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1141914

registered interest
date	24/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Data Protection
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, published on 15 July, what is meant by "fair terms" for (1) NHS organisations, and (2) the NHS as a whole.
tabling member printed	Lord Freyberg
uin	HL17458
answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17459 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
tabling member	2593 label Biography information for Lord Freyberg

1141915

registered interest
date	24/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Data Protection
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, which organisation or body will hold to account the boards of NHS organisations in ensuring that "any arrangements entered into by their organisation are fair, including recognising and safeguarding the value of the data that is shared and the resources which are generated as a result of the arrangement”.
tabling member printed	Lord Freyberg
uin	HL17459
answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17460 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
tabling member	2593 label Biography information for Lord Freyberg

1141916

registered interest
date	24/07/2019
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Data Protection
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, in respect of its guidance Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation, whether, in referring to NHS organisations, national NHS organisations, pertinent departments and arms-length bodies are required not to enter into “exclusive arrangements for raw data held by them”.
tabling member printed	Lord Freyberg
uin	HL17460
answer	answer is ministerial correction date of answer 07/08/2019 answer text <p>As set out in the recently published guidance <em>Creating the right framework to realise the benefits for patients and the NHS where data underpins innovation,</em> the Centre of Expertise will offer support to those National Health Service organisations seeking to understand whether proposed data arrangements meet the requirements set out in the five guiding principles. The Centre of Expertise will sit in NHSX. The requirement that terms are agreed which are fair to both an NHS organisation and the wider NHS, is included to ensure, for example, that local NHS trusts consider arrangements which can provide benefits to the whole NHS, not just to an individual trust. This may include a NHS trust providing access to anonymised healthcare data for development of a healthcare product in return for access at a reduced cost to that product for the whole NHS, not just that particular trust. Fair terms should ensure that benefits returned to NHS organisations and the NHS as a whole are commensurate with the outputs that are generated by the data partner. The principles are intended to apply to all NHS organisations at the primary, secondary and tertiary care levels, including national NHS organisations. However, we will consider the inclusion of arm’s length bodies as part of the next phase of work in developing a full policy framework.</p> answering member printed Baroness Blackwood of North Oxford grouped question UIN HL17458 HL17459 question first answered 07/08/2019 11:38:14 answering member 4019 label Biography information for Baroness Blackwood of North Oxford
tabling member	2593 label Biography information for Lord Freyberg

1141917

registered interest
date	24/07/2019
answering body	Department for Digital, Culture, Media and Sport
answering dept id	10
answering dept short name	Digital, Culture, Media and Sport
answering dept sort name	Digital, Culture, Media and Sport
hansard heading	Data Protection
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, further to the Written Answer by Lord Ashton of Hyde on 19 July (HL17042), who will be responsible for monitoring the adequacy of Standard Contractual Clauses (SCCs) after Brexit; and whether they have adequate powers and sufficient funding in place to enforce the use of SCCs where data transfers between the UK and non-EEA countries are concerned.
tabling member printed	Lord Freyberg
uin	HL17461
answer	answer is ministerial correction date of answer 02/08/2019 answer text <p>When the UK leaves the EU, the Information Commissioner's Office (ICO) will maintain its responsibility for enforcing compliance with data protection legislation, including monitoring the use of Standard Contractual Clauses.</p><p> </p><p>In February 2019 Parliament passed a Statutory Instrument (SI) setting out the criteria and process for creating and amending Standard Contractual Clauses either by the Secretary of State or by the Information Commissioner in conjunction with the Secretary of State. These provisions include a duty on both Secretary of State and the Information Commissioner to keep existing Standard Contractual Clauses under review.</p><p> </p><p>The government remains committed to ensuring that the ICO is a world class regulator and has the resources and enforcement tools it needs to safeguard the rights of individuals while allowing organisations to process personal data.</p> answering member printed Baroness Barran question first answered 02/08/2019 12:14:35 answering member 4703 label Biography information for Baroness Barran
tabling member	2593 label Biography information for Lord Freyberg

1141918

registered interest
date	24/07/2019
answering body	Department for Business, Energy and Industrial Strategy
answering dept id	201
answering dept short name	Business, Energy and Industrial Strategy
answering dept sort name	Business, Energy and Industrial Strategy
hansard heading	Research: Finance
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government, further to the Written Answer by Lord Henley on 23 July (HL17211), which government department will take the lead in developing the Roadmap referenced following the Spending Review.
tabling member printed	Lord Freyberg
uin	HL17462
answer	answer is ministerial correction date of answer 01/08/2019 answer text <p>Government alone cannot deliver the 2.4% target. The Department is working with UKRI and other key partners to develop a roadmap that sets out how government and industry will work together to achieve this ambition.</p><p> </p> answering member printed Lord Duncan of Springbank question first answered 01/08/2019 13:24:25 answering member 4686 label Biography information for Lord Duncan of Springbank
tabling member	2593 label Biography information for Lord Freyberg