http://www.screening.nhs.uk/fattyacidoxidation<\/a><\/p> <\/p>
<\/p>
<\/p>
Improving education and awareness of rare diseases across the healthcare professions, including VLCADD, is a commitment in the UK Strategy for Rare Diseases. The Department continues to work closely with its delivery partners to implement the Strategy.<\/p>
<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3932", "label" : {"_value" : "Biography information for Dr Dan Poulter"}
}
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, "answeringMemberPrinted" : {"_value" : "Dr Daniel Poulter"}
, "dateOfAnswer" : {"_value" : "2015-02-09", "_datatype" : "dateTime"}
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, "questionFirstAnswered" : [{"_value" : "2015-02-09T15:58:41.897Z", "_datatype" : "dateTime"}
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, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, what steps his Department has taken to help early diagnosis of very long-chain acyl-CoA dehydrogenase deficiency.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3985", "label" : {"_value" : "Biography information for Robert Halfon"}
}
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, "tablingMemberPrinted" : [{"_value" : "Robert Halfon"}
], "uin" : "222853"}
, {"_about" : "http://data.parliament.uk/resources/171143", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/171143/answer", "answerText" : {"_value" : "
Raising awareness of all rare diseases amongst practitioners and the public, including very long chain acyl-CoA dehydrogenase deficiency, is a commitment in the UK Strategy for Rare Diseases. The Department continues to work closely with NHS England to implement this commitment.<\/p>
<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/3918", "label" : {"_value" : "Biography information for Jane Ellison"}
}
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, "questionFirstAnswered" : [{"_value" : "2015-01-05T16:21:42.08Z", "_datatype" : "dateTime"}
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, "answeringDeptShortName" : {"_value" : "Health"}
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, "date" : {"_value" : "2014-12-17", "_datatype" : "dateTime"}
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, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, what steps he is taking to raise awareness of very long chain acyl-CoA dehydrogenase deficiency among (a) practitioners and (b) the public.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4243", "label" : {"_value" : "Biography information for Dan Jarvis"}
}
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, "tablingMemberPrinted" : [{"_value" : "Dan Jarvis"}
], "uin" : "219149"}
, {"_about" : "http://data.parliament.uk/resources/99863", "AnsweringBody" : [{"_value" : "Cabinet Office"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/99863/answer", "answerText" : {"_value" : "
The information requested falls within the responsibility of the UK Statistics Authority. I have asked the Authority to reply.<\/p>
<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1556", "label" : {"_value" : "Biography information for Mr Rob Wilson"}
}
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, "attachment" : {"_about" : "http://data.parliament.uk/resources/99863/answer/attachment/1", "fileName" : {"_value" : "PQ 211015 ONS 359.pdf"}
, "title" : "ONS Letter to Member - Infant Deaths"}
, "dateOfAnswer" : {"_value" : "2014-10-23", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
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, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Minister for the Cabinet Office, how many infant deaths were caused by MCAD deficiency in (a) East Lancashire, (b) the North West and (c) England in each of the last three years.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4044", "label" : {"_value" : "Biography information for Andrew Stephenson"}
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, "tablingMemberPrinted" : [{"_value" : "Andrew Stephenson"}
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, {"_about" : "http://data.parliament.uk/resources/91630", "AnsweringBody" : [{"_value" : "Department of Health"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/91630/answer", "answerText" : {"_value" : "
The Government\u2019s position that mitochondrial donation techniques do not alter personal characteristics and traits of the person reflects information within the April 2011 scientific report of the Human Fertilisation and Embryology Authority convened Expert Panel. The Expert Panel membership at that time included Professor Peter Braude and Professor Robin Lovell-Badge.<\/p>
<\/p>
<\/p>
<\/p>
The working definition of genetic modification in humans, in relation to mitochondrial donation, was determined by the Department in consultation with the Chief Medical Officer for England.<\/p>
<\/p>"}
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}
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, "answeringMemberPrinted" : {"_value" : "George Freeman"}
, "dateOfAnswer" : {"_value" : "2014-10-13", "_datatype" : "dateTime"}
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, "questionFirstAnswered" : [{"_value" : "2014-10-13T14:19:49.5212012Z", "_datatype" : "dateTime"}
]}
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, "answeringDeptShortName" : {"_value" : "Health"}
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, "date" : {"_value" : "2014-09-11", "_datatype" : "dateTime"}
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, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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], "questionText" : "To ask the Secretary of State for Health, with reference to the Government response to the consultation on draft regulations to permit the use of new treatment techniques to prevent the transmission of a serious mitochondrial disease from mother to child, published in July 2014, whether his Department consulted (a) Dr Andy Greenfield, (b) Professor Peter Braude and (c) Professor Robin Lovell-Badge on the formulation of the statement on page 15 that (i) mitochondrial donation techniques do not alter personal characteristics and traits of the person and (ii) the proposed mitochondrial donation techniques do not constitute genetic modification.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1569", "label" : {"_value" : "Biography information for Robert Flello"}
}
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, "tablingMemberPrinted" : [{"_value" : "Robert Flello"}
], "uin" : "209135"}
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