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1718804

registered interest
date	16/05/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether her Department (a) has and (b) plans to provide funding for new treatments for ME or chronic fatigue syndrome.
tabling member constituency	Leeds North East
tabling member printed	Fabian Hamilton
uin	26662
answer	answer is ministerial correction date of answer 21/05/2024 answer text <p>The Department, through the National Institute for Health and Care Research (NIHR), provides funding for research projects which aim to understand the underlying causes of myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS), and find new treatments for the condition. As part of this, the NIHR and the Medical Research Council have funded the world’s largest genome-wide association study of ME/CFS. This £3.2 million study, termed DecodeME, will analyse samples from 25,000 people with ME/CFS to search for genetic differences that may indicate underlying causes, or an increased risk of developing the condition. By helping us to understand ME/CFS better, this research has the potential to lead to new treatments for the condition.</p><p>Integrated care boards (ICBs) are responsible for commissioning specialist ME/CFS services that meet the needs of their population, subject to local prioritisation and funding. The process of commissioning services should take into account best practice guidance, such as the National Institute for Health and Care Excellence’s guidance on ME/CFS diagnosis and management, published in October 2021. In addition, in October 2023, the British Association of Clinicians in ME/CFS published the ME/CFS National Services Survey. This report provides insight into the services being delivered for adults, children, and young people with ME/CFS.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 26663 question first answered 21/05/2024 08:08:03 answering member 4044 label Biography information for Andrew Stephenson
tabling member	415 label Biography information for Fabian Hamilton

1655911

registered interest
date	01/09/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the action for me report entitled Implementation of the NICE Guideline [NG206] on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in England, published May 2023, what assessment he has made of the implications for his policies of that report's findings.
tabling member constituency	Oldham East and Saddleworth
tabling member printed	Debbie Abrahams
uin	195998
answer	answer is ministerial correction date of answer 05/09/2023 answer text <p>‘My Full Reality’, the cross-government Interim Delivery Plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was published on 9 August 2023. The Plan aims to improve experiences and outcomes for people with ME/CFS by setting out agreed actions to drive an expansion of research, better education of professionals, improvements in attitudes towards the condition, and improvements to service provision. Alongside the Plan we have published an eight-week consultation to build a picture of how well the Plan meets the needs of the ME/CFS community, and to highlight any significant gaps where further action may be necessary. The Plan and consultation are available at the following link:</p><p><a href="https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs" target="_blank">https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs</a></p><p>We have made no assessment of the implications of the report published by Action for ME, ‘Implementation of the NICE Guideline [NG206] on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in England’, the adequacy of implementation of the National Institute for Health and Care Excellence (NICE) guideline on ME/CFS, or on the provision of specialist services for people with ME/CFS.</p><p>Integrated care boards (ICBs) are responsible for commissioning services for people with ME/CFS to meet local needs. In making commissioning decisions, we would expect ICBs to consider guidelines published by NICE.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 195997 195999 196000 question first answered 05/09/2023 16:09:40 answering member 4423 label Biography information for Will Quince
tabling member	4212 label Biography information for Debbie Abrahams

1655912

registered interest
date	01/09/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the adequacy of the implementation of NICE Guidelines on Chronic Fatigue Syndrome.
tabling member constituency	Oldham East and Saddleworth
tabling member printed	Debbie Abrahams
uin	195999
answer	answer is ministerial correction date of answer 05/09/2023 answer text <p>‘My Full Reality’, the cross-government Interim Delivery Plan on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) was published on 9 August 2023. The Plan aims to improve experiences and outcomes for people with ME/CFS by setting out agreed actions to drive an expansion of research, better education of professionals, improvements in attitudes towards the condition, and improvements to service provision. Alongside the Plan we have published an eight-week consultation to build a picture of how well the Plan meets the needs of the ME/CFS community, and to highlight any significant gaps where further action may be necessary. The Plan and consultation are available at the following link:</p><p><a href="https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs" target="_blank">https://www.gov.uk/government/consultations/improving-the-experiences-of-people-with-mecfs-interim-delivery-plan/my-full-reality-the-interim-delivery-plan-on-mecfs</a></p><p>We have made no assessment of the implications of the report published by Action for ME, ‘Implementation of the NICE Guideline [NG206] on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome in England’, the adequacy of implementation of the National Institute for Health and Care Excellence (NICE) guideline on ME/CFS, or on the provision of specialist services for people with ME/CFS.</p><p>Integrated care boards (ICBs) are responsible for commissioning services for people with ME/CFS to meet local needs. In making commissioning decisions, we would expect ICBs to consider guidelines published by NICE.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 195997 195998 196000 question first answered 05/09/2023 16:09:40 answering member 4423 label Biography information for Will Quince
tabling member	4212 label Biography information for Debbie Abrahams