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1647553

registered interest
date	23/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Orphan Drugs: Finance
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a fund for ultra-orphan medicines.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	190966
answer	answer is ministerial correction date of answer 29/06/2023 answer text <p>The National Institute for Health and Care Excellence (NICE) has been able to recommend medicines for very rare diseases for NHS funding through its established processes. These are now available to NHS patients in England, including gene therapies for metachromatic leukodystrophy (Libmeldy), spinal muscular atrophy (Zolgensma) and inherited retinal dystrophies (Luxturna).</p><p>In June 2022, the Government launched the Innovative Medicines Fund that will support NHS patients in England, including those with very rare diseases, to get early access to the most innovative and effective new treatments, where further data is needed to support a NICE recommendation on routine funding. The IMF is a managed access fund that provides a route for earlier patient access to the most promising new medicines while further evidence is collected to inform a long-term commissioning recommendation.</p><p>NICE’s independent committee may consider managed access if it cannot make a recommendation for routine commissioning but believes that further evidence collection during a period of managed access will sufficiently support the case for such a recommendation in the future.</p> answering member constituency Colchester answering member printed Will Quince question first answered 29/06/2023 11:04:11 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1645309

registered interest
date	16/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	NHS: Safety
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has had discussions with his counterpart in the Scottish Government on the lessons learned from the implementation of Scan4Safety in Scotland.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	189959
answer	answer is ministerial correction date of answer 26/06/2023 answer text <p>The NHS Mandate 2023 sets out the requirement for the National Health Service to adopt digital scanning. By March 2024, all trusts should adopt barcode scanning of high-risk medical devices and submission to the national, mandatory Medical Device Outcome Registry (MDOR) either directly or via a supporting electronic health record (EHR) or inventory management system that can support registry data submission. The registry will be used to improve patient safety and outcomes in procedures that use high risk medical devices.</p><p>MDOR has native barcode scanning, including Unique Device Identifier (UDI) barcodes, so will result in the whole of England having an available UDI scanning solution without having to implement a separate system. The registry was launched in May 2023 and will accept bulk uploads from existing providers’ solutions, including Scan4Safety, that meet the data quality and completeness requirements. The Outcomes and Registries programme will support provider adoption of digital solutions that enable medical device traceability on the electronic patient record.</p><p>The Secretary of State has exchanged letters with the Scottish Government setting out the UK Government’s commitment to delivering the recommendation of the Independent Medicines and Medical Devices Safety Review and on the approach for MDOR. The intention is that each Devolved Administration has the option to ‘opt in’ to existing or future technical registry developments in MDOR, building on the different data programmes and local approaches to traceability and patient outcome monitoring being taken at Devolved Administration levels.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 189960 question first answered 26/06/2023 14:33:53 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1645310

registered interest
date	16/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	NHS: Safety
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what progress his Department has made on the roll-out of the Scan4Safety initiative.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	189960
answer	answer is ministerial correction date of answer 26/06/2023 answer text <p>The NHS Mandate 2023 sets out the requirement for the National Health Service to adopt digital scanning. By March 2024, all trusts should adopt barcode scanning of high-risk medical devices and submission to the national, mandatory Medical Device Outcome Registry (MDOR) either directly or via a supporting electronic health record (EHR) or inventory management system that can support registry data submission. The registry will be used to improve patient safety and outcomes in procedures that use high risk medical devices.</p><p>MDOR has native barcode scanning, including Unique Device Identifier (UDI) barcodes, so will result in the whole of England having an available UDI scanning solution without having to implement a separate system. The registry was launched in May 2023 and will accept bulk uploads from existing providers’ solutions, including Scan4Safety, that meet the data quality and completeness requirements. The Outcomes and Registries programme will support provider adoption of digital solutions that enable medical device traceability on the electronic patient record.</p><p>The Secretary of State has exchanged letters with the Scottish Government setting out the UK Government’s commitment to delivering the recommendation of the Independent Medicines and Medical Devices Safety Review and on the approach for MDOR. The intention is that each Devolved Administration has the option to ‘opt in’ to existing or future technical registry developments in MDOR, building on the different data programmes and local approaches to traceability and patient outcome monitoring being taken at Devolved Administration levels.</p> answering member constituency Colchester answering member printed Will Quince grouped question UIN 189959 question first answered 26/06/2023 14:33:53 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1645328

registered interest
date	16/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Clinical Trials
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, if his Department will conduct an inquiry into potential reforms to clinical research and trials to (a) scale up, (b) speed up and (c) increase the number of such trials in (i) Scotland and (ii) the UK.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	189967
answer	answer is ministerial correction date of answer 26/06/2023 answer text <p>The Department has no plans to conduct an inquiry into clinical research reforms as work in this area is already in progress. The Government's vision for clinical research delivery, set out in ‘Saving and Improving Lives: The Future of UK Clinical Research Delivery’ (2021), aims to create a patient-centred, innovative, and digitally enabled environment. This includes improving study set-up, speed and efficiency, increasing the participation of patients within clinical trials and integrating clinical research within health and social care practice.</p><p>Lord James O’Shaughnessy was appointed by Government to conduct an independent review into the United Kingdom commercial clinical trials landscape. The Review, published 26 May, makes 27 recommendations, with an emphasis on speed of delivery, transparency of clinical research data and easier recruitment for UK clinical trials. The Government welcomes the recommendations set out in Lord O'Shaughnessy's independent review and in its response makes five headline commitments to improve the commercial clinical trials system.</p><p>No centralised information is available for clinical trials in Scotland, and the Department cannot provide a response on behalf of the Scottish Government.</p> answering member constituency Colchester answering member printed Will Quince question first answered 26/06/2023 14:29:54 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1645329

registered interest
date	16/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Clinical Trials
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what lessons from the covid-19 pandemic his Department is applying to its policy on clinical trials.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	189968
answer	answer is ministerial correction date of answer 26/06/2023 answer text <p>The United Kingdom’s clinical research ecosystem is actively learning from the successful COVID-19 research response. The UK Government published its vision in ‘Saving and Improving Lives: The Future of UK Clinical Research Delivery’ in March 2021. The vision sets out the ambition to create a patient-centred, pro-innovation, and digitally enabled clinical research environment. This includes the prioritisation of the improvement in study set-up speed and efficiency by expediting costing, contracting, and approvals. Implementing the vision will unleash the true potential of our clinical research environment to improve health, capitalise on our renowned research expertise, and make the UK one of the best places in the world to design and deliver research.</p> answering member constituency Colchester answering member printed Will Quince question first answered 26/06/2023 14:26:08 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1643643

registered interest
date	12/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Surrogacy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the recommendations of the Law Commission in its report on Building families through surrogacy: a new law and the proposals in its draft Surrogacy Bill, whether he plans to bring forward legislative proposals to protect the rights and interests of surrogate mothers.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	188969
answer	answer is ministerial correction date of answer 20/06/2023 answer text <p>The Law Commissions of England &amp; Wales and Scotland published a full report of their review of surrogacy legislation, with a draft bill, on 28 March 2023. The Government is considering the report and will publish a response in due course.</p> answering member constituency Lewes answering member printed Maria Caulfield grouped question UIN 188970 question first answered 20/06/2023 16:12:26 answering member 4492 label Biography information for Maria Caulfield
tabling member	4488 label Biography information for Martyn Day

1643644

registered interest
date	12/06/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Surrogacy
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, whether he has made an assessment of the effectiveness of legislation on surrogacy at preventing the coercion of women; and whether he plans to introduce legislative proposals to help prevent such coercion.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	188970
answer	answer is ministerial correction date of answer 20/06/2023 answer text <p>The Law Commissions of England &amp; Wales and Scotland published a full report of their review of surrogacy legislation, with a draft bill, on 28 March 2023. The Government is considering the report and will publish a response in due course.</p> answering member constituency Lewes answering member printed Maria Caulfield grouped question UIN 188969 question first answered 20/06/2023 16:12:26 answering member 4492 label Biography information for Maria Caulfield
tabling member	4488 label Biography information for Martyn Day

1640598

registered interest
date	25/05/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Liver Cancer: Transplant Surgery
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, what progress his Department has made on implementing the recommendations made by the Liver Advisory Group in 2020 on liver transplantation for the treatment of perihilar cholangiocarcinoma and intra-hepatic cholangiocarcinoma.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	186911
answer	answer is ministerial correction date of answer 13/06/2023 answer text <p>The Liver Advisory Group, on behalf of NHS Blood and Transplant (NHSBT), are exploring pilot programmes for selected patients with both small intra-hepatic cholangiocarcinoma and perihilar cholangiocarcinoma (pHCCa) with underlying primary sclerosing cholangitis.</p><p>The pathway for intrahepatic Cholangiocarcinoma is now live and there is an offering process in place which should ensure they receive a timely named patient offer. The protocol for pHCCa remains in development and will soon be live in the third quarter of this year. Additionally, in collaboration with NHS England, NHSBT are developing the pHCCa as a commissioning evaluation for the neoadjuvant pathway of proton beam therapy which is a ground-breaking intervention that is being evaluated in this clinical transplant pathway.</p> answering member constituency Harborough answering member printed Neil O'Brien question first answered 13/06/2023 14:45:08 answering member 4679 label Biography information for Neil O'Brien
tabling member	4488 label Biography information for Martyn Day

1639988

registered interest
date	24/05/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Nurses: Degrees
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, with reference to the press release by NHS Health Education England entitled New blended learning nursing degree to focus on community, primary and social care skills, published on 17 May 2023, how the academic curriculum will be chosen for that degree; and whether nurses working in (a) community, (b) primary and (c) social care settings will be consulted in the development of the curriculum.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	186717
answer	answer is ministerial correction date of answer 08/06/2023 answer text <p>The standards for education and training of registered professionals such as nurses are the statutory responsibility of healthcare regulators.</p><p>The curriculum for the proposed blended learning degree will be in line with the Nursing and Midwifery Council's Future Nurse: Standards of proficiency for nurses, available at the following link:</p><p><a href="https://www.nmc.org.uk/globalassets/sitedocuments/standards-of-proficiency/nurses/future-nurse-proficiencies.pdf" target="_blank">https://www.nmc.org.uk/globalassets/sitedocuments/standards-of-proficiency/nurses/future-nurse-proficiencies.pdf</a>.</p><p>The programme for the blended learning degree was shaped with input from experts and practitioners in community, primary and social care sectors, as well as the Nursing Midwifery Council, National Health Service employers, an expert by experience and a nursing student, through an advisory group that still meets to provide ongoing support to the universities in developing and delivering their curricula.</p><p>NHS England also sought evidence and assurance that the successful universities will have local partnerships with community, primary and social care staff to shape and deliver their curricula.</p> answering member constituency Colchester answering member printed Will Quince question first answered 08/06/2023 10:30:12 answering member 4423 label Biography information for Will Quince
tabling member	4488 label Biography information for Martyn Day

1623985

registered interest
date	26/04/2023
answering body	Department of Health and Social Care
answering dept id	17
answering dept short name	Health and Social Care
answering dept sort name	Health and Social Care
hansard heading	Warm Home Prescription
house id	1
legislature	25259 pref label House of Commons
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 20 April 2023 to Question 179881 on Warm Home Prescription, whether his Department plans to take steps to extend the Warm Home Prescription pilot.
tabling member constituency	Linlithgow and East Falkirk
tabling member printed	Martyn Day
uin	182899
answer	answer is ministerial correction date of answer 03/05/2023 answer text <p>The establishment, scope and duration of Warm Home Prescription pilot schemes is determined locally. We will monitor the emerging evidence from these pilots.</p> answering member constituency Faversham and Mid Kent answering member printed Helen Whately question first answered 03/05/2023 09:54:34 answering member 4527 label Biography information for Helen Whately
tabling member	4488 label Biography information for Martyn Day