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1171889

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Disability: Health Education
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness hidden disabilities.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5532
answer	answer is ministerial correction date of answer 28/01/2020 answer text <p>The Government will publish a National Strategy for Disabled People in 2020 to ensure all disabled people can lead a life of opportunity and fully participate in society.</p><p>In addition, National Health Service trusts are taking actions to help improve awareness of hidden disabilities such as:</p><p>- Several trusts have signed up to the Hidden Disabilities Sunflower Lanyard Scheme. Through the wearing of a sunflower lanyard, patients and the public can indicate that they have a hidden disability and that they may require additional assistance; and</p><p>- The Accessible Information Standard is a requirement for organisations that provide NHS care or publicly-funded adult social care. It ensures that people with a disability, impairment or sensory loss are provided with information they can easily read or understand, with support, so they can communicate effectively with services.</p> answering member constituency Gosport answering member printed Caroline Dinenage question first answered 28/01/2020 17:23:34 answering member 4008 label Biography information for Dame Caroline Dinenage
tabling member	4671 label Biography information for Afzal Khan

1171890

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Hereditary Diseases and Rare Diseases: Health Education
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of rare and genetic conditions.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5533
answer	answer is ministerial correction date of answer 29/01/2020 answer text <p>Steps to increase awareness of rare conditions and improve outcomes for those living with rare diseases are being taken through the implementation of the UK Strategy for Rare Diseases, which is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/rare-diseases-strategy" target="_blank">https://www.gov.uk/government/publications/rare-diseases-strategy</a></p><p>The Department published an update to its implementation plan for achieving the commitments in the Strategy in England in February 2019, which can be found at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england" target="_blank">https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england</a></p><p>A second update to the implementation plan is due to be published in spring 2020.</p><p> </p> answering member constituency Bury St Edmunds answering member printed Jo Churchill question first answered 29/01/2020 11:47:42 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan

1171891

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Hereditary Diseases and Rare Diseases: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure early detection of rare, genetic and undiagnosed conditions.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5534
answer	answer is ministerial correction date of answer 29/01/2020 answer text <p>Steps to improve diagnosis of rare conditions are being taken through the implementation of the of the UK Strategy for Rare Diseases, which is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/rare-diseases-strategy" target="_blank">https://www.gov.uk/government/publications/rare-diseases-strategy</a></p><p>The Government is committed to making the United Kingdom a leader in embedding genomics in healthcare and offering a consistent, world class approach to the genetic identification of rare, genetic and undiagnosed conditions. The Genomic Medicine Service was announced in October 2018, supported by the National Genomic Test Directory which specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access a test.</p><p>In January it was announced that the National Health Service in England is providing a new form of DNA test called whole exome sequencing capable of rapidly diagnosing rare diseases for critically ill babies and children, as part of the NHS Long Term Plan to use world leading technologies to improve care for the sickest infants. The National Genomic Healthcare Strategy, due to be published in spring 2020, will set out how the UK will build on our reputation as a world leader in genomic healthcare, focusing on a number of areas including diagnosis.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill question first answered 29/01/2020 11:44:38 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan

1171892

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Rare Diseases: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what plans he has to build on the UK Strategy for Rare Diseases to ensure the UK remains a world leader in research and innovation.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5535
answer	answer is ministerial correction date of answer 28/01/2020 answer text <p>In October 2019 a survey targeting those living and working with rare diseases was launched by the Parliamentary Under Secretary of State for Innovation (Baroness Blackwood of North Oxford) to gather views about the major challenges faced by the rare disease community. The survey was open for six weeks and the responses will be used to feed in to the development of a framework to follow the UK Strategy for Rare Diseases after 2020.</p><p>The National Genomic Healthcare Strategy, due to be published in Spring 2020, will seek to create alignment between the United Kingdom’s world leading genomics assets and map out a clear direction of travel over the next five to 10 years that will enable the genomics community to drive forward innovation for the benefit of patients, including those with rare diseases.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill question first answered 28/01/2020 17:56:27 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan

1171893

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Ehlers-Danlos Syndrome: Health Education
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to raise awareness of Ehlers-Danlos Syndrome.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5536
answer	answer is ministerial correction date of answer 28/01/2020 answer text <p>Steps to raise awareness of rare conditions such as Ehlers-Danlos Syndrome are being taken through the implementation of the of the UK Strategy for Rare Diseases, which is available at the following link:</p><p><a href="https://www.gov.uk/government/publications/rare-diseases-strategy" target="_blank">https://www.gov.uk/government/publications/rare-diseases-strategy</a></p><p>The Department published an update to its implementation plan for achieving the commitments in the Strategy in England in February 2019 to coincide with Rare Disease Day, which can be found at the following link:</p><p><a href="https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england" target="_blank">https://www.gov.uk/government/publications/uk-strategy-for-rare-diseases-2019-update-to-the-implementation-plan-for-england</a></p><p>A second update to the implementation plan is due to be published in spring 2020.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill question first answered 28/01/2020 17:56:49 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan

1171894

registered interest
date	20/01/2020
answering body	Home Office
answering dept id	1
answering dept short name	Home Office
answering dept sort name	Home Office
hansard heading	Immigration: EU Nationals
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for the Home Department, when she plans to publish guidance on the criteria for reasonable grounds for people missing the registration deadline for the EU Settlement Scheme.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5537
answer	answer is ministerial correction date of answer 07/02/2020 answer text <p>The Government has made clear that, where a person eligible for leave under the EU Settlement Scheme has reasonable grounds for missing the application deadline of 30 June 2021, they will be given a further opportunity to apply.</p><p>EU citizens can apply to the scheme, free of charge, simply by completing three key steps: proving their identity, showing that they live in the UK and declaring any criminal convictions. There is support available for any who need help in applying, including through the EU Settlement Resolution Centre, which is open seven days a week.</p><p>We have not estimated the number of EU citizens who may miss the deadline to apply to the EU Settlement Scheme as our focus remains on ensuring everyone who is eligible applies before the deadline.</p> answering member constituency Great Yarmouth answering member printed Brandon Lewis grouped question UIN 5538 question first answered 07/02/2020 14:23:24 answering member 4009 label Biography information for Sir Brandon Lewis
tabling member	4671 label Biography information for Afzal Khan

1171895

registered interest
date	20/01/2020
answering body	Home Office
answering dept id	1
answering dept short name	Home Office
answering dept sort name	Home Office
hansard heading	Immigration: EU Nationals
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for the Home Department, what estimate she has made of the number of EU citizens that will miss the registration deadline for the EU Settlement Scheme with a reasonable excuse for doing so.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5538
answer	answer is ministerial correction date of answer 07/02/2020 answer text <p>The Government has made clear that, where a person eligible for leave under the EU Settlement Scheme has reasonable grounds for missing the application deadline of 30 June 2021, they will be given a further opportunity to apply.</p><p>EU citizens can apply to the scheme, free of charge, simply by completing three key steps: proving their identity, showing that they live in the UK and declaring any criminal convictions. There is support available for any who need help in applying, including through the EU Settlement Resolution Centre, which is open seven days a week.</p><p>We have not estimated the number of EU citizens who may miss the deadline to apply to the EU Settlement Scheme as our focus remains on ensuring everyone who is eligible applies before the deadline.</p> answering member constituency Great Yarmouth answering member printed Brandon Lewis grouped question UIN 5537 question first answered 07/02/2020 14:23:24 answering member 4009 label Biography information for Sir Brandon Lewis
tabling member	4671 label Biography information for Afzal Khan

1171971

registered interest
date	20/01/2020
answering body	Home Office
answering dept id	1
answering dept short name	Home Office
answering dept sort name	Home Office
hansard heading	Immigration
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for the Home Department, if she will implement all of the recommendations of the 13 January 2020 Law Commission publication entitled Simplification of the Immigration Rules: Report.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5539
answer	answer is ministerial correction date of answer 23/01/2020 answer text <p>We are carefully considering the Law Commission’s report and recommendations. We will be providing a response to the report in due course, including whether we agree or disagree with each recommendation.</p> answering member constituency Torbay answering member printed Kevin Foster question first answered 23/01/2020 17:21:42 answering member 4451 label Biography information for Kevin Foster
tabling member	4671 label Biography information for Afzal Khan

1172068

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Cervical Cancer: Screening
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that women with physical disabilities are able to access cervical screening services.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5540
answer	answer is ministerial correction date of answer 29/01/2020 answer text <p>No woman should be unable to access screening services because they have a disability. NHS England is continuously investing in initiatives to help ensure equality of access to screening and, through the public health functions agreement (S7A), aims to improve public health outcomes and reduce inequalities.</p><p>General practitioner practices are required to ensure that their premises are suitable for the delivery of essential services and that they are sufficient to meet the reasonable needs of its patients, including those with disabilities. This involves making any necessary reasonable adjustments; making alternative arrangements, such as referral to a specialist screening provider; or undertaking the procedures in another setting that is more suitable given any limitations to a patient’s mobility. Where a patient requires specialist equipment, clinical staff will ensure that patients have access to its use in a safe environment.</p><p>Professor Richards’ review of National Adult Screening programmes was published on 16 October. As part of this review, it was recommended that good practice on physical disabilities is shared to enable this to be adopted more widely. The Department, NHS England and Public Health England are considering the recommendations of Professor Richards’ report as part of a wider Screening Improvement Programme and are intending to publish an implementation plan in spring 2020.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill question first answered 29/01/2020 11:03:55 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan

1172070

registered interest
date	20/01/2020
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Human Papillomavirus: Vaccination
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many girls in England have received the HPV vaccine since that vaccination programme began.
tabling member constituency	Manchester, Gorton
tabling member printed	Afzal Khan
uin	5541
answer	answer is ministerial correction date of answer 29/01/2020 answer text <p>Since the introduction of the human papillomavirus (HPV) immunisation programme in 2008 three million females have received the completed HPV vaccine course in England.</p><p>HPV vaccine coverage data is published annually by Public Health England (PHE) by dose and birth cohort (school year). Vaccine coverage data are not routinely collected by ethnicity.</p><p>PHE developed a range of resources and communication materials targeted at the public and health professionals to support the expansion of the HPV immunisation programme to boys. These materials were developed in close collaboration with National Health Service partners and a number of relevant stakeholders from charities and academia. The resources are intended to provide all the information necessary to help teenagers and their parents make an informed decision about the HPV vaccine. Local immunisation providers should share this information and signpost teenagers and their parents to these materials when the HPV vaccination programme is offered in schools.</p><p>Factsheets for school immunisation teams, headteachers and teaching teams and health professionals are available to inform parents and schools about the programme. As the programme is now universal, the fact sheet is aimed at boys and girls and gives information on the vaccination programme and is available at the following links:</p><p><a href="https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/812484/PHE_HPV_vaccination_leaflet.pdf%20https://www.gov.uk/government/publications/hpv-vaccination-and-cervical-cancer-addressing-the-myths" target="_blank">https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/812484/PHE_HPV_vaccination_leaflet.pdf https://www.gov.uk/government/publications/hpv-vaccination-and-cervical-cancer-addressing-the-myths</a></p><p>In addition, PHE has also worked closely with several charities such as Jo’s Cervical Cancer Trust and the Teenage Cancer Trust to develop lesson plans for schools to use to teach young people about cervical cancer and the HPV vaccine. These are available at the following links:</p><p><a href="https://www.jostrust.org.uk/information-healthcare-professionals/information-teachers" target="_blank">https://www.jostrust.org.uk/information-healthcare-professionals/information-teachers </a></p><p><a href="https://www.teenagecancertrust.org/about-us/what-we-do/cancer-awareness/resources#cervicalcancer" target="_blank">https://www.teenagecancertrust.org/about-us/what-we-do/cancer-awareness/resources#cervicalcancer</a></p><p>NHS England and NHS Improvement have commissioned all school aged providers in England to deliver the programme to boys from 1 September 2019 - making this a universal programme. In addition, NHS England and NHS Improvement central and regional Communications and Media teams, together with PHE, have and continue to develop campaigns targeted at boys in the eligible cohort, and their parents/guardians to inform and raise awareness of the availability of the vaccine.</p><p>HPV vaccine coverage data is collected annually. PHE will publish first dose HPV vaccine coverage in boys for the academic year 2019/20 in December 2020.</p> answering member constituency Bury St Edmunds answering member printed Jo Churchill grouped question UIN 5542 5547 5548 question first answered 29/01/2020 17:14:23 answering member 4380 label Biography information for Jo Churchill
tabling member	4671 label Biography information for Afzal Khan