The Department regularly discusses a range of issues with colleagues in NHS England related to patient access to new medicines. The National Institute for Health and Care Excellence (NICE) makes recommendations for the National Health Service on whether all new medicines should be routinely funded by the NHS, based on an assessment of their costs and benefits. The NICE\u2019s appraisal of the gene therapy, exagamglogene autotemcel, for treating transfusion-dependent beta-thalassaemia is currently paused, to allow the company and NHS England to enter into commercial and managed access discussions.<\/p>
In November 2023, NHS England published a clinical commissioning policy that recommends that allogeneic haematopoietic stem cell transplantation for adult transfusion dependent thalassaemia should be routinely commissioned.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4044", "label" : {"_value" : "Biography information for Andrew Stephenson"} } , "answeringMemberConstituency" : {"_value" : "Pendle"} , "answeringMemberPrinted" : {"_value" : "Andrew Stephenson"} , "dateOfAnswer" : {"_value" : "2024-05-16", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2024-05-16T13:59:22.243Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2024-05-10", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Thalassaemia: Medical Treatments"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what discussions she has had with NHS England on the introduction of (a) gene therapy and (b) other new treatments for patients with thalassaemia.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4610", "label" : {"_value" : "Biography information for Bambos Charalambous"} } , "tablingMemberConstituency" : {"_value" : "Enfield, Southgate"} , "tablingMemberPrinted" : [{"_value" : "Bambos Charalambous"} ], "uin" : "25665"} , {"_about" : "http://data.parliament.uk/resources/1689375", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1689375/answer", "answerText" : {"_value" : "
The Highway Code changes to improve road safety for people walking, cycling, and riding horses aim to initiate a positive shift in road user behaviour, by making road users aware of their responsibility to use roads safely and reduce the danger they may pose to others.<\/p>
<\/p>
Enforcement of the law is a matter for the police, who will decide on the evidence of each individual case, whether an offence has been committed and the appropriate action to take.<\/p>
<\/strong><\/p> <\/strong><\/p>"}
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