The National Institute for Health and Care Excellence (NICE) has not yet started its evaluation of tofersen for treating amyotrophic lateral sclerosis caused by SOD1 gene mutations, and has therefore not published any guidance or recommendations on whether tofersen should be available for National Health Service patients. In developing its recommendations, the NICE will follow its published methods for health technology evaluation, which will include a thorough assessment of the available evidence. This takes into account all health-related costs and benefits, including health benefits not only to patients but, where relevant, to other people such as carers. The NICE\u2019s aim is to publish its guidance on tofersen as close as possible to the date it receives its marketing authorisation.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4948", "label" : {"_value" : "Biography information for Lord Markham"} } , "answeringMemberPrinted" : {"_value" : "Lord Markham"} , "dateOfAnswer" : {"_value" : "2024-04-22", "_datatype" : "dateTime"} , "groupedQuestionUIN" : {"_value" : "HL3732"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2024-04-22T15:05:49.847Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2024-04-15", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Tofersen"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask His Majesty's Government what consideration was given to the costs of complicated grief in families of patients dying from SOD-1 MND during the evaluation process that led to the decision to decline access to tofersen for NHS patients.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3609", "label" : {"_value" : "Biography information for Baroness Finlay of Llandaff"} } , "tablingMemberPrinted" : [{"_value" : "Baroness Finlay of Llandaff"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/1545135", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1545135/answer", "answerText" : {"_value" : "
A table showing surgical hubs and community diagnostic centres (CDCs) established in 2022, with the services provided, the National Health Service region, the relevant integrated care system and NHS trust, the name of the hub and the date of opening, is attached due to the size of the data. Information on the selection criteria for each CDC and surgical hub is not held centrally.<\/p>
Local systems undertake an evaluation of the most appropriate locations for CDCs, including consideration of accessibility, affordability and addressing inequality and deprivation. Business cases are scrutinised by a national approvals panel with clinical and diagnostic experts to assess feasibility prior to approval. CDC locations are also subject to Ministerial approval. Surgical hub locations have been selected by a clinically-led process to ensure that sites are connected to the appropriate services to deliver high quality outcomes for patients and to consider health inequalities. The independent sector were not invited to participate in the selection of CDCs or surgical hubs.<\/p>
NHS England has engaged with patient forums and undertaken a public awareness campaign on the expansion of services. The Department and NHS England are working with general practitioners (GPs), cancer charities and patient representatives to expand direct GP access to diagnostic scans for those with concerning symptoms which do not align with the two-week cancer referral target to see a specialist.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4948", "label" : {"_value" : "Biography information for Lord Markham"} } , "answeringMemberPrinted" : {"_value" : "Lord Markham"} , "attachment" : {"_about" : "http://data.parliament.uk/resources/1545135/answer/attachment/1", "fileName" : {"_value" : "2022 CDC and Hub locations.xlsx"} , "title" : "2022 CDC and Hub locations"} , "dateOfAnswer" : {"_value" : "2022-12-15", "_datatype" : "dateTime"} , "groupedQuestionUIN" : [{"_value" : "HL3732"} , {"_value" : "HL3734"} , {"_value" : "HL3735"} ], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2022-12-15T13:11:30.907Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2022-11-23", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Surgical Hubs"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask His Majesty's Government what elective surgical hubs were established in 2022; what are their locations; what services each hub provides; how they were selected; and when each one became operational.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1732", "label" : {"_value" : "Biography information for Lord Warner"} } , "tablingMemberPrinted" : [{"_value" : "Lord Warner"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/1366294", "AnsweringBody" : [{"_value" : "Foreign, Commonwealth and Development Office"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1366294/answer", "answerText" : {"_value" : "
The Foreign Secretary and international colleagues spoke with Olusegun Obasanjo on 12 October and offered our full support to his efforts. The Minister for Africa spoke with him on 4 November to discuss the situation in Ethiopia and reiterate our full support. Whilst he is in Addis Ababa, our ambassador is keeping in close contact with him.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4062", "label" : {"_value" : "Biography information for Lord Goldsmith of Richmond Park"} } , "answeringMemberPrinted" : {"_value" : "Lord Goldsmith of Richmond Park"} , "dateOfAnswer" : {"_value" : "2021-11-16", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2021-11-16T16:52:48.373Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "208"} , "answeringDeptShortName" : {"_value" : "Foreign, Commonwealth and Development Office"} , "answeringDeptSortName" : {"_value" : "Foreign, Commonwealth and Development Office"} , "date" : {"_value" : "2021-11-04", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Tigray: Conflict Resolution"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty's Government what discussions they have had with Olusegun Obasanjo since his appointment as High Representative for the Horn of Africa Region by the Commission of the African Union, in order to offer (1) support, and (2) assistance, in seeking a resolution to the conflict in the Tigray region of Ethiopia.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/259", "label" : {"_value" : "Biography information for The Marquess of Lothian"} } , "tablingMemberPrinted" : [{"_value" : "The Marquess of Lothian"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/1191915", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1191915/answer", "answerText" : {"_value" : "
The package of measures announced on Friday 24 April provides support for the continuation of vital services to the Isles of Scilly during the COVID-19 pandemic. The building of a new vessel was not part of those considerations and would be a decision for the operators to take.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4580", "label" : {"_value" : "Biography information for Baroness Vere of Norbiton"} } , "answeringMemberPrinted" : {"_value" : "Baroness Vere of Norbiton"} , "dateOfAnswer" : {"_value" : "2020-05-14", "_datatype" : "dateTime"} , "groupedQuestionUIN" : {"_value" : "HL3732"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2020-05-14T11:03:59.683Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "27"} , "answeringDeptShortName" : {"_value" : "Transport"} , "answeringDeptSortName" : {"_value" : "Transport"} , "date" : {"_value" : "2020-04-29", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Ferries: Isles of Scilly"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty's Government what consideration they have given to building a new Penzance to Scilly Islands ferry at the Appledore shipyard.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3834", "label" : {"_value" : "Biography information for Lord West of Spithead"} } , "tablingMemberPrinted" : [{"_value" : "Lord West of Spithead"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/797301", "AnsweringBody" : [{"_value" : "Department for Education"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/797301/answer", "answerText" : {"_value" : "
There is no data collected centrally for the number of children who are educated at home. There is also no data for the relevant funding formula factors such as the children\u2019s age, location and special educational needs.<\/p>
<\/p>
Therefore, there has been no estimate of the financial savings for children who are home educated.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4689", "label" : {"_value" : "Biography information for Lord Agnew of Oulton"} } , "answeringMemberPrinted" : {"_value" : "Lord Agnew of Oulton"} , "dateOfAnswer" : {"_value" : "2017-12-13", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2017-12-13T17:42:28.833Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "60"} , "answeringDeptShortName" : {"_value" : "Education"} , "answeringDeptSortName" : {"_value" : "Education"} , "date" : {"_value" : "2017-11-29", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Home Education"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty's Government what estimate they have made of the financial saving to the public purse of children and young people being home educated.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4238", "label" : {"_value" : "Biography information for Lord Storey"} } , "tablingMemberPrinted" : [{"_value" : "Lord Storey"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/649112", "AnsweringBody" : [{"_value" : "Department for Work and Pensions"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/649112/answer", "answerText" : {"_value" : "
The Department for Work and Pensions (DWP) policy is to develop its staff in the skills and knowledge required to support a range of claimants sensitively and to respect their individual needs. The DWP aim is to identify and direct victims of human trafficking at the earliest opportunity to agencies able to support them.<\/p>
<\/p>
The training for DWP staff is contained within an overarching \u201cVulnerability\u201d session. The number of Jobcentre Plus staff who have undergone the training since publication in January 2016 is 10,156.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/3893", "label" : {"_value" : "Biography information for Lord Freud"} } , "answeringMemberPrinted" : {"_value" : "Lord Freud"} , "dateOfAnswer" : {"_value" : "2016-12-08", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2016-12-08T12:28:18.78Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "29"} , "answeringDeptShortName" : {"_value" : "Work and Pensions"} , "answeringDeptSortName" : {"_value" : "Work and Pensions"} , "date" : {"_value" : "2016-11-30", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Jobcentre Plus: Training"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty\u2019s Government, further to the Written Answer by Lord Freud on 24 June 2015 (HL542), how many individual members of Jobcentre Plus staff have undergone training on human trafficking.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1892", "label" : {"_value" : "Biography information for Lord McColl of Dulwich"} } , "tablingMemberPrinted" : [{"_value" : "Lord McColl of Dulwich"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/429483", "AnsweringBody" : [{"_value" : "Home Office"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/429483/answer", "answerText" : {"_value" : "
We will not publish the individual responses to the consultation on reforming support for failed asylum seekers and other illegal migrants. This is consistent with the confidentiality statement on page 12 of the consultation document published on 4 August.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/1091", "label" : {"_value" : "Biography information for Lord Bates"} } , "answeringMemberPrinted" : {"_value" : "Lord Bates"} , "dateOfAnswer" : {"_value" : "2015-11-25", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2015-11-25T15:23:53.743Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "1"} , "answeringDeptShortName" : {"_value" : "Home Office"} , "answeringDeptSortName" : {"_value" : "Home Office"} , "date" : {"_value" : "2015-11-19", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Undocumented Migrants: Finance"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty\u2019s Government whether they will publish the responses to their consultation on reforming support for failed asylum seekers and other illegal migrants.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/2652", "label" : {"_value" : "Biography information for Baroness Hamwee"} } , "tablingMemberPrinted" : [{"_value" : "Baroness Hamwee"} ], "uin" : "HL3733"} , {"_about" : "http://data.parliament.uk/resources/170237", "AnsweringBody" : [{"_value" : "Department for International Development"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/170237/answer", "answerText" : {"_value" : "
The UK was one of the biggest donors to Gaza following the recent conflict, providing more than £17 million in emergency assistance to deliver lifesaving food, clean water, shelter and medical assistance. At the Gaza Reconstruction Conference in October, the UK pledged a further £20 million which includes the provision of shelter and basic services for people displaced from their homes. We have disbursed a quarter of this pledge already to help meet the needs of the most vulnerable this winter. DFID is also funding the Gaza Reconstruction Mechanism for the import of construction materials into Gaza so that people are able to repair their homes.<\/p>
<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/2539", "label" : {"_value" : "Biography information for Baroness Northover"} } , "answeringMemberPrinted" : {"_value" : "Baroness Northover"} , "dateOfAnswer" : {"_value" : "2014-12-18", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2014-12-18T12:39:29.953Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "20"} , "answeringDeptShortName" : {"_value" : "International Development"} , "answeringDeptSortName" : {"_value" : "International Development"} , "date" : {"_value" : "2014-12-15", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Palestinians"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty\u2019s Government what temporary arrangements have been made for the homeless in Gaza over this and succeeding winters.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/200", "label" : {"_value" : "Biography information for Baroness Tonge"} } , "tablingMemberPrinted" : [{"_value" : "Baroness Tonge"} ], "uin" : "HL3733"} ], "itemsPerPage" : 10, "page" : 0, "startIndex" : 1, "totalResults" : 8, "type" : ["http://purl.org/linked-data/api/vocab#ListEndpoint", "http://purl.org/linked-data/api/vocab#Page"]} }