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750552

registered interest
date	11/07/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	General Practitioners
house id	2
legislature	25277 pref label House of Lords
question text	Her Majesty's Government what assessment they have made of the chronic fatigue syndrome myalgic encephalomyelitis (ME/CFS) clinical services which were set up between 2004 and 2006; what proportion of patients accessing services recover from ME/CFS or show signs of improvement; and what assessment they have made of the value for money of these services.
tabling member printed	The Countess of Mar
uin	HL684
answer	answer is ministerial correction date of answer 19/07/2017 answer text <p>No central assessment has been made of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) clinical services established between 2004 and 2006. The commissioning of services for people with CFS/ME is a local matter, and the management of patients within such services is the responsibility of the commissioners, providers and clinicians responsible for their care. Clinical commissioning groups have a duty to exercise their functions effectively, efficiently and economically</p><p> </p><p>Since its publication in 2007, the National Institute for Health and Care Excellence (NICE) clinical guideline on the management of CFS/ME in adults and children, which set outs best practice on the care, treatment and support of people with the condition, has supported the local National Health Service in delivering services for people with the condition. The guidance recognises the challenges in managing a condition for which there is no definitive diagnostic test, no clear understanding of the causes and process of disease and no cure. The guidance is also clear that there is no one form of treatment to suit every patient and that treatment and care should take into account the personal needs and preferences of the patient. NICE is currently reviewing the guidance to ensure it reflects the latest available evidence and a decision regarding this matter is expected shortly.</p><p><br></p> answering member printed Lord O'Shaughnessy question first answered 19/07/2017 11:03:01 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	1861 label Biography information for The Countess of Mar

750553

registered interest
date	11/07/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	General Practitioners
house id	2
legislature	25277 pref label House of Lords
question text	Her Majesty's Government whether they have any plans to set up an independent review of ME/CFS services which includes an epidemiological study to establish the true incidence of ME/CFS in the population and the impact of the shortage of doctors trained in this specialism; and, if not, why not.
tabling member printed	The Countess of Mar
uin	HL685
answer	answer is ministerial correction date of answer 19/07/2017 answer text <p>There are no plans to set up an independent review of chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME) services. Services for patients with CFS/ME are supported by independent, evidence-based guidance produced by the National Institute for Health and Care Excellence on the diagnosis, treatment and support of patients with the condition. Commissioners should deliver services that meet the needs of local popuations. Assessments of service need for CFS/ME may be supported by the available population prevalence estimates as required.</p> answering member printed Lord O'Shaughnessy question first answered 19/07/2017 15:08:32 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	1861 label Biography information for The Countess of Mar

749952

registered interest
date	10/07/2017
answering body	Department of Health
answering dept id	17
answering dept short name	Health
answering dept sort name	Health
hansard heading	Kingston Hospital
house id	2
legislature	25277 pref label House of Lords
question text	Her Majesty's Government who were the experts the National Institute for Health and Clinical Excellence consulted in their recent review of Clinical Guideline CG 53 for chronic fatigue syndrome and myalgic encephalomyelitis: diagnosis and management.
tabling member printed	The Countess of Mar
uin	HL637
answer	answer is ministerial correction date of answer 19/07/2017 answer text <p>The National Institute for Health and Care Excellence (NICE) routinely consults a range of topic experts as part of its surveillance review process. NICE is currently consulting on a review proposal for its clinical guideline on the diagnosis and management of chronic fatigue syndrome and myalgic encephalomyelitis. NICE does not routinely publish the names of topic experts as they are not part of the decision making process for the surveillance review.</p><p><strong> </strong></p> answering member printed Lord O'Shaughnessy question first answered 19/07/2017 11:03:41 answering member 4545 label Biography information for Lord O'Shaughnessy
tabling member	1861 label Biography information for The Countess of Mar