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No central assessment has been made of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) clinical services established between 2004 and 2006. The commissioning of services for people with CFS/ME is a local matter, and the management of patients within such services is the responsibility of the commissioners, providers and clinicians responsible for their care. Clinical commissioning groups have a duty to exercise their functions effectively, efficiently and economically<\/p>
<\/p>
Since its publication in 2007, the National Institute for Health and Care Excellence (NICE) clinical guideline on the management of CFS/ME in adults and children, which set outs best practice on the care, treatment and support of people with the condition, has supported the local National Health Service in delivering services for people with the condition. The guidance recognises the challenges in managing a condition for which there is no definitive diagnostic test, no clear understanding of the causes and process of disease and no cure. The guidance is also clear that there is no one form of treatment to suit every patient and that treatment and care should take into account the personal needs and preferences of the patient. NICE is currently reviewing the guidance to ensure it reflects the latest available evidence and a decision regarding this matter is expected shortly.<\/p>
<\/p>"}
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], "questionText" : "Her Majesty's Government what assessment they have made of the chronic fatigue syndrome myalgic encephalomyelitis (ME/CFS) clinical services which were set up between 2004 and 2006; what proportion of patients accessing services recover from ME/CFS or show signs of improvement; and what assessment they have made of the value for money of these services.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
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, {"_about" : "http://data.parliament.uk/resources/750630", "AnsweringBody" : [{"_value" : "Department of Health"}
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The information is set out in the table below. Further information can be found in NHS Blood and Transplant\u2019s Annual Activity Report for 2016/17, which was published on 11 July:<\/p>
<\/p>
United Kingdom<\/p><\/td> | 2012/13<\/p><\/td> | 2013/14<\/p><\/td> | 2014/15<\/p><\/td> | 2015/16<\/p><\/td> | 2016/17<\/p><\/td> | 2017/18<\/p><\/td><\/tr> |
£ millions<\/p><\/td> | £ millions<\/p><\/td> | £ millions<\/p><\/td> | £ millions<\/p><\/td> | £ millions<\/p><\/td> | £ millions<\/p><\/td><\/tr> | |
Total<\/p><\/td> | 62.93<\/p><\/td> | 64.20<\/p><\/td> | 65.51<\/p><\/td> | 73.90<\/p><\/td> | 73.90<\/p><\/td> | 73.90<\/p><\/td><\/tr><\/tbody><\/table>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"} } , "answeringMemberConstituency" : {"_value" : "Thurrock"} , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"} , "dateOfAnswer" : {"_value" : "2017-07-19", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2017-07-19T10:34:33.993Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health"} , "answeringDeptSortName" : {"_value" : "Health"} , "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Transplant Surgery"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health, pursuant to the Answer of 6 July 2017 to Question 1450, what the total cost of the UK Taking Organ Transplantation to 2020 Strategy has been to date.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/545", "label" : {"_value" : "Biography information for Paul Flynn"} } , "tablingMemberConstituency" : {"_value" : "Newport West"} , "tablingMemberPrinted" : [{"_value" : "Paul Flynn"} ], "uin" : "4424"} , {"_about" : "http://data.parliament.uk/resources/750668", "AnsweringBody" : [{"_value" : "Department for Work and Pensions"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/750668/answer", "answerText" : {"_value" : " <\/strong><\/p> We are intending to publish further data on payment timeliness in due course, but our latest internal data, for week ending 19 June, suggests some 80% of cases were paid in full at the end of the first assessment period.<\/p> <\/p> For the 20% of cases who were not paid in full we estimate around a third have not signed up to their claimant commitment so cannot be paid until they have. The other two thirds have an outstanding verification issue, such as providing bank statements, evidence of childcare costs, or proof of rent. Many of these claimants receive a part-payment where elements of the claim have been verified.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3969", "label" : {"_value" : "Biography information for Damian Hinds"}
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, "answeringDeptShortName" : {"_value" : "Work and Pensions"}
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, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Work and Pensions, how many and what proportion of new universal credit claims were processed and paid within six weeks in the last six months.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/478", "label" : {"_value" : "Biography information for Lord Field of Birkenhead"}
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, "tablingMemberPrinted" : [{"_value" : "Frank Field"}
], "uin" : "4292"}
, {"_about" : "http://data.parliament.uk/resources/750669", "AnsweringBody" : [{"_value" : "Department for Work and Pensions"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750669/answer", "answerText" : {"_value" : " DWP take the security of Universal Credit very seriously, including verifying who our claimants are. We continue to work closely with Government Digital Service to support the success of the Verify online system. The high standards of ID verification achieved by Verify are used on our UC Full Service today in addition to a face-to-face alternative approach.<\/p> <\/p> We may also ask for separate documentary evidence, ask biometric questions based on data the department holds, or contact trusted third parties (such as a doctor) in order to verify a claimants identity and establish other personal and financial circumstances necessary for the processing of a Universal Credit claim.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3969", "label" : {"_value" : "Biography information for Damian Hinds"}
}
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, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Work and Pensions, what steps his Department takes to verify the name, address, personal and financial circumstances of new universal credit claimants applying online.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/478", "label" : {"_value" : "Biography information for Lord Field of Birkenhead"}
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, "tablingMemberConstituency" : {"_value" : "Birkenhead"}
, "tablingMemberPrinted" : [{"_value" : "Frank Field"}
], "uin" : "4293"}
, {"_about" : "http://data.parliament.uk/resources/750676", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750676/answer", "answerText" : {"_value" : " No decision has been made to close the Congenital Heart Disease (CHD) service at the Royal Brompton and Harefield NHS Foundation Trust.<\/p> <\/p> The particular circumstances at the Royal Brompton mean that NHS England\u2019s CHD proposals would, if implemented, have an impact on the Trust\u2019s paediatric respiratory service. NHS England has therefore formed a specialist panel to review the potential impact of the CHD proposals on paediatric respiratory services at the Royal Brompton.<\/p> <\/p> If a decision is taken to stop commissioning children\u2019s CHD surgical services, NHS England will work with the Trust to manage the impact on paediatric respiratory services.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1542", "label" : {"_value" : "Biography information for Philip Dunne"}
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, "questionFirstAnswered" : [{"_value" : "2017-07-19T10:50:02.75Z", "_datatype" : "dateTime"}
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, "answeringDeptShortName" : {"_value" : "Health"}
, "answeringDeptSortName" : {"_value" : "Health"}
, "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Royal Brompton Hospital"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health, what proposals NHS England has made for the replacement of paediatric respiratory services currently provided at the Royal Brompton Hospital.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/87", "label" : {"_value" : "Biography information for Sir Roger Gale"}
}
, "tablingMemberConstituency" : {"_value" : "North Thanet"}
, "tablingMemberPrinted" : [{"_value" : "Sir Roger Gale"}
], "uin" : "4329"}
, {"_about" : "http://data.parliament.uk/resources/750677", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750677/answer", "answerText" : {"_value" : " No decision has been made to close the Congenital Heart Disease (CHD) service at the Royal Brompton and Harefield NHS Foundation Trust. In its work on the CHD standards, NHS England considered a broad range of determinants that contribute to excellent outcomes. Outcomes will be improved when care is provided by a centre that is able to meet the standards carefully developed by clinical experts and patients, and on which NHS England has already consulted.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1542", "label" : {"_value" : "Biography information for Philip Dunne"}
}
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, "answeringMemberPrinted" : {"_value" : "Mr Philip Dunne"}
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, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2017-07-19T10:53:25.703Z", "_datatype" : "dateTime"}
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, "answeringDeptShortName" : {"_value" : "Health"}
, "answeringDeptSortName" : {"_value" : "Health"}
, "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"}
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, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, what the clinical evidence basis is that patient services will be improved as a result of the proposed closure of congenital heart disease services at the Royal Brompton Hospital.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/87", "label" : {"_value" : "Biography information for Sir Roger Gale"}
}
, "tablingMemberConstituency" : {"_value" : "North Thanet"}
, "tablingMemberPrinted" : [{"_value" : "Sir Roger Gale"}
], "uin" : "4327"}
, {"_about" : "http://data.parliament.uk/resources/750678", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750678/answer", "answerText" : {"_value" : " No decision has been made to close the Congenital Heart Disease service at the Royal Brompton and Harefield NHS Foundation Trust.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1542", "label" : {"_value" : "Biography information for Philip Dunne"}
}
, "answeringMemberConstituency" : {"_value" : "Ludlow"}
, "answeringMemberPrinted" : {"_value" : "Mr Philip Dunne"}
, "dateOfAnswer" : {"_value" : "2017-07-19", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2017-07-19T10:48:59.04Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health"}
, "answeringDeptSortName" : {"_value" : "Health"}
, "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Royal Brompton Hospital"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, what estimate he has made of the cost of NHS England\u2019s proposal to close congenital heart disease services at the Royal Brompton Hospital.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/87", "label" : {"_value" : "Biography information for Sir Roger Gale"}
}
, "tablingMemberConstituency" : {"_value" : "North Thanet"}
, "tablingMemberPrinted" : [{"_value" : "Sir Roger Gale"}
], "uin" : "4328"}
, {"_about" : "http://data.parliament.uk/resources/750686", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750686/answer", "answerText" : {"_value" : " Between September 2014 and April 2017 (latest figures), a total of 1,785,895 penalty charge notices (PCNs) were issued to patients declaring they were entitled to free National Health Service prescriptions but their exemption could not be validated.<\/p> <\/p> A patient is issued a penalty charge notices when the NHS Business Services Authority exemption checker does not find a valid exemption entitling that patient to free prescriptions. This includes patients that did hold a valid exemption but failed to renew.<\/p> <\/p> During the same period, a total of 90,525 PCNs were issued for unconfirmed medical exemption certificates. A new process was introduced in spring 2015 whereby someone can submit a valid application for a medical or maternity exemption certificate within 60 days from date of the penalty charge notice, the outstanding penalty charge is cancelled but the prescription charge is still recovered.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4067", "label" : {"_value" : "Biography information for Steve Brine"}
}
, "answeringMemberConstituency" : {"_value" : "Winchester"}
, "answeringMemberPrinted" : {"_value" : "Steve Brine"}
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, "questionFirstAnswered" : [{"_value" : "2017-07-19T10:36:37.877Z", "_datatype" : "dateTime"}
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, "answeringDeptShortName" : {"_value" : "Health"}
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, "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Patients: Fines"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, how many patients were issued with fines by the NHS Business Authority because those patients (a) were not entitled to free prescriptions and (b) did not renew their exemption certificate; and how many such patients had a long-term medical condition.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4405", "label" : {"_value" : "Biography information for Julie Cooper"}
}
, "tablingMemberConstituency" : {"_value" : "Burnley"}
, "tablingMemberPrinted" : [{"_value" : "Julie Cooper"}
], "uin" : "4268"}
, {"_about" : "http://data.parliament.uk/resources/750716", "AnsweringBody" : [{"_value" : "Home Office"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/750716/answer", "answerText" : {"_value" : " Decisions on how the police enforce the law and deploy their available resources, including collaboration arrangements, are the responsibility of individual Chief Officers, taking into account the specific local problems and demands with which they are faced.<\/p> <\/p> <\/p> Home Office also supports specialist National Resilience capabilities to respond to multiple scale incidents. These capabilities are discussed quarterly at the National Fire Chief Council\u2019s National Resilience Board and the Home Office Strategic Resilience Board to ensure that the agreed capabilities are in place, well maintained and remain fit for purpose.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1561", "label" : {"_value" : "Biography information for Mr Nick Hurd"}
}
, "answeringMemberConstituency" : {"_value" : "Ruislip, Northwood and Pinner"}
, "answeringMemberPrinted" : {"_value" : "Mr Nick Hurd"}
, "dateOfAnswer" : {"_value" : "2017-07-19", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : {"_value" : "4453"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2017-07-19T11:20:12.23Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "1"}
, "answeringDeptShortName" : {"_value" : "Home Office"}
, "answeringDeptSortName" : {"_value" : "Home Office"}
, "date" : {"_value" : "2017-07-11", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Fire and Rescue Services: Equipment"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for the Home Department, what discussions she has had with fire service representatives on the adequacy of firefighters' equipment when responding to large-scale fires.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3976", "label" : {"_value" : "Biography information for Chris Williamson"}
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, "tablingMemberConstituency" : {"_value" : "Derby North"}
, "tablingMemberPrinted" : [{"_value" : "Chris Williamson"}
], "uin" : "4452"}
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