NHS England commissions specialised services for people living with sickle cell disease. These services are part of the specialised haemoglobinopathy services commissioned by NHS England across the country. NHS England spends over £60 million on sickle cell disease within these services annually - £60.4 million in 2017/18. Information about the services provided by individual clinical commissioning groups or other public bodies is not collected or held centrally.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-07-19", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "previousAnswerVersion" : {"_about" : "http://data.parliament.uk/resources/1138888/answer/previousversion/129855", "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} } , "questionFirstAnswered" : [{"_value" : "2019-07-19T09:46:21.973Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-07-15", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Sickle Cell Diseases: Health Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 May 2019 to Question 256313 on Sickle Cell Diseases, which services (a) NHS England, (b) clinical commissioning groups and (c) other public bodies commission for people with sickle cell disease; and what the per capita annual cost is of providing each of those services.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"} } , "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"} , "tablingMemberPrinted" : [{"_value" : "Diana Johnson"} ], "uin" : "277137"} , {"_about" : "http://data.parliament.uk/resources/1138889", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1138889/answer", "answerText" : {"_value" : "
NHS England does not commission separate services for sickle cell patients with stroke, chronic kidney disease, end-stage renal disease or pulmonary hypertension and so cannot provide annual per capita costs. These services are commissioned on behalf of all patients that require them, which would include people living with sickle cell disease.<\/p>
NHS England has recently undertaken a review of haemoglobinopathy services to ensure that patients living with conditions such as sickle cell disease are able to access the high-quality services they need for their condition across the country. NHS England is now commissioning a networked-based model of care for specialised haemoglobinopathy services which will included specialist haemoglobinopathy teams across the country, regional haemoglobinopathy coordination centres and a National Haemoglobinopathy Panel. The new model will enable advice to be provided to local clinicians on the management of patients with sickle cell disease 24 hours a day, seven days a week. Haemoglobinopathy coordination centres will organise and run networks for sickle cell disease, providing leadership and education for local services.<\/p>
<\/strong><\/p> <\/strong><\/p> <\/strong><\/p>"}
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, "date" : {"_value" : "2019-07-15", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Sickle Cell Diseases: Health Services"}
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], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 May 2019 to Question 256313, which services (a) NHS England, (b) clinical commissioning groups and (c) other public bodies commission for sickle cell disease patients with (i) stroke, (ii) chronic kidney disease, (iii) end-stage renal disease and (iv) pulmonary hypertension; and what the annual per capita cost is of providing each of those services.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
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