Up to 50% of cancer patients enrolled in the 100,000 genomes project, including patients with blood cancer, have seen a change in their treatment since receiving their result. This could be eligibility for a new trial, or prescription of a new medicine.<\/p>
The National Genomic Test Directory outlines the range of genomic tests \u2013 from whole genomic sequencing to tests for single genes and molecular markers \u2013 that are available as part of the National Health Service clinical service.<\/p>
From summer 2019, whole genome sequencing will be implemented as part of routine clinical care and be available to:<\/p>
- Seriously ill children with a suspected genetic disorder, including those with cancer;<\/p>
- People with one of 21 rare and inherited conditions; and<\/p>
- People with specific types of cancer for which there is likely to be the greatest patient benefit from using whole genome sequencing \u2013 children with cancer, sarcoma and acute myeloid leukaemia.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-05-09", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-09T14:31:31.08Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-30", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Blood Cancer: Screening"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what his timetable is for whole genome sequencing to be made available to patients with blood cancer; and what assessment he has made of the potential benefits of that sequencing for those patients' care.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "249261"} , {"_about" : "http://data.parliament.uk/resources/1122743", "AnsweringBody" : [{"_value" : "Department for International Development"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122743/answer", "answerText" : {"_value" : "
The UK is committed to promoting more and better spending on education to help ensure that all children, including the most marginalised, are in school and learning.<\/p>
To maximise our impact and ensure that collectively we are scaling up to meet the enormous need, we work closely with other international actors, the private sector and non-traditional donors in all our major education investments, including through the Global Partnership for Education and Education Cannot Wait funds.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4107", "label" : {"_value" : "Biography information for Dame Harriett Baldwin"} } , "answeringMemberConstituency" : {"_value" : "West Worcestershire"} , "answeringMemberPrinted" : {"_value" : "Harriett Baldwin"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T15:20:18.593Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "20"} , "answeringDeptShortName" : {"_value" : "International Development"} , "answeringDeptSortName" : {"_value" : "International Development"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Developing Countries: Education"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for International Development, what steps her Department is taking to ensure other international donors contribute to funding education programmes.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246992"} , {"_about" : "http://data.parliament.uk/resources/1122770", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122770/answer", "answerText" : {"_value" : "
The Government understands the importance of accessible on-board information in helping bus passengers to travel with confidence, and in Summer 2018 published a public consultation on proposals to require its provision on local bus services throughout Great Britain.<\/p>
<\/p>
We continue to analyse responses to the consultation and expect to report on its findings, and to announce our next steps regarding the making of Regulations and publication of guidance later in the year.<\/p>
<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4460", "label" : {"_value" : "Biography information for Ms Nusrat Ghani"} } , "answeringMemberConstituency" : {"_value" : "Wealden"} , "answeringMemberPrinted" : {"_value" : "Ms Nusrat Ghani"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T14:37:50.18Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "27"} , "answeringDeptShortName" : {"_value" : "Transport"} , "answeringDeptSortName" : {"_value" : "Transport"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Bus Services: Disability"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Transport, with reference to his Department's consultation, Bus Services Act 2017: accessible information, which closed on 16 September 2019, when his Department plans to publish (a) a summary of consultation responses, (b) draft guidance for bus operators, (c) his Department\u2019s response to that consultation and (d) draft regulations introducing the accessible information requirement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246994"} , {"_about" : "http://data.parliament.uk/resources/1122771", "AnsweringBody" : [{"_value" : "Department for Transport"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122771/answer", "answerText" : {"_value" : "
In Summer 2018 the Government consulted on proposals to require the provision of audible and visible information onboard local bus services in Great Britain. Over three hundred responses were received from a diverse range of stakeholders, including representatives of large and small bus and coach operators.<\/p>
<\/p>
We continue to analyse responses to the consultation and expect to announce our next steps regarding the making of Regulations and publication of guidance later in the year.<\/p>
<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4460", "label" : {"_value" : "Biography information for Ms Nusrat Ghani"} } , "answeringMemberConstituency" : {"_value" : "Wealden"} , "answeringMemberPrinted" : {"_value" : "Ms Nusrat Ghani"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T14:28:18.807Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "27"} , "answeringDeptShortName" : {"_value" : "Transport"} , "answeringDeptSortName" : {"_value" : "Transport"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Bus Services: Disability"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Transport, what representations his Department has received from bus operators on the Accessible Information Requirement for buses.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246995"} , {"_about" : "http://data.parliament.uk/resources/1122807", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122807/answer", "answerText" : {"_value" : "
There are regular discussions with Cabinet ministers on a wide range of subjects.<\/p>
As described in the NHS Long Term Plan, personalised care and support planning is being rolled out across the country, based upon the completion of holistic needs assessment and provision of ongoing support to self-manage their health and wellbeing. This will help ensure that the patient is signposted or referred to community support, including information on financial matters, such as benefits, and psychological support.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-05-03", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-03T11:25:54.567Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Cancer: Social Security Benefits"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent discussions he has had with the Secretary of State for Work and Pensions to ensure that the holistic needs of cancer patients are identified and addressed within the benefits system.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246996"} , {"_about" : "http://data.parliament.uk/resources/1122822", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122822/answer", "answerText" : {"_value" : "
There is a cross-cutting programme of work across the health and care system, led by NHSX, which delivers on the All Party Parliamentary Group recommendations and ensure that only the best and safest Artificial Intelligence systems are used by the National Health Service. The programme will also make it easier for suppliers to develop technologies that tackle some of the biggest issues in healthcare. Officials from the Department were part of the advisory board for the report and supported the development of the recommendations.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"} } , "answeringMemberConstituency" : {"_value" : "Thurrock"} , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T11:26:43.183Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Cardiovascular Diseases: Artificial Intelligence"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, if he will take steps to implement the recommendations in the report by the all-party parliamentary group on Heart and Circulatory Diseases entitled Putting patients at the heart of artificial intelligence.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246997"} , {"_about" : "http://data.parliament.uk/resources/1122823", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122823/answer", "answerText" : {"_value" : "
NHSX is driven by user needs, so any technology we introduce, including that related to artificial intelligence (AI), must be done with, and not for patients. We are developing a policy toolkit for responsibly applied AI in health and care, and we are working closely with public voice organisations to ensure that patients are involved and engaged.<\/p>
We are also developing tools to help technology vendors comply with principle 7 of the Code of Conduct for Data-Driven Health and Care Technology: "Show what type of algorithm is being developed or deployed, the ethical examination of how the data is used, how its performance will be validated and how it will be integrated into health and care provision." In the middle of April these tools were tested with patients and we are currently refining based on the feedback we received.<\/p>
We will continue to engage with patients as we work to maintain and improve public trust and patient safety.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"} } , "answeringMemberConstituency" : {"_value" : "Thurrock"} , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T11:25:13.22Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-24", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Health Services: Artificial Intelligence"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps NHSX will take to ensure that patients are (a) informed about and (b) engaged in the use of artificial intelligence in healthcare.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/3960", "label" : {"_value" : "Biography information for Henry Smith"} } , "tablingMemberConstituency" : {"_value" : "Crawley"} , "tablingMemberPrinted" : [{"_value" : "Henry Smith"} ], "uin" : "246998"} , {"_about" : "http://data.parliament.uk/resources/1122544", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1122544/answer", "answerText" : {"_value" : "
As part of the work undertaken to review national service specifications for Teenagers and Young Adult (TYA) cancer services, NHS England worked closely with Public Health England and the Teenage Cancer Trust to review current public health data, this included the data underpinning the following report:<\/p>