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1715425
registered interest false more like this
date less than 2024-05-01more like thismore than 2024-05-01
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases remove filter
house id 2 remove filter
legislature
25277
pref label House of Lords more like this
question text To ask His Majesty's Government whether they intend to have any discussions with the National Institute for Health and Care Excellence about routinely taking into consideration the impact on the physical and mental health of the person with a rare condition and their wider family. more like this
tabling member printed
Lord Hunt of Kings Heath more like this
uin HL4281 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-20more like thismore than 2024-05-20
answer text <p>The National Institute for Health and Care Excellence (NICE) develops its guidance independently, in line with its established methods and processes, which have been developed through extensive engagement with interested parties. In developing its guidance, the NICE takes into account all physical and mental health-related costs and benefits including, where relevant, the health-related benefits to carers and the wider family.</p> more like this
answering member printed Lord Markham more like this
question first answered
less than 2024-05-20T10:36:29.583Zmore like thismore than 2024-05-20T10:36:29.583Z
answering member
4948
label Biography information for Lord Markham more like this
tabling member
2024
label Biography information for Lord Hunt of Kings Heath remove filter
1715426
registered interest false more like this
date less than 2024-05-01more like thismore than 2024-05-01
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Rare Diseases remove filter
house id 2 remove filter
legislature
25277
pref label House of Lords more like this
question text To ask His Majesty's Government whether they intend to have any discussions with the National Institute for Health and Care Excellence (NICE) about continuing to work with the rare condition community to improve engagement and involvement in decision-making from small organisations. more like this
tabling member printed
Lord Hunt of Kings Heath more like this
uin HL4282 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2024-05-09more like thismore than 2024-05-09
answer text <p>Department officials regularly meet with colleagues in the National Institute for Health and Care Excellence (NICE) to discuss a range of issues. Taking into account the advice and experience of people using services, as well as their carers or advocates, alongside that of health and social care professionals, commissioners, providers, and the public, is a central principle that guides the NICE’s work.</p><p>The NICE is committed to working with people who use health and social care services, their families, carers, and the public, as well as with voluntary and community sector organisations, and all of the NICE’s guidance is developed using a process that takes into account the opinions and views of the people who will be affected by them, to ensure their needs and priorities are reflected. The NICE gathers these perspectives through the membership of its committees, and through public consultations at various stages of guidance development. Stakeholders also have an opportunity to comment on the potential impact of the NICE’s guidance on health inequalities.</p>
answering member printed Lord Markham more like this
question first answered
less than 2024-05-09T11:30:09.877Zmore like thismore than 2024-05-09T11:30:09.877Z
answering member
4948
label Biography information for Lord Markham more like this
tabling member
2024
label Biography information for Lord Hunt of Kings Heath remove filter