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<p>The National Institute for Health and Care Excellence’s (NICE) guidelines on Parkinson’s
disease in adults include recommendations for communication with people with Parkinson's
disease, and their carers. The guidelines do not specify a particular leaflet, such
as the one from Parkinson’s UK, but they do recommend that: communication with people
with Parkinson's disease should aim towards empowering them to participate in judgements
and choices about their own care; discussions should aim to achieve a balance between
providing honest, realistic information about the condition, and promoting a feeling
of optimism; because people with Parkinson's disease may develop impaired cognitive
ability, and communication problems, they should be provided with both oral and written
communication throughout the course of the disease, which should be individually tailored
and reinforced as necessary, in a consistent manner; family members and carers should
be advised about their right to a carer assessment, assessment for respite care, and
other support; people with Parkinson's disease should have a comprehensive care plan
agreed between the person, their family members and carers as appropriate, and specialist
and secondary healthcare providers; and people with Parkinson's disease should have
an accessible point of contact with specialist services, such as a Parkinson's disease
nurse specialist.</p><p>The exact information that is provided to a newly diagnosed
Parkinson’s patient will vary, but would usually include referral to a Parkinson’s
nurse. Information about local support groups would usually be provided by the Parkinson’s
nurse. The Department will explore whether anything further can be done to improve
the provision of post-diagnosis patient information for those with Parkinson’s disease.</p>
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