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<p>Charities with an interest in children’s cancer services are involved in the ongoing
work that NHS England performs through the Clinical Reference Groups (CRG) to provide
a key role in major cancer improvements. For example, the Teenage Cancer Trust is
represented on the Teenage and Young Adults CRG and CLIC Sargent and the Children’s
Cancer and Leukaemia Group support the Children’s Cancer CRG.</p><p> </p><p> </p><p>
</p><p>NHS England also works with the Children’s Cancer and Leukaemia Group on treatment
guidelines that are used across cancer services.</p><p> </p><p> </p><p> </p><p>Public
Health England and Departmental officials also work with stakeholders from charities
with an interest in children’s cancer services. For example, earlier this year officials
met with representatives of The Brain Tumour Charity to discuss the Headsmart campaign,
which aims to raise awareness of brain tumour symptoms in children and young people
and to reduce the time for diagnosis.</p><p> </p><p> </p><p> </p><p>As a result of
this meeting, the charity gave a presentation about the HeadSmart campaign to the
Department’s School Nursing Partnership Implementation Group on 17 March. The group
was receptive and committed to help promote and support the campaign, which included
disseminating symptom cards where appropriate and putting information in newsletters
and journals.</p><p> </p>
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