Evidence suggests that life expectancy for people with sickle cell disease is improving. This is due to a number of factors including:<\/p>
- Improved newborn screening coverage to enable earlier diagnosis;<\/p>
- Use of the National Haemoglobinopathy Registry to monitor individuals\u2019 health, treatment and their annual reviews;<\/p>
- Access to specific diagnostics and medication, such as hydroxyurea; and<\/p>
- A Commissioning for Quality and Innovation (CQUIN) incentive has been in place for the last two years to improve access to apheresis for individuals with sickle cell disease.<\/p>
All these factors are reflected in the service specification quality indicators which providers are required to report against so that implementation can be monitored.<\/p>
It is anticipated that NHS England\u2019s new model for specialised haemoglobinopathy services will be in place by early 2020. The new model is designed to improve access to specialist advice and care for patients, irrespective of where they live. The equality impact assessment on the new service model indicates that it will advance the promotion of equality and support the further reduction of health inequalities. This will be through ensuring that patients with thalassemia and sickle cell conditions have equitable access to high quality specialist care and support within specialised commissioned centres irrespective of where in the country they live. These centres will promote best practice in service delivery.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-06T13:13:01.52Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Sickle Cell Diseases: Health Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of potential levels of inequality in (a) the life expectancy and (b) NHS service provision for patients with sickle cell disease compared to other NHS patients.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"} } , "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"} , "tablingMemberPrinted" : [{"_value" : "Diana Johnson"} ], "uin" : "259466"} , {"_about" : "http://data.parliament.uk/resources/1128825", "AnsweringBody" : [{"_value" : "Ministry of Housing, Communities and Local Government"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1128825/answer", "answerText" : {"_value" : "
The Government has announced its commitment to fully fund the remediation of private sector high-rise residential blocks with unsafe Aluminium Composite Material (ACM) cladding, except where a warranty claim is accepted. The fund will cover reasonable costs associated with the removal and replacement of unsafe ACM cladding systems on all eligible buildings and the estimated cost is £200 million. A number of building owners and developers including Taylor Wimpey, Legal & General, Mace Group, Lendlease, Barratt Developments and Aberdeen Standard Investments have agreed to maintain their commitment to fund remediation and will not draw on the fund.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4495", "label" : {"_value" : "Biography information for Kit Malthouse"} } , "answeringMemberConstituency" : {"_value" : "North West Hampshire"} , "answeringMemberPrinted" : {"_value" : "Kit Malthouse"} , "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-06T07:44:45.51Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "7"} , "answeringDeptShortName" : {"_value" : "Housing, Communities and Local Government"} , "answeringDeptSortName" : {"_value" : "Housing, Communities and Local Government"} , "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "High Rise Flats: Insulation"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Housing, Communities and Local Government, what estimate he made of the (a) number of blocks, (b) cost per block and 9c) cost per dwelling when calculating the £200 million private sector cladding remediation fund.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4631", "label" : {"_value" : "Biography information for Sarah Jones"} } , "tablingMemberConstituency" : {"_value" : "Croydon Central"} , "tablingMemberPrinted" : [{"_value" : "Sarah Jones"} ], "uin" : "259402"} , {"_about" : "http://data.parliament.uk/resources/1128827", "AnsweringBody" : [{"_value" : "Church Commissioners"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1128827/answer", "answerText" : {"_value" : "
Planning permissions have been granted across a range of geographies, from County Durham where the affordable housing requirement is currently 15%, to Wells in Somerset where the requirement is 40%.<\/p>
On land owned by the Church Commissioners where planning permission has been received and sites sold since 2015, approximately 20% of the homes will be affordable dwellings.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/312", "label" : {"_value" : "Biography information for Dame Caroline Spelman"} } , "answeringMemberConstituency" : {"_value" : "Meriden"} , "answeringMemberPrinted" : {"_value" : "Dame Caroline Spelman"} , "dateOfAnswer" : {"_value" : "2019-06-05", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-05T16:25:40.717Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "9"} , "answeringDeptShortName" : {"_value" : "Church Commissioners"} , "answeringDeptSortName" : {"_value" : "Church Commissioners"} , "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Housing: Construction"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the right hon. Member for Meriden, representing the Church Commissioners, what proportion of residential developments constructed since 2015 (a) on land owned by the Church of England under the direction of the strategic land team and (b) by private developers comprise affordable housing.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/478", "label" : {"_value" : "Biography information for Lord Field of Birkenhead"} } , "tablingMemberConstituency" : {"_value" : "Birkenhead"} , "tablingMemberPrinted" : [{"_value" : "Frank Field"} ], "uin" : "259013"} , {"_about" : "http://data.parliament.uk/resources/1128878", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1128878/answer", "answerText" : {"_value" : "
£250m of Bus Services Operators Grant (BSOG) payments have been made to bus companies and local authorities.<\/p>
<\/p>
Bus operators in Staffordshire were paid a total of £1,016,186 BSOG in 2018-19 to help meet some of their fuel costs in running local bus services.<\/p>
<\/p>
Staffordshire County Council received a total of £174,967 in BSOG during 2018-19 to support subsidised local bus services.<\/p>
<\/p>