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1037134

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many claims for continuing care payments remain outstanding since the deadline for applications was set.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206023
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>In March 2012, deadlines were introduced for requests for an assessment for NHS Continuing Healthcare ‘previously unassessed periods of care’ between 1 April 2004 and 31 March 2012 in England. Approximately 63,000 requests for an assessment were received, with approximately 25,000 resulting in a full assessment.</p><p> </p><p>As at 30 November 2018, the number of payments for periods of care within the 2004-2012 period that remain outstanding is 624. This number relates to cases which have been assessed as eligible (either initially or on appeal) and for which payments remain outstanding.</p><p> </p><p>Data on NHS Continuing Healthcare previously unassessed periods of care from April 2012 is not held.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:26:00 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037136

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Continuing Care
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate he has made of the cost to the public purse of funding the outstanding retrospective claims under the continuing care programme; what interest rate is being applied to such claims; and what estimate he has made of the average cost to the public purse of those outstanding claims.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206024
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>The estimated cost of reimbursement for the outstanding claims from periods of care between 1 April 2004 and 31 March 2012 is £14.5 million. Data on claims for previously unassessed periods of care from 1 April 2012 is not held.</p><p> </p><p>The ‘NHS Continuing Healthcare Refreshed Redress Guidance’, published on 1 April 2015, advises clinical commissioning groups to calculate interest using the Retail Price Index. The estimated average cost per claim is £23,000.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 15/01/2019 12:25:12 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037137

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Orphan Drugs: Regulation
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, when his Department plans to publish its consultation on the regulation of orphan drugs after the UK leaves the EU.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206025
answer	answer is ministerial correction date of answer 16/01/2019 answer text <p>The Government is committed to the safe and effective regulation of medicines in the United Kingdom; ensuring patients and the public have fast access to new, innovative medicines, including medicines for rare diseases.</p><p> </p><p>The Medicines and Healthcare products Regulatory Agency (MHRA) launched in October 2018 a consultation on the regulation of medicines in the event of a ‘no deal’ exit, which included the proposed UK approach to the regulation of orphan medicines post-exit, including on incentives to encourage such medicines onto the UK market. Following this consultation, the MHRA, on 3 January 2019, published guidance on the UK proposed arrangements for the regulation of orphan medicines, in the event of a ‘no deal’ exit. This can be accessed at the following link:</p><p> </p><p><a href="https://www.gov.uk/government/publications/further-guidance-note-on-the-regulation-of-medicines-medical-devices-and-clinical-trials-if-theres-no-brexit-deal" target="_blank">https://www.gov.uk/government/publications/further-guidance-note-on-the-regulation-of-medicines-medical-devices-and-clinical-trials-if-theres-no-brexit-deal</a></p> answering member constituency Thurrock answering member printed Jackie Doyle-Price question first answered 16/01/2019 17:20:56 answering member 4065 label Biography information for Dame Jackie Doyle-Price
tabling member	4637 label Biography information for James Frith

1037138

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what measures he is taking to utilise UK genomic medical research to improve outcomes for patients living with rare diseases.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206026
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>The Government’s 2013 UK Strategy for Rare Diseases aims to improve the lives all those with a rare disease and is currently being implemented across England. The Strategy covers five areas including the role of research, with significant support from the National Institute of Health Research.</p><p> </p><p>In October 2018, the Secretary of State announced his ambition to sequence 5 million genomes in the next five years including 1 million whole genome sequences. This builds on the success of the transformative 100,000 Genomes Project which recruited people with rare, undiagnosed genetic diseases, and with cancer, and which reached 100,000 sequences in December 2018.</p><p> </p><p>The NHS Long Term Plan published on 7 January sets out the National Health Service’s commitment to research and innovation to drive outcome improvement, including through targeted investment in genomics. It confirmed that the new NHS Genomic Medicine Service will sequence 500,000 whole genomes by 2023/24 as part of the NHS’s contribution to the Government’s ambition for genomics. The NHS has become the first national health care system to offer whole genome sequencing as part of routine care. Another 500,000 whole genomes will be sequenced through UK Biobank as was announced in the 2017 Life Sciences Sector deal. Together, these activities will significantly increase the volume of high-quality genomic data for research to advance our knowledge to diagnose and treat rare diseases and other conditions to complement the research dataset already generated by the 100,000 Genomes Project.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 10/01/2019 15:18:43 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4637 label Biography information for James Frith

1037139

registered interest
date	07/01/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure the availability of treatments for patients with rare diseases since the introduction of the Orphan Medical Product Regulation 2000.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	206027
answer	answer is ministerial correction date of answer 15/01/2019 answer text <p>The Government is committed to improving the lives of all those affected by a rare disease. Implementation plans by NHS England and the Department were published jointly in January 2018 and describe the actions and framework in place to deliver this commitment to improve the lives of those affected by rare disease, as defined in the UK Strategy for Rare Diseases.</p><p> </p><p>Through its technology appraisal and highly specialised technologies programmes, the National Institute for Health and Care Excellence (NICE) plays an important role in ensuring that patients, including patients with rare diseases, are able to benefit from effective new treatments. NICE has recommended a number of drugs for rare diseases through these programmes that are now routinely funded by the National Health Service for eligible patients.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 15/01/2019 16:13:10 answering member 4067 label Biography information for Steve Brine
tabling member	4637 label Biography information for James Frith

1029333

registered interest
date	20/12/2018
answering body	Department for International Development
answering dept id	20
answering dept short name	International Development
answering dept sort name	International Development
hansard heading	Israel: Palestinians
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for International Development, what assessment her Department has made of the potential effect of the recently reported reductions in funding from the US to co-existence projects in Israel-Palestine on peace efforts in that region.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204610
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>DFID is aware of reports that USAID is currently unable to support coexistence projects in the West Bank and Gaza. The UK supports coexistence work both within green line Israel and across the Israel-OPTs boundary. All types of coexistence work can be valuable and help to foster greater understanding between communities from both sides of the conflict. Ultimately, however, the only way to achieve lasting coexistence is through a negotiated two-state solution that ends the occupation and delivers peace for both Israelis and Palestinians.</p><p> </p> answering member constituency North East Bedfordshire answering member printed Alistair Burt question first answered 10/01/2019 15:30:29 answering member 1201 label Biography information for Alistair Burt
tabling member	4637 label Biography information for James Frith

1029401

registered interest
date	20/12/2018
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Department for Business, Energy and Industrial Strategy: Project Bank Accounts
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204611
answer	answer is ministerial correction date of answer 08/01/2019 answer text <p>Central BEIS have not let any infrastructure contracts over the past year. We do not hold this information for BEIS Arms Lengths Bodies therefore this information could only be obtained at disproportionate cost.</p> answering member constituency Watford answering member printed Richard Harrington question first answered 08/01/2019 09:23:22 answering member 4068 label Biography information for Lord Harrington of Watford
tabling member	4637 label Biography information for James Frith

1029403

registered interest
date	20/12/2018
answering body	Ministry of Defence
answering dept id	11
answering dept short name	Defence
answering dept sort name	Defence
hansard heading	Ministry of Defence: Project Bank Accounts
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Defence, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204612
answer	answer is ministerial correction date of answer 10/01/2019 answer text <p>The Defence Infrastructure Organisation (DIO), on behalf of the Ministry of Defence, has let one infrastructure contract in the last year with the stipulation that a Project Bank Account (PBA) must be used. For all future procurements, DIO are reviewing the way in which PBAs can be embedded into contracts.</p> answering member constituency Bournemouth East answering member printed Mr Tobias Ellwood question first answered 10/01/2019 15:13:10 answering member 1487 label Biography information for Mr Tobias Ellwood
tabling member	4637 label Biography information for James Frith

1029406

registered interest
date	20/12/2018
answering body	Department for Education
answering dept id	60
answering dept short name	Education
answering dept sort name	Education
hansard heading	Department for Education: Project Bank Accounts
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Education, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204613
answer	answer is ministerial correction date of answer 09/01/2019 answer text <p>The Department has not mandated the use of Project Bank Accounts on any of its infrastructure contracts in the last year. The Department has considered the use of Project Bank Accounts on infrastructure contracts, but due to the specific nature and size of procurements and contracts, there are compelling reasons not to mandate its use.</p> answering member constituency Bognor Regis and Littlehampton answering member printed Nick Gibb question first answered 09/01/2019 16:16:19 answering member 111 label Biography information for Nick Gibb
tabling member	4637 label Biography information for James Frith

1029407

registered interest
date	20/12/2018
answering body	Department for Environment, Food and Rural Affairs
answering dept id	13
answering dept short name	Environment, Food and Rural Affairs
answering dept sort name	Environment, Food and Rural Affairs
hansard heading	Department for Environment, Food and Rural Affairs: Project Bank Accounts
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Environment, Food and Rural Affairs, how many infrastructure contracts overseen by his Department have been let with the stipulation that a Project Bank Account must be applied in the last year.
tabling member constituency	Bury North
tabling member printed	James Frith
uin	204614
answer	answer is ministerial correction date of answer 11/01/2019 answer text <p>The government’s infrastructure contracts make provision for the use of Project Bank Accounts (PBAs), and departments have committed to use PBAs on all infrastructure projects unless there are compelling reasons not to do so. Due to the range of infrastructure projects undertaken by government, the approaches taken will vary.</p><p> </p><p>Ten infrastructure contracts overseen by the Environment Agency in the last year have been let with the stipulation that a PBA must be used.</p><p> </p> answering member constituency Camborne and Redruth answering member printed George Eustice question first answered 11/01/2019 12:53:48 answering member 3934 label Biography information for George Eustice
tabling member	4637 label Biography information for James Frith