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995615
registered interest false more like this
date less than 2018-10-26more like thismore than 2018-10-26
answering body
Department of Health and Social Care more like this
answering dept id 17 more like this
answering dept short name Health and Social Care more like this
answering dept sort name Health and Social Care more like this
hansard heading Tuberous Sclerosis: Medical Treatments more like this
house id 1 more like this
legislature
25259
pref label House of Commons more like this
question text To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure patients with refractory epilepsy related to tuberous sclerosis complex are able to access new medicines. more like this
tabling member constituency Mansfield more like this
tabling member printed
Ben Bradley remove filter
uin 184448 more like this
answer
answer
is ministerial correction false more like this
date of answer less than 2018-11-05more like thismore than 2018-11-05
answer text <p>Patients with tuberous sclerosis complex (TSC) have access to standard anti-epileptic drugs and whilst not licensed specifically for use in association with TSC, there is evidence that two thirds of patients will respond to treatment. A relatively new option specifically licensed for refractory epilepsy in TSC is everolimus (Votubia) which is due to be considered for prioritisation within the National Health Service in England in December as part of NHS England’s biannual relative prioritisation process for specialised services.</p><p> </p><p>The life sciences sector deal, published last autumn, will ensure that the next wave of breakthrough treatments, innovative medical research and technologies are created in Britain. A key part of the deal was our commitment to improving patient access to innovation through the implementation of the Accelerated Access Review.</p> more like this
answering member constituency Winchester remove filter
answering member printed Steve Brine more like this
question first answered
remove filter
answering member
4067
label Biography information for Steve Brine more like this
tabling member
4663
label Biography information for Ben Bradley more like this