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928742
registered interest false more like this
date less than 2018-06-21more like thismore than 2018-06-21
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to revise the rare disease strategy ahead of the UK leaving the EU. more like this
tabling member constituency Oxford East more like this
tabling member printed
Anneliese Dodds more like this
uin 156485 remove filter
answer
answer
is ministerial correction false more like this
date of answer less than 2018-06-28more like thismore than 2018-06-28
answer text <p>With the aim of improving the lives of all those affected by a rare disease, the United Kingdom Government published the UK Strategy for Rare Diseases in 2013, a high-level framework containing 51 commitments which sets out a 7-year strategic vision (2013-2020).</p><p> </p><p>The Government is committed to implementing the Strategy’s commitments and has, in January 2018, published Implementation Plans setting out its actions for England.</p><p> </p><p>The UK Rare Disease Policy Board is the UK-wide body responsible for facilitating the co-ordination of policy development and meeting the commitments set out in the UK Strategy for Rare Diseases. The Strategy is kept under review to take account of new developments including the outcome of negotiations with the European Union.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-06-28T11:20:40.97Zmore like thismore than 2018-06-28T11:20:40.97Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4657
label Biography information for Anneliese Dodds remove filter