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65927

registered interest
date	07/07/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Hereditary Diseases
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government, further to the Written Answer by Earl Howe on 1 April (WA 178), whether they intend to issue a clarification of the differences between the figures for the number of babies born with mitochondrial disorders in their press releases on 28 June 2013 and 27 February 2014; whether the updated disease estimate for the United Kingdom based both on data from the 2011 census and observational epidemiological studies from the north-east of England is closer to their stated figure of one in 6,500 or one in 200; what was the corresponding frequency of children in either the north-east of England or the United Kingdom as a whole that were diagnosed with each of the mitochondrial diseases listed in Annex D of the consultation document entitled "Mitochondrial Donation" over the last ten years for which data are available; and how those figures compare to available data on population frequencies for mutations within the nuclear POLG1 and POLG2 genes.
tabling member printed	Lord Alton of Liverpool
uin	HL854
answer	answer is ministerial correction date of answer 21/07/2014 answer text <p>The Wellcome Centre for Mitochondrial Research at Newcastle University have estimated that there are initially 10-20 women per year, of child-bearing age, who carry faulty mitochondrial DNA (mtDNA) and who might decide that mitochondrial donation is the best reproductive option, as noted in my Written Answer of 1 April 2014.</p><p> </p><p>It is estimated that at least 1 in 200 children in the United Kingdom are born with faulty mtDNA, as stated in the consultation documentation released 27 February 2014. Whereas the figure of 1 in 6,500 babies, as stated in the press release of 28 June 2013, is an estimation of those thought to go on to develop a more serious mitochondrial disorder. Serious cases can result in fatal liver failure, stroke-like episodes, blindness, muscle disease, diabetes and deafness.</p><p> </p><p>Calculating the overall incidence of mitochondrial disease is extremely difficult. The figure of 1 in 200 is based on epidemiological data from the UK and Australia. This disease estimate in the UK is based on observational epidemiological studies from the north east of England which are currently being updated using the data from the 2011 census.</p><p> </p><p>The table of disorders caused by unhealthy mtDNA attached as Annex D in the consultation document ‘Mitochondrial Donation’ was derived from existing published tables, such as the 2011 report by the Expert Panel convened by The Human Fertilisation and Embryology Authority to review safety and efficacy of mitochondrial donation techniques. There is currently no published information of the exact numbers of cases of each of the conditions in Annex D.</p> answering member printed Earl Howe question first answered 21/07/2014 16:51:16 answering member 2000 label Biography information for Earl Howe
tabling member	738 label Biography information for Lord Alton of Liverpool

65928

registered interest
date	07/07/2014
answering body	Foreign and Commonwealth Office
answering dept id	16
answering dept short name	Foreign and Commonwealth Office
answering dept sort name	Foreign and Commonwealth Office
hansard heading	Burma
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government whether any discussions were held at the Global Summit to End Sexual Violence in Conflict concerning the situation in Burma.
tabling member printed	Lord Alton of Liverpool
uin	HL855
answer	answer is ministerial correction date of answer 21/07/2014 answer text <p>During the Global Summit to End Sexual Violence in Conflict I chaired a roundtable on the role of faith leaders and communities in tackling sexual violence. Participants included two religious leaders from Burma. The Minister of State for Foreign and Commonwealth Affairs, my right hon. Friend the Member for East Devon (Mr Swire), met Deputy Foreign Minister U Thant Kyaw separately during the Global Summit. They discussed a series of bilateral issues and Mr Swire raised a range of human rights concerns. Mr Swire welcomed the Burmese government’s attendance at the Summit and urged them to follow-up quickly with a credible action plan to tackle sexual violence that involved the military. Mr Swire also hosted an event for Burmese civil society, in which he welcomed the attendance of Burmese civil society and religious leaders at the Global Summit.</p> answering member printed Baroness Warsi question first answered 21/07/2014 14:32:03 answering member 3839 label Biography information for Baroness Warsi
tabling member	738 label Biography information for Lord Alton of Liverpool

65929

registered interest
date	07/07/2014
answering body	Foreign and Commonwealth Office
answering dept id	16
answering dept short name	Foreign and Commonwealth Office
answering dept sort name	Foreign and Commonwealth Office
hansard heading	Burma
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government what steps are being taken to incorporate discussion of torture, sexual violence and other war crimes and crimes against humanity and other human rights violations in the military training provided to the Burmese army by the United Kingdom.
tabling member printed	Lord Alton of Liverpool
uin	HL856
answer	answer is ministerial correction date of answer 21/07/2014 answer text <p>Our defence engagement with Burma is focussed on the core principles of democratic accountability, international law and human rights. UK provision of defence training to the Burma Army is limited to non-combat related academic courses. This has included a course entitled “Managing Defence in the Wider Security Context” (MDWSC). The MDWSC covers the UK model of democratic accountability, the importance of good governance in defence and the significance of professionalism in a nation’s Armed Forces, including observation of human rights obligations.</p><p> </p><p> </p><p> </p> answering member printed Baroness Warsi question first answered 21/07/2014 13:25:37 answering member 3839 label Biography information for Baroness Warsi
tabling member	738 label Biography information for Lord Alton of Liverpool

65930

registered interest
date	07/07/2014
answering body	Foreign and Commonwealth Office
answering dept id	16
answering dept short name	Foreign and Commonwealth Office
answering dept sort name	Foreign and Commonwealth Office
hansard heading	Burma
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty’s Government what steps they are taking to persuade the government of Burma to sign the International Covenant on Civil and Political Rights; and what is their assessment of Burma’s position in respect of the Covenant.
tabling member printed	Lord Alton of Liverpool
uin	HL857
answer	answer is ministerial correction date of answer 21/07/2014 answer text We have had a number of discussions with the Burmese government on the importance of Burma ratifying the International Covenant on Civil and Political Rights (ICCPR). At the request of the Burmese government, our Embassy in Rangoon recently funded an experts’ visit to Burma for the purpose of identifying steps that would need to be taken and issues that would need to be considered in reaching the decision to ratify the ICCPR. We hope this will lay the foundations for further action in the coming months. answering member printed Baroness Warsi question first answered 21/07/2014 13:26:19 answering member 3839 label Biography information for Baroness Warsi
tabling member	738 label Biography information for Lord Alton of Liverpool