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1693255

registered interest
date	04/03/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what progress her Department has made on the final delivery plan for ME/CFS.
tabling member constituency	Washington and Sunderland West
tabling member printed	Mrs Sharon Hodgson
uin	16630
answer	answer is ministerial correction date of answer 11/03/2024 answer text <p>We have been consulting on My Full Reality, the cross-government interim delivery plan on myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), which seeks to improve the experiences and outcomes of people living with this condition.</p><p>We are analysing the results of the consultation, and the views and experiences gathered through this consultation will be used to build a picture of how well the interim delivery plan identifies and meets the needs of the ME and CFS community, and to highlight any significant gaps where further action may be necessary. We will publish a summary of the consultation responses, which will inform the final delivery plan, in due course.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 11/03/2024 15:44:13 answering member 4044 label Biography information for Andrew Stephenson
tabling member	1521 label Biography information for Mrs Sharon Hodgson

1643023

registered interest
date	08/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has for a cross-Government delivery plan on myalgic encephalomyelitis or chronic fatigue syndrome.
tabling member constituency	Brighton, Kemptown
tabling member printed	Lloyd Russell-Moyle
uin	188617
answer	answer is ministerial correction date of answer 15/06/2023 answer text <p>The Department plans to publish a draft delivery plan on ME/CFS shortly. We intend to seek views on the draft plan before publishing a final delivery plan at a later date.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 15/06/2023 16:18:45 answering member 4527 label Biography information for Helen Whately
tabling member	4615 label Biography information for Lloyd Russell-Moyle

1625405

registered interest
date	02/05/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, when his Department plans to publish the cross-Government delivery plan on ME/CFS for England.
tabling member constituency	Glasgow North West
tabling member printed	Carol Monaghan
uin	183459
answer	answer is ministerial correction date of answer 09/05/2023 answer text <p>The Department plans to publish a draft delivery plan on ME/CFS shortly. We intend to seek views on the draft plan before publishing a final delivery plan at a later date.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 09/05/2023 14:40:48 answering member 4527 label Biography information for Helen Whately
tabling member	4443 label Biography information for Carol Monaghan

1579712

registered interest
date	23/01/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment his Department has made of the potential merits of using SNOMED-CT diagnostic codes to determine the number of (a) adults and (b) children living with myalgic encephalomyelitis or chronic fatigue syndrome.
tabling member constituency	Rother Valley
tabling member printed	Alexander Stafford
uin	130052
answer	answer is ministerial correction date of answer 30/01/2023 answer text <p>No assessment has been made.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 30/01/2023 14:45:27 answering member 4527 label Biography information for Helen Whately
tabling member	4866 label Biography information for Alexander Stafford

1579713

registered interest
date	23/01/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether his Department has had recent discussions with the ME Association on the ME/CFS Delivery Plan.
tabling member constituency	Rother Valley
tabling member printed	Alexander Stafford
uin	130053
answer	answer is ministerial correction date of answer 30/01/2023 answer text <p>The Department has engaged with a wide range of stakeholders as part of the development of the cross Government Delivery Plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, including the ME Association.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 30/01/2023 11:50:40 answering member 4527 label Biography information for Helen Whately
tabling member	4866 label Biography information for Alexander Stafford

1568779

registered interest
date	19/01/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if he will increase funding for (a) the treatment of and (b) research into myalgic encephalomyelitis.
tabling member constituency	Somerton and Frome
tabling member printed	David Warburton
uin	127864
answer	answer is ministerial correction date of answer 27/01/2023 answer text <p>It is the responsibility of integrated care boards to make available appropriate provision to meet the health and care needs of the local population, including people with ME/CFS. The Department is developing a cross-Government Delivery Plan on ME/CFS. As part of the plan, we are working with other Government departments and stakeholders to determine ways to improve experiences and outcomes for all people who have ME/CFS.</p><p>The Government invests in health research through the National Institute for Health and Care Research (NIHR) and the Medical Research Council (MRC), through UK Research and Innovation. The NIHR and MRC both welcome high-quality applications for research into all aspects of ME/CFS, including biomedical research. It is not usual practice to ring-fence funds for particular topics or conditions.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 27/01/2023 12:31:36 answering member 4527 label Biography information for Helen Whately
tabling member	4526 label Biography information for David Warburton

1566491

registered interest
date	12/01/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to support patients diagnosed with chronic fatigue syndrome or myalgic encephalomyelitis.
tabling member constituency	Bath
tabling member printed	Wera Hobhouse
uin	122208
answer	answer is ministerial correction date of answer 23/01/2023 answer text <p>The Department is developing a cross-Government delivery plan on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). As part of the delivery plan, we are working with other Government Departments and stakeholders to determine ways to improve experiences and outcomes for all people who have ME/CFS.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 23/01/2023 11:35:17 answering member 4527 label Biography information for Helen Whately
tabling member	4602 label Biography information for Wera Hobhouse

1551255

registered interest
date	13/12/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people in the UK have been diagnosed with severe Myalgic Encephalomyelitis, as defined in the NICE guidelines.
tabling member constituency	Exeter
tabling member printed	Mr Ben Bradshaw
uin	109415
answer	answer is ministerial correction date of answer 19/12/2022 answer text <p>The information requested is not held centrally.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 19/12/2022 13:03:24 answering member 4527 label Biography information for Helen Whately
tabling member	230 label Biography information for Mr Ben Bradshaw

1535106

registered interest
date	24/10/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps she is taking to raise awareness of myalgic encephalomyelitis amongst GPs and other doctors.
tabling member constituency	Strangford
tabling member printed	Jim Shannon
uin	69629
answer	answer is ministerial correction date of answer 10/11/2022 answer text <p>General Practitioners and other doctors are responsible for ensuring their clinical knowledge remains up-to-date as part of their continuing professional development.</p><p> </p><p>The National Institute for Health and Care Excellence (NICE) published an updated guideline on Myalgic Encephalomyelitis/ Chronic Fatigue Syndrome (ME/CFS) in October 2021, to improve awareness and understanding about ME/CFS. This guideline includes recommendations on diagnosis and management. NICE promotes its guidance via its website, newsletters and other media.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 10/11/2022 15:47:19 answering member 4527 label Biography information for Helen Whately
tabling member	4131 label Biography information for Jim Shannon

1535423

registered interest
date	24/10/2022
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 22 June 2022 to Question 18974 on Chronic Fatigue Syndrome, what progress his Department has made on the Cross-Government Delivery Plan on Myalgic Encephalomyelitis and Chronic Fatigue Syndrome.
tabling member constituency	Brighton, Kemptown
tabling member printed	Lloyd Russell-Moyle
uin	69758
answer	answer is ministerial correction date of answer 07/11/2022 answer text <p>We are engaging with stakeholders to develop a cross-Government delivery plan on myalgic encephalomyelitis/chronic fatigue syndrome. We have established a governance structure including a task and finish group and three working groups.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 07/11/2022 13:52:23 answering member 4527 label Biography information for Helen Whately previous answer version 29165 answering member constituency Faversham and Mid Kent answering member printed Helen Whately answering member 4527 label Biography information for Helen Whately
tabling member	4615 label Biography information for Lloyd Russell-Moyle