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49803

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government how many (1) non-cancer and (2) cancer-based lymphoedema and lipoedema patients were identified by the National Health Service in each of the last three years; how many such patients were treated by the National Health Service in each of the last three years; and what was the cost of those treatments.
tabling member printed	Baroness Greengross
uin	HL6823
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>Hospital Episode Statistics (HES) data does not separately identify those cases of lymphoedema that are associated with cancer from those that are not, and is unable to identify cases of lipoedema as there is no coding available for this condition, based on the tenth revision of the International Classification of Diseases (ICD).</p><p>Further to this, HES data is not linked to costing information and therefore this information cannot be provided.</p><p> </p><p>In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of lymphoedema from 2010-11 to 2012-13.</p><table><tbody><tr><td><p>Year</p></td><td><p>FAE</p></td></tr><tr><td><p>2010-11</p></td><td><p>1,887</p></td></tr><tr><td><p>2011-12</p></td><td><p>2,026</p></td></tr><tr><td><p>2012-13</p></td><td><p>2,099</p></td></tr></tbody></table><p> </p><p><em>Note:</em></p><p>An FAE is the first period of admitted patient care under one consultant within one healthcare provider. FAEs are counted against the year or month in which the admission</p> answering member printed Earl Howe grouped question UIN HL6824 HL6825 question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	2518 label Biography information for Baroness Greengross

49804

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what research they support into the number of patients identified by the National Health Service as having lymphoedema or lipoedema.
tabling member printed	Baroness Greengross
uin	HL6824
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>Hospital Episode Statistics (HES) data does not separately identify those cases of lymphoedema that are associated with cancer from those that are not, and is unable to identify cases of lipoedema as there is no coding available for this condition, based on the tenth revision of the International Classification of Diseases (ICD).</p><p>Further to this, HES data is not linked to costing information and therefore this information cannot be provided.</p><p> </p><p>In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of lymphoedema from 2010-11 to 2012-13.</p><table><tbody><tr><td><p>Year</p></td><td><p>FAE</p></td></tr><tr><td><p>2010-11</p></td><td><p>1,887</p></td></tr><tr><td><p>2011-12</p></td><td><p>2,026</p></td></tr><tr><td><p>2012-13</p></td><td><p>2,099</p></td></tr></tbody></table><p> </p><p><em>Note:</em></p><p>An FAE is the first period of admitted patient care under one consultant within one healthcare provider. FAEs are counted against the year or month in which the admission</p> answering member printed Earl Howe grouped question UIN HL6823 HL6825 question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	2518 label Biography information for Baroness Greengross

49806

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what estimate they have made of the potential savings to the National Health Service and social services of providing care for lymphoedema and lipoedema patients from the time of diagnosis.
tabling member printed	Baroness Greengross
uin	HL6825
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>Hospital Episode Statistics (HES) data does not separately identify those cases of lymphoedema that are associated with cancer from those that are not, and is unable to identify cases of lipoedema as there is no coding available for this condition, based on the tenth revision of the International Classification of Diseases (ICD).</p><p>Further to this, HES data is not linked to costing information and therefore this information cannot be provided.</p><p> </p><p>In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of lymphoedema from 2010-11 to 2012-13.</p><table><tbody><tr><td><p>Year</p></td><td><p>FAE</p></td></tr><tr><td><p>2010-11</p></td><td><p>1,887</p></td></tr><tr><td><p>2011-12</p></td><td><p>2,026</p></td></tr><tr><td><p>2012-13</p></td><td><p>2,099</p></td></tr></tbody></table><p> </p><p><em>Note:</em></p><p>An FAE is the first period of admitted patient care under one consultant within one healthcare provider. FAEs are counted against the year or month in which the admission</p> answering member printed Earl Howe grouped question UIN HL6823 HL6824 question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	2518 label Biography information for Baroness Greengross

49825

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government how many neurofibromatosis sufferers they estimate to be in the United Kingdom, broken down by (1) county, and (2) type.
tabling member printed	Lord Bassam of Brighton
uin	HL6836
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>NHS England commissions neurofibromatosis type two (NF2) services and complex neurofibromatosis type 1 (NF1) services as part of its remit to deliver specialised services.</p><p> </p><p>NHS England has published service specifications for both types of neurofibromatosis. These estimate that in England there are 11,267 individuals with NF1 and 862 with NF2.</p><p> </p><p>The Department does not have specific guidance relating to the special travel needs of neurofibromatosis sufferers. Domestic equality legislation makes it unlawful for transport operators to discriminate against a disabled person simply because they are disabled, treat disabled people less favourably or fail to make reasonable adjustments in the way they provide their services, depending on the type of vehicles and the services they offer to the public.</p><p> </p><p>Furthermore, an extra level of protection is provided by recently implemented European regulations on passenger rights across all transport modes. These provide a set of rules for the treatment of disabled people and people with reduced mobility.</p> answering member printed Earl Howe grouped question UIN HL6841 question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	3504 label Biography information for Lord Bassam of Brighton

49826

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what diagnostic training general practitioners receive with regard to neurofibromatosis.
tabling member printed	Lord Bassam of Brighton
uin	HL6837
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>The content and standard of medical training of trainee general practitioners (GPs) is the responsibility of the General Medical Council, which is an independent statutory body. It has the general function of promoting high standards of education and co-ordinating all stages of education to ensure that medical students and newly qualified doctors are equipped with the knowledge, skills and attitudes essential for professional practice.</p><p> </p><p>In the specific area of genetics in primary care, the curriculum designed by the Royal College of General Practitioners (RCGP) requires GPs to understand that while some genetic conditions always present with the same signs and symptoms, others can show variability between family members, particularly some autosomal dominant conditions (such as neurofibromatosis type 1).</p><p> </p><p>The Government has mandated Health Education England (HEE) to provide national leadership on education, training and workforce development in the National Health Service. This mandate includes a commitment that HEE will ensure that GP training produces GPs with the required competencies to practise in the new NHS. Consequently HEE will work with stakeholders to influence training curricula as appropriate.</p> answering member printed Earl Howe question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	3504 label Biography information for Lord Bassam of Brighton

49827

registered interest
date	06/05/2014
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
house id	2
legislature	25277 pref label House of Lords
question text	To ask Her Majesty's Government what financial support is provided to carers of neurofibromatosis sufferers.
tabling member printed	Lord Bassam of Brighton
uin	HL6838
answer	answer is ministerial correction date of answer 13/05/2014 answer text <p>We are very much aware of and greatly value the significant contribution which unpaid carers make to the care of disabled people.</p><p> </p><p>If a disabled person has neurofibromatosis and qualifies for a 'gateway' benefit, then their carer could be entitled to Carer's Allowance, which is currently £61.35 per week. This will depend on certain conditions of both the disabled person and the carer being satisfied. Universal Credit includes a carer element where an eligible adult in the household provides regular and substantial care for a person with a long-term health condition or disability. The element is awarded where that person satisfies the conditions of entitlement of Carer's Allowance.</p><p> </p><p>Support for carers is an integral part of social care. Under current legislation, local authorities have a duty to assess carers who are providing substantial care on a regular basis, when requested to do so. The assessment and any eligible services to follow that are designed to support a carer to continue their caring responsibilities, are for the local authority to determine.</p><p> </p><p>Carers are also central to the Government's proposals for improving care and support, and there are significant improvements in the Care Bill for carers. The Bill extends carers' rights to an assessment, which will be based on an appearance of need and will include consideration of the impact of caring on the carer, and the outcomes they wish to achieve. For the first time, there will be a duty on local authorities to meet carers' eligible needs for support, putting them on an equal footing to the people they care for.</p><p> </p><p>We have also provided £400 million to the National Health Service over four years from 2011 for carers to have breaks from their caring responsibilities. In the 2013 Spending Review, we announced the £3.8 billion Better Care Fund, which includes £130 millionfunding for carers' breaks for 2015-16.</p><p> </p> answering member printed Earl Howe question first answered 13/05/2014 12:00:00 answering member 2000 label Biography information for Earl Howe
tabling member	3504 label Biography information for Lord Bassam of Brighton