (GMC) is the statutory independent regulator of medical practitioners in the United Kingdom and is responsible for operational matters concerning the discharge of its statutory duties. The GMC\u2019s regulatory activities are primarily funded by annual registration fees, currently set at £406 per year for a full registration with licence to practise.<\/p>
The General Pharmaceutical Council (GPhC) is the independent regulator of Pharmacies, Pharmacists and Pharmacy Technicians in Great Britain. The GPhC\u2019s regulatory activities are primarily funded by annual registration fees, currently set at £121 for pharmacy technicians and £257 for pharmacists per year.<\/p>
The Health and Care Professions Council (HCPC) is the independent regulator of 15 professions in the United Kingdom, including paramedics, practitioner psychologists and occupational therapists. The HCPC\u2019s regulatory activities are primarily funded by annual registration fees, currently set at £90 per year.<\/p>
There are no registration fees for any healthcare professionals joining the GMC, GPhC or HCPC temporary emergency registers.<\/p>
We have no plans to subsidise the annual registration fees of existing GMC, GPhC and HCPC registrants. However, we recognise the incredible work that healthcare staff are doing to support the collective effort to tackle the COVID-19 outbreak. As part of this, we will be engaging with staff and employers.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4527", "label" : {"_value" : "Biography information for Helen Whately"} } , "answeringMemberConstituency" : {"_value" : "Faversham and Mid Kent"} , "answeringMemberPrinted" : {"_value" : "Helen Whately"} , "dateOfAnswer" : {"_value" : "2020-05-21", "_datatype" : "dateTime"} , "groupedQuestionUIN" : [{"_value" : "45331"} , {"_value" : "45332"} ], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2020-05-21T13:03:42.647Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2020-05-11", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Doctors: Coronavirus"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, if he will make it his policy to waive General Medical Council registration fees for doctors that are working in response to the covid-19 outbreak.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"} } , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"} , "tablingMemberPrinted" : [{"_value" : "Martyn Day"} ], "uin" : "45330"} , {"_about" : "http://data.parliament.uk/resources/576803", "AnsweringBody" : [{"_value" : "Department for Environment, Food and Rural Affairs"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/576803/answer", "answerText" : {"_value" : "
The number of dairy farms in England from 2011 to 2015 is shown below along with the number of cows in the dairy herd on these farms. The source of cattle population data is the administrative Cattle Tracing System (CTS) data.<\/p>
<\/p>
<\/p>
Year<\/strong><\/p><\/td> Number of dairy farms(a)<\/sup><\/strong><\/p><\/td> Number of cows in the dairy herd<\/strong><\/p><\/td><\/tr> 2011<\/p><\/td> 9 041<\/p><\/td> 1 112 459<\/p><\/td><\/tr> 2012<\/p><\/td> 8 663<\/p><\/td> 1 104 676<\/p><\/td><\/tr> 2013<\/p><\/td> 8 342<\/p><\/td> 1 098 610<\/p><\/td><\/tr> 2014<\/p><\/td> 8 092<\/p><\/td> 1 128 548<\/p><\/td><\/tr> 2015<\/p><\/td> 7 982<\/p><\/td> 1 148 089<\/p><\/td><\/tr><\/tbody><\/table> <\/p> <\/p> (a) Sourced from Cattle Tracing System (CTS). Defined as the number of holdings with more than 10 female dairy cows over 2 years old in the milking herd (i.e. with offspring)<\/p> <\/p> <\/p> <\/p> <\/p> <\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3934", "label" : {"_value" : "Biography information for George Eustice"}
}
, "answeringMemberConstituency" : {"_value" : "Camborne and Redruth"}
, "answeringMemberPrinted" : {"_value" : "George Eustice"}
, "dateOfAnswer" : {"_value" : "2016-09-12", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2016-09-12T14:12:30.183Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "13"}
, "answeringDeptShortName" : {"_value" : "Environment, Food and Rural Affairs"}
, "answeringDeptSortName" : {"_value" : "Environment, Food and Rural Affairs"}
, "date" : {"_value" : "2016-09-06", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Dairy Farming"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Environment, Food and Rural Affairs, how many dairy farmers there were in each of the last five years.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4131", "label" : {"_value" : "Biography information for Jim Shannon"}
}
, "tablingMemberConstituency" : {"_value" : "Strangford"}
, "tablingMemberPrinted" : [{"_value" : "Jim Shannon"}
], "uin" : "45330"}
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