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1713223

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will publish the waiting times from the point of a GP referral for a diagnosis of a patient with suspected Parkinson's Disease to the date of an appointment with a neurologist or geriatrician, by Integrated Care Board for the latest period for which that data is available.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23308
answer	answer is ministerial correction date of answer 29/04/2024 answer text <p>Information is not held centrally on the waiting times from the point of general practice (GP) referral for a diagnosis of suspected Parkinson’s disease, to the date of appointment with a neurologist or geriatrician, by integrated care board.</p><p>Similarly, information is not held centrally on how many people with Parkinson’s disease are on waiting lists for a referral for diagnosis from a neurologist or geriatrician in each integrated care board area.</p><p>GP referrals are not classified by suspected diagnosis, so data is not available in the form requested. Not all patients referred to a neurologist or geriatrician with suspected Parkinson’s disease will go on to receive a diagnosis of Parkinson’s disease, while some receive other diagnoses.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 23309 question first answered 29/04/2024 10:59:08 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1713224

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, how many people with Parkinson's Disease are on waiting lists for a referral for diagnosis to a neurologist or geriatrician in each Integrated Care Board area as of 23 April 2024.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23309
answer	answer is ministerial correction date of answer 29/04/2024 answer text <p>Information is not held centrally on the waiting times from the point of general practice (GP) referral for a diagnosis of suspected Parkinson’s disease, to the date of appointment with a neurologist or geriatrician, by integrated care board.</p><p>Similarly, information is not held centrally on how many people with Parkinson’s disease are on waiting lists for a referral for diagnosis from a neurologist or geriatrician in each integrated care board area.</p><p>GP referrals are not classified by suspected diagnosis, so data is not available in the form requested. Not all patients referred to a neurologist or geriatrician with suspected Parkinson’s disease will go on to receive a diagnosis of Parkinson’s disease, while some receive other diagnoses.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 23308 question first answered 29/04/2024 10:59:08 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1713225

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what guidance is provided to clinicians on advising patients recently diagnosed with Parkinson's Disease; and whether that guidance recommends that patients be given a leaflet from Parkinson's UK.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23310
answer	answer is ministerial correction date of answer 29/04/2024 answer text <p>The National Institute for Health and Care Excellence’s (NICE) guidelines on Parkinson’s disease in adults include recommendations for communication with people with Parkinson's disease, and their carers. The guidelines do not specify a particular leaflet, such as the one from Parkinson’s UK, but they do recommend that: communication with people with Parkinson's disease should aim towards empowering them to participate in judgements and choices about their own care; discussions should aim to achieve a balance between providing honest, realistic information about the condition, and promoting a feeling of optimism; because people with Parkinson's disease may develop impaired cognitive ability, and communication problems, they should be provided with both oral and written communication throughout the course of the disease, which should be individually tailored and reinforced as necessary, in a consistent manner; family members and carers should be advised about their right to a carer assessment, assessment for respite care, and other support; people with Parkinson's disease should have a comprehensive care plan agreed between the person, their family members and carers as appropriate, and specialist and secondary healthcare providers; and people with Parkinson's disease should have an accessible point of contact with specialist services, such as a Parkinson's disease nurse specialist.</p><p>The exact information that is provided to a newly diagnosed Parkinson’s patient will vary, but would usually include referral to a Parkinson’s nurse. Information about local support groups would usually be provided by the Parkinson’s nurse. The Department will explore whether anything further can be done to improve the provision of post-diagnosis patient information for those with Parkinson’s disease.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 23311 question first answered 29/04/2024 11:04:22 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1713226

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Diagnosis
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether advice given to a newly diagnosed Parkinson's Disease patient contains (a) contact details for a local Parkinson's nurse, (b) a date for a first appointment and (c) information on local support groups.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23311
answer	answer is ministerial correction date of answer 29/04/2024 answer text <p>The National Institute for Health and Care Excellence’s (NICE) guidelines on Parkinson’s disease in adults include recommendations for communication with people with Parkinson's disease, and their carers. The guidelines do not specify a particular leaflet, such as the one from Parkinson’s UK, but they do recommend that: communication with people with Parkinson's disease should aim towards empowering them to participate in judgements and choices about their own care; discussions should aim to achieve a balance between providing honest, realistic information about the condition, and promoting a feeling of optimism; because people with Parkinson's disease may develop impaired cognitive ability, and communication problems, they should be provided with both oral and written communication throughout the course of the disease, which should be individually tailored and reinforced as necessary, in a consistent manner; family members and carers should be advised about their right to a carer assessment, assessment for respite care, and other support; people with Parkinson's disease should have a comprehensive care plan agreed between the person, their family members and carers as appropriate, and specialist and secondary healthcare providers; and people with Parkinson's disease should have an accessible point of contact with specialist services, such as a Parkinson's disease nurse specialist.</p><p>The exact information that is provided to a newly diagnosed Parkinson’s patient will vary, but would usually include referral to a Parkinson’s nurse. Information about local support groups would usually be provided by the Parkinson’s nurse. The Department will explore whether anything further can be done to improve the provision of post-diagnosis patient information for those with Parkinson’s disease.</p> answering member constituency Pendle answering member printed Andrew Stephenson grouped question UIN 23310 question first answered 29/04/2024 11:04:22 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1713227

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Medical Records
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of implementing a Parkinson's Passport that would give automatic access to clearly defined benefits.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23312
answer	answer is ministerial correction date of answer 01/05/2024 answer text <p>The Department is currently exploring the feasibility of this, and the other asks within the charter.</p><p>The Department for Work and Pensions offers Personal Independence Payments (PIP) to individuals with health conditions or disabilities. However, there is currently no automatic entitlement to PIP in relation to specific health conditions, except in cases of people nearing the end of life, specifically the last year of life. The Government understands that there are people with severe and lifelong health conditions which will not improve. Guidance ensures that those on the highest level of support, whose needs will not improve, receive an ongoing award with a light-touch review at the 10-year point.</p><p>The primary focus of the Department for Transport’s Blue Badge scheme is to help those with the greatest mobility needs. Eligibility is not based on the type of disability. There are several automatic qualifying criteria for a Blue Badge, such as being in receipt of PIP because you cannot walk more than 50 metres. People who do not automatically qualify for a Blue Badge may still be eligible for a badge through further assessment.</p><p>With regards to free prescriptions, approximately 89% of prescription items are currently dispensed free of charge, and there is a wide range of exemptions from prescription charges already in place. People with Parkinson’s disease who are 60 years old or over are entitled to free prescriptions. For those that have to pay for prescriptions, the cost can be capped by purchasing a pre-payment certificate, which can be paid for in instalments. Additionally, the NHS Low Income Scheme can provide help with health costs on an income-related basis.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 01/05/2024 16:48:48 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1713228

registered interest
date	23/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Parkinson's Disease: Research
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what estimate she has made of the amount of funding allocated to the research of Parkinson's disease over the next five years.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23313
answer	answer is ministerial correction date of answer 01/05/2024 answer text <p>The National Institute for Health and Care Research (NIHR) welcomes funding applications for research into any aspect of human health, including Parkinson’s disease. Future funding allocated to research into Parkinson’s disease, and into other aspects of human health, will depend on the volume and quality of proposals received from the research community, with the level of spending outlined in the end of year accounting.</p><p>The Department, through the NIHR, invested £12.2 million into Parkinson’s research over five financial years, ending in 2022/23. The NIHR has supported a broad portfolio of Parkinson’s research and, in the last year alone, supported the conduct of 114 studies relating to Parkinson’s disease through the NIHR Clinical Research Network. For example, the NIHR is investing £3 million in the PD MED clinical trial, which investigates the efficacy of different drugs in the treatment of Parkinson’s disease. The usual practice of the NIHR is not to ring-fence funds for expenditure on particular topics.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 01/05/2024 16:38:30 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper

1712885

registered interest
date	22/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Infant Mortality: Certification
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 26 March 2024 to Question 19419 on Infant Mortality: Certification, what her planned timetable is for extending the scheme to pregnancy losses before 1 September 2018.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23040
answer	answer is ministerial correction date of answer 25/04/2024 answer text <p>On 22 February 2024, we launched the Baby Loss Certificate service, fulfilling our commitment in the Women’s Health Strategy. We recognise that some people will wish to obtain a certificate for a baby loss that happened in the past. It is currently open to pregnancy losses since 1 September 2018, and we will extend this to earlier losses as soon as we can.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 25/04/2024 16:52:28 answering member 4492 label Biography information for Maria Caulfield
tabling member	4769 label Biography information for Daisy Cooper

1712886

registered interest
date	22/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Gender Dysphoria: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment she has made of whether the NHS workforce plan should be updated by NHS England to reflect the staffing needs of the eight new children and young people's gender services regional centres.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23041
answer	answer is ministerial correction date of answer 25/04/2024 answer text <p>No specific formal assessment has been made. Gender medicine is a highly specialised field of medicine, and NHS England are actively working to recruit more staff for the new regional children and young people gender identity services. NHS England has also been working closely with other professional bodies to develop tailored training for these professionals. NHS England will commission the required professional training curriculum and competencies framework, not just for staff working in the new gender services, but also for clinicians working in secondary, primary, and community care. It is expected that this will also help to increase the support for children and young people, ensuring they receive a more holistic model of care.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 25/04/2024 16:57:05 answering member 4492 label Biography information for Maria Caulfield
tabling member	4769 label Biography information for Daisy Cooper

1712887

registered interest
date	22/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Gender Dysphoria: Health Services
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether she plans to develop waiting time targets for receiving treatment in the eight new children and young people's gender services regional centres.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23042
answer	answer is ministerial correction date of answer 01/05/2024 answer text <p>There are no plans to develop tailored waiting time targets for receiving treatment in children and young people's gender services regional centres. NHS England has made significant progress on its overhaul of children’s gender identity services. NHS England closed the Tavistock Gender Clinic last month and opened two new, regional services operating under a fundamentally differing service model earlier this month. A third clinic is set to open in Bristol this Autumn, and NHS England has committed to a further three services by 2026. These new services will increase service capacity and reduce waiting lists.</p> answering member constituency Lewes answering member printed Maria Caulfield question first answered 01/05/2024 10:56:17 answering member 4492 label Biography information for Maria Caulfield
tabling member	4769 label Biography information for Daisy Cooper

1712892

registered interest
date	22/04/2024
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Medical Records: Databases
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of the accessibility of electronic patient record systems for patients who do not own a mobile phone and cannot use text message verification services.
tabling member constituency	St Albans
tabling member printed	Daisy Cooper
uin	23043
answer	answer is ministerial correction date of answer 30/04/2024 answer text <p>A phone number is required to register with the National Health Service login, used to access NHS digital services, although it is not required to log in after registration is complete. Two-step verification is a necessary security feature to ensure that only the correct individual can access an account, and that their medical information is protected.</p><p>Once registered, to log in without a phone number, people can have the login remembered on their computer or tablet, or set up face or fingerprint login on their devices, provided their devices support this. They can also set up their device using passkeys, which allow use of the main login used on the device, with access to a trusted phone number required to set this up.</p><p>However, NHS England recognises the two-step verification features that NHS login supports may not work for everyone. Landline support was therefore recently introduced for NHS login, that allows those without a mobile phone to register and receive security codes. The needs of those with hearing difficulties were considered, and research with deaf charities showed that most people had access to a trusted phone number that they could use. Phone numbers can also be shared between people for NHS login purposes, as a further option to allow access.</p> answering member constituency Pendle answering member printed Andrew Stephenson question first answered 30/04/2024 16:34:55 answering member 4044 label Biography information for Andrew Stephenson
tabling member	4769 label Biography information for Daisy Cooper