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228729
registered interest false more like this
date less than 2015-03-19more like thismore than 2015-03-19
answering body
Department of Health more like this
answering dept id 17 more like this
answering dept short name Health more like this
answering dept sort name Health more like this
hansard heading Liver Diseases remove filter
house id 2 more like this
legislature
25277
pref label House of Lords more like this
question text To ask Her Majesty’s Government what steps they are taking to ensure that people suffering from Lysosomal Acid Lipase Deficiency and other causes of cirrhosis in children are diagnosed as soon as possible and have a suitable route to commissioning that is as streamlined and effective as possible. more like this
tabling member printed
Baroness Masham of Ilton more like this
uin HL5911 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2015-03-26more like thismore than 2015-03-26
answer text <p>The UK Strategy for Rare Diseases commits all four countries of the United Kingdom to work to achieve reduced times for diagnosis of rare diseases and to work with the National Health Service and clinicians to establish appropriate diagnostic pathways which are accessible to, and understood by, professionals and patients.</p><p> </p><p> </p><p> </p><p>NHS England commissions a highly specialised service for liver disease in children, including cirrhosis resulting from lysosomal acid lipase, from three expert centres in London, Birmingham and Leeds. These long established centres provide a clear referral pathway for expert diagnosis and management.</p> more like this
answering member printed Earl Howe more like this
question first answered
less than 2015-03-26T12:51:28.267Zmore like thismore than 2015-03-26T12:51:28.267Z
answering member
2000
label Biography information for Earl Howe more like this
tabling member
1850
label Biography information for Baroness Masham of Ilton more like this