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1649363

registered interest
date	30/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department has taken to provide support for people with (a) Corticobasal Degeneration and (b) Progressive Supranuclear Palsy.
tabling member constituency	Watford
tabling member printed	Dean Russell
uin	191978
answer	answer is ministerial correction date of answer 10/07/2023 answer text <p>While the Department is not taking steps to ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy specifically, the 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases which includes these conditions. England’s second Rare Diseases Action Plan, published in February 2023, reports on progress made to help patients get a final diagnosis faster and outlines new actions such as commissioning research on how best to measure the diagnostic odyssey.</p><p>An individual with Corticobasal Degeneration and Progressive Supranuclear Palsy can be affected in many ways, therefore support available will depend on individual need. Patients with these conditions would typically be supported through the usual range of commissioned health and social care services, including neurology services. There is not a separately commissioned service for this diagnosis.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 191979 question first answered 10/07/2023 15:15:05 answering member 4527 label Biography information for Helen Whately
tabling member	4812 label Biography information for Dean Russell

1649368

registered interest
date	30/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Neuromuscular Disorders
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy.
tabling member constituency	Watford
tabling member printed	Dean Russell
uin	191979
answer	answer is ministerial correction date of answer 10/07/2023 answer text <p>While the Department is not taking steps to ensure early diagnosis of Corticobasal Degeneration and Progressive Supranuclear Palsy specifically, the 2021 UK Rare Diseases Framework aims to improve the awareness of all rare diseases which includes these conditions. England’s second Rare Diseases Action Plan, published in February 2023, reports on progress made to help patients get a final diagnosis faster and outlines new actions such as commissioning research on how best to measure the diagnostic odyssey.</p><p>An individual with Corticobasal Degeneration and Progressive Supranuclear Palsy can be affected in many ways, therefore support available will depend on individual need. Patients with these conditions would typically be supported through the usual range of commissioned health and social care services, including neurology services. There is not a separately commissioned service for this diagnosis.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately grouped question UIN 191978 question first answered 10/07/2023 15:15:05 answering member 4527 label Biography information for Helen Whately
tabling member	4812 label Biography information for Dean Russell