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1010780
registered interest false more like this
date less than 2018-11-20more like thismore than 2018-11-20
answering body
Department of Health and Social Care more like this
answering dept id 17 remove filter
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Phenylketonuria more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps his Department is taking to help raise awareness of Phenylketonuria. more like this
tabling member constituency Mansfield more like this
tabling member printed
Ben Bradley remove filter
uin 193605 remove filter
answer
answer
is ministerial correction false more like this
date of answer less than 2018-11-28more like thismore than 2018-11-28
answer text <p>The current new-born screening programme in the United Kingdom screens for nine rare but serious conditions including phenylketonuria (PKU). To recognise rare conditions such as PKU, doctors and other healthcare professionals are expected to ensure their clinical knowledge remains up-to-date and to identify their ongoing learning needs as part of their continuing professional development. This activity should include taking account of new research and developments in guidance in relevant specialty areas, such as those produced by the National Institute for Health and Care Excellence or the Royal Colleges, to ensure that they can continue to provide high quality care to all patients.</p><p> </p><p>Steps to increase the awareness of rare diseases such as PKU are being taken through the implementation of the UK Strategy for Rare Diseases. The Strategy includes commitments to improving the lives of all patients affected by rare diseases including in areas of identification/ prevention and diagnosis and early intervention. The Government is committed to implementing the Strategy’s commitments and in January 2018, the Department and NHS England published Implementation Plans setting out their actions for England.</p>
answering member constituency Winchester more like this
answering member printed Steve Brine more like this
question first answered
less than 2018-11-28T17:39:49.97Zmore like thismore than 2018-11-28T17:39:49.97Z
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4663
label Biography information for Ben Bradley more like this