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750851
registered interest false more like this
date less than 2017-07-11more like thismore than 2017-07-11
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Cerliponase Alfa more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what the estimated average annual cost is to the NHS of providing Brineura (Cerliponase Alfa) to someone with the CLN2 variant of Batten Disease. more like this
tabling member constituency Nottingham North more like this
tabling member printed
Alex Norris remove filter
uin 4139 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-07-18more like thismore than 2017-07-18
answer text <p>The support and care given to this group of people includes a range of treatments and supportive measures, including: anti-epileptic medication; physiotherapy; treatment for spasticity; and treatment for dystonia (including bracing and wheelchairs). Progressive feeding problems require speech and language management and gastrostomy insertion. Pain management is required for end of life care.</p><p> </p><p>Given the wide range of treatments and supportive measures, it is not possible to estimate the average annual cost of treating an individual with a Neuronal Ceroid Lipofuscinosis disease, especially since some of these costs will fall to NHS England and some to clinical commissioning groups.</p><p> </p><p>It is estimated that there are between 45 and 90 people undergoing care and treatment for all Neuronal Ceroid Lipofuscinosis diseases of whom between 19 and 38 have CLN2 and fewer than 10 have CLN5.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
grouped question UIN
4140 more like this
4141 more like this
question first answered
less than 2017-07-18T09:59:34.327Zmore like thismore than 2017-07-18T09:59:34.327Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4641
label Biography information for Alex Norris more like this
750852
registered interest false more like this
date less than 2017-07-11more like thismore than 2017-07-11
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Batten Disease more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, what the average annual cost is to the NHS of care and treatment of people with (a) any Neuronal Ceroid Lipofuscinosis disease and (b) the CLN2 variant of that disease. more like this
tabling member constituency Nottingham North more like this
tabling member printed
Alex Norris remove filter
uin 4140 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-07-18more like thismore than 2017-07-18
answer text <p>The support and care given to this group of people includes a range of treatments and supportive measures, including: anti-epileptic medication; physiotherapy; treatment for spasticity; and treatment for dystonia (including bracing and wheelchairs). Progressive feeding problems require speech and language management and gastrostomy insertion. Pain management is required for end of life care.</p><p> </p><p>Given the wide range of treatments and supportive measures, it is not possible to estimate the average annual cost of treating an individual with a Neuronal Ceroid Lipofuscinosis disease, especially since some of these costs will fall to NHS England and some to clinical commissioning groups.</p><p> </p><p>It is estimated that there are between 45 and 90 people undergoing care and treatment for all Neuronal Ceroid Lipofuscinosis diseases of whom between 19 and 38 have CLN2 and fewer than 10 have CLN5.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
grouped question UIN
4139 more like this
4141 more like this
question first answered
less than 2017-07-18T09:59:34.403Zmore like thismore than 2017-07-18T09:59:34.403Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4641
label Biography information for Alex Norris more like this
750853
registered interest false more like this
date less than 2017-07-11more like thismore than 2017-07-11
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Batten Disease more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health, how many people in the UK are undergoing care and treatment for (a) all Neuronal Ceroid Lipofuscinosis diseases, (b) the CLN2 and (c) the CLN5 variants of that disease. more like this
tabling member constituency Nottingham North more like this
tabling member printed
Alex Norris remove filter
uin 4141 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-07-18more like thismore than 2017-07-18
answer text <p>The support and care given to this group of people includes a range of treatments and supportive measures, including: anti-epileptic medication; physiotherapy; treatment for spasticity; and treatment for dystonia (including bracing and wheelchairs). Progressive feeding problems require speech and language management and gastrostomy insertion. Pain management is required for end of life care.</p><p> </p><p>Given the wide range of treatments and supportive measures, it is not possible to estimate the average annual cost of treating an individual with a Neuronal Ceroid Lipofuscinosis disease, especially since some of these costs will fall to NHS England and some to clinical commissioning groups.</p><p> </p><p>It is estimated that there are between 45 and 90 people undergoing care and treatment for all Neuronal Ceroid Lipofuscinosis diseases of whom between 19 and 38 have CLN2 and fewer than 10 have CLN5.</p> more like this
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
grouped question UIN
4139 more like this
4140 more like this
question first answered
less than 2017-07-18T09:59:34.483Zmore like thismore than 2017-07-18T09:59:34.483Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4641
label Biography information for Alex Norris more like this
750854
registered interest false more like this
date less than 2017-07-11more like thismore than 2017-07-11
answering body
Home Office more like this
answering dept id 1 more like this
answering dept short name Home Office more like this
answering dept sort name Home Office more like this
hansard heading Cybercrime more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for the Home Department, what targets she has set for local police forces to tackle cybercrime; and how work to meet those targets will be funded. more like this
tabling member constituency Nottingham North more like this
tabling member printed
Alex Norris remove filter
uin 4153 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-07-19more like thismore than 2017-07-19
answer text <p>The Home Office is committed to not placing unnecessary bureaucratic burdens on the police and has scrapped all central targets. However, Chief Constables are under a duty to comply with the Strategic Policing Requirement (SPR). The SPR provides a framework for consistent, collective decision making by forces, but leaves the specifics of how this should be achieved to Chief Constables.</p><p>The Strategic Policing Requirements describes organised crime, including large scale cyber crime, as a national threat that Chief Constables and Police and Crime Commissioners are expected to plan and prepare, together or in support of national arrangements, to address these threats.</p><p>The National Police Chiefs’ Council has oversight of force contributions to the SPR. Police and Crime Commissioners are required to hold Chief Constables to account for the delivery of the SPR and to have regard to the SPR when producing their police and crime plans. The Home Office also continue to support forces in building professional responsibility through the College of Policing; and returning accountability to the public through Police and Crime Commissioners.</p><p>The 2015 National Security Strategy confirmed that cyber remains a top threat to the UK’s economic and national security. The UK’s future security and prosperity depends on our ability to safeguard digital information, data and networks at home and abroad. The cyber threats we face continue to grow in scale and sophistication. This is why the National Cyber Security Strategy 2016-2021 is supported by £1.9billion of transformational investment.</p><p>Through the National Cyber Security Programme, we invested over £90 million under the 2010-15 Parliament to bolster the law enforcement response. The Government will continue to invest in law enforcement capabilities at the national, regional and local levels to ensure delivery agencies have the capacity to deal with the increasing volume and sophistication of cyber crime. We are increasing the capabilities of the National Crime Agency’s National Cyber Crime Unit by increasing their ability to investigate the most serious cyber crime.</p>
answering member constituency Wyre and Preston North more like this
answering member printed Mr Ben Wallace more like this
question first answered
less than 2017-07-19T16:51:51.28Zmore like thismore than 2017-07-19T16:51:51.28Z
answering member
1539
label Biography information for Mr Ben Wallace more like this
tabling member
4641
label Biography information for Alex Norris more like this
751586
registered interest false more like this
date less than 2017-07-10more like thismore than 2017-07-10
answering body
Department for Transport more like this
answering dept id 27 more like this
answering dept short name Transport more like this
answering dept sort name Transport more like this
hansard heading Railways: Franchises more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Transport, what assessment he has made of the costs and benefits of rail franchising. more like this
tabling member constituency Nottingham North more like this
tabling member printed
Alex Norris remove filter
uin 900473 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2017-07-13more like thismore than 2017-07-13
answer text <p>The benefits of franchising to passengers and taxpayers are clear. The private sector have invested billions in new trains. Government subsidy to the industry has reduced by £2.5bn over ten years. Whilst passenger numbers have doubled since privatisation.</p><p> </p><p>All this is on top of our ongoing £38bn investment in infrastructure. We always assess franchising decisions against the best interests of passengers and taxpayers.</p><p> </p> more like this
answering member constituency Blackpool North and Cleveleys more like this
answering member printed Paul Maynard more like this
question first answered
less than 2017-07-13T15:33:46.03Zmore like thismore than 2017-07-13T15:33:46.03Z
answering member
3926
label Biography information for Paul Maynard more like this
tabling member
4641
label Biography information for Alex Norris more like this