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<p>NHS England has made a recent assessment of the sufficiency of access to information
about support and services for people diagnosed with a brain tumour through its Peer
Review Programme (PRP). This programme includes measures that require all brain and
central nervous system multidisciplinary teams (MDTs) to demonstrate the availability
and adequacy of patient information. The outcome of the 2013-14 assessment of compliance
with these measures indicated that out of 91 MDTs and 36 treatment centres, 84% were
compliant with the patient information measure at the most robust level.</p><p> </p><p>There
is a programme of work aimed at improving the care and experience of people living
with a diagnosis of cancer, developed in collaboration with Macmillan Cancer Support
which draws from a wide range of evidence based good practice.</p><p> </p><p>The National
Cancer Intelligence Network runs a brain and central nervous system- related cancers
Clinical Reference Group, which works closely with a brain cancer charities. In addition
to this, the PRP measures participation in drug trials and research internationally.</p><p>
</p><p>The Department works closely with its cancer research funding partners through
the National Cancer Research Institute (NCRI). The NCRI is a strategic partnership
of 22 government, charity and industry cancer research funders, together with patients.
The NCRI is a member of the International Cancer Research Partnership (ICRP), which
includes cancer research funders from USA, Canada, Europe, Japan and Australia. The
ICRP is a unique alliance of cancer organisations working together to enhance global
collaboration and strategic coordination of research. Researchers can search the ICRP
database to avoid duplication and identify collaborators in specific areas of cancer
research including brain tumour research.</p><p> </p>
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