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1088440

registered interest
date	13/03/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Chronic Fatigue Syndrome: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Business, Energy and Industrial Strategy, what assessment he has made of the potential merits of ring-fencing Medical Research Council funds for biomedical research into ME in order to ensure that overall research funding for ME is proportional to that spent on research into similarly prevalent health conditions.
tabling member constituency	North West Norfolk
tabling member printed	Sir Henry Bellingham
uin	231931
answer	answer is ministerial correction date of answer 20/03/2019 answer text <p>The Medical Research Council (MRC) is part of the BEIS partner organisation, UK Research and Innovation. The MRC supports research relating to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (CFS/ME) in response to high-quality proposals from the research community.</p><p> </p><p>The MRC does not generally ring-fence funding for specific conditions, however CFS/ME is an identified priority area for the MRC. Proposals are particularly encouraged in areas that explore the underpinning mechanisms of CFS/ME (including immune dysregulation), pain, improved sub-phenotyping and stratification of CFS/ME disease, and mechanisms of CFS/ME in children.</p><p> </p><p>All proposals are subject to peer review and judged in open competition, with awards being made according to their scientific quality and importance to human health.</p><p> </p> answering member constituency Kingswood answering member printed Chris Skidmore question first answered 20/03/2019 11:25:25 answering member 4021 label Biography information for Chris Skidmore
tabling member	1441 label Biography information for Lord Bellingham

1088444

registered interest
date	13/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what recent discussions he has had with representatives of medical training bodies on ensuring that training programs for doctors, nurses and other health professionals include the most up to date guidance on diagnosis and appropriate treatment of myalgic encephalomyelitis.
tabling member constituency	North West Norfolk
tabling member printed	Sir Henry Bellingham
uin	231932
answer	answer is ministerial correction date of answer 21/03/2019 answer text <p>Ministers at the Department regularly meet with medical training bodies including the General Medical Council, to discuss many issues. However, there have been no recent discussions with medical training bodies to discuss the guidance on myalgic encephalomyelitis (ME).</p><p> </p><p>In terms of training, the General Medical Council sets out the knowledge, skills and behaviours that new United Kingdom medical graduates must be able to demonstrate and Royal Medical Colleges, such as the Royal College of General Practitioners (RCGP) set the standards for postgraduate medical education in general practice. General practice is where most patients with chronic fatigue syndrome (CFS)/ME are likely to be managed, and the condition is identified as a key area of clinical knowledge in the RCGP Applied Knowledge Test (AKT) content guide.</p><p> </p><p>The AKT is a summative assessment of the knowledge base that underpins general practice in the UK within the context of the NHS and is a key part of general practitioners’ qualifying exams.</p><p> </p><p>On 20 September 2017, the National Institute for Health and Care Excellence announced its decision to undertake a full update of the guideline, ‘Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): Diagnosis and management of CFS/ME in adults and children’, following a review of the latest available evidence on the diagnosis and management of CFS/ME and a public consultation. New guidance is expected in October 2020. More information on this decision can be found at the following link:</p><p><a href="http://www.nice.org.uk/news/article/nice-to-begin-review-of-its-guidance-on-the-diagnosis-and-treatment-of-cfs-me" target="_blank">www.nice.org.uk/news/article/nice-to-begin-review-of-its-guidance-on-the-diagnosis-and-treatment-of-cfs-me</a></p> answering member constituency Winchester answering member printed Steve Brine question first answered 21/03/2019 16:16:03 answering member 4067 label Biography information for Steve Brine
tabling member	1441 label Biography information for Lord Bellingham

1088450

registered interest
date	13/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on bringing forward the release of the revised NICE guidelines on ME, due to be published in October 2020.
tabling member constituency	North West Norfolk
tabling member printed	Sir Henry Bellingham
uin	231933
answer	answer is ministerial correction date of answer 21/03/2019 answer text <p>The Department has had no such discussions. The National Institute for Health and Care Excellence (NICE) is an independent body and responsible for developing its guidelines in accordance with its published methods and processes. NICE expects to publish its final updated guideline in October 2020 with a consultation on draft guidance starting in April 2020.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 21/03/2019 16:20:42 answering member 4067 label Biography information for Steve Brine
tabling member	1441 label Biography information for Lord Bellingham

1088452

registered interest
date	13/03/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Chronic Fatigue Syndrome: Medical Treatments
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what discussions his Department has had with NICE on issuing an interim warning on the potential dangers of graded exercise therapy (GET) as a treatment for ME, prior to issuing its revised guideline in October 2020.
tabling member constituency	North West Norfolk
tabling member printed	Sir Henry Bellingham
uin	231934
answer	answer is ministerial correction date of answer 21/03/2019 answer text <p>The Department has had no such discussions. The National Institute for Health and Care Excellence (NICE) is an independent body and is responsible for developing its guidance in accordance with its published methods and processes. NICE takes into account the best available evidence in determining whether to recommend a treatment.</p> answering member constituency Winchester answering member printed Steve Brine question first answered 21/03/2019 16:19:47 answering member 4067 label Biography information for Steve Brine
tabling member	1441 label Biography information for Lord Bellingham