<\/strong><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2019-07-05", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : [{"_value" : "270281"}
, {"_value" : "270283"}
], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-07-05T09:24:02.807Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-06-27", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, whether the National Genomic Test Directory directly replaces the NHS Directory of Genetic Disorders/Genes for Diagnostic Testing.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/394", "label" : {"_value" : "Biography information for Mr Clive Betts"}
}
, "tablingMemberConstituency" : {"_value" : "Sheffield South East"}
, "tablingMemberPrinted" : [{"_value" : "Mr Clive Betts"}
], "uin" : "270282"}
, {"_about" : "http://data.parliament.uk/resources/1123240", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1123240/answer", "answerText" : {"_value" : "Building on the 100,000 Genomes Project and existing genetic services, NHS England announced in October 2018 that over the next 18 months, work to mobilise the NHS Genomic Medicine Service (GMS) would get underway, providing consistent and equitable care for the country\u2019s 55 million population.<\/p>
Investment for genomics was included as part of the NHS Long Term Plan, setting out commitments over the next five years to:<\/p>
- Sequence 500,000 whole genomes by 2023/24, as part of a Government commitment to sequence 1 million whole genomes;<\/p>
- Extend the use of molecular diagnostic testing and routine offering whole genome sequencing to seriously ill children who are likely to have a rare genetic disorder, children with cancer, and adults suffering from certain rare conditions or specific cancers;<\/p>
- Link and correlate genomics, clinical data and data from patients, providing routes to new treatments, diagnostic patterns and information to help patients make informed decisions about their care; and<\/p>
- Increase the number of people identified with familial hypercholesterolaemia (inherited high cholesterol) from 7% to 25% over the next five years.<\/p>
The NHS Genomic Medicine Service will be supported by an informatics system that is being developed in partnership with Genomics England. When fully operational, the informatics system will enable NHS England to monitor the number of genomic tests being carried out across the country and benchmark activity.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-05-02T14:47:05.687Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-25", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to increase (a) access and (b) referral rates for genetic services.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4025", "label" : {"_value" : "Biography information for Mrs Pauline Latham"}
}
, "tablingMemberConstituency" : {"_value" : "Mid Derbyshire"}
, "tablingMemberPrinted" : [{"_value" : "Mrs Pauline Latham"}
], "uin" : "247678"}
, {"_about" : "http://data.parliament.uk/resources/1019872", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1019872/answer", "answerText" : {"_value" : "
NHS England does not currently hold this data but as part of the NHS Genomic Medicine Service, which is beginning to operationalise, a National Genomics Informatics System (NGIS) is being developed by Genomics England for use by the National Health Service.<\/p>
<\/p>
When fully operational NGIS will enable NHS England to monitor the number of tests being carried out across the country and benchmark activity.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2018-12-12", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2018-12-12T15:38:10.48Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2018-12-04", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent assessment NHS England has made of trends in the level of uptake of molecular diagnostic tests in England.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4249", "label" : {"_value" : "Biography information for Anne Marie Morris"}
}
, "tablingMemberConstituency" : {"_value" : "Newton Abbot"}
, "tablingMemberPrinted" : [{"_value" : "Anne Marie Morris"}
], "uin" : "198833"}
, {"_about" : "http://data.parliament.uk/resources/1002034", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1002034/answer", "answerText" : {"_value" : "
NHS England does not hold information on the number of family history clinics in operation. As set out in the Manual for Prescribed Specialised Services 2018/19 NHS England commissions genetics services, including genetic testing for inherited cancer through the Genomic Laboratory Hubs and the genetic clinical service through the Regional Clinical Genetics Services.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4067", "label" : {"_value" : "Biography information for Steve Brine"}
}
, "answeringMemberConstituency" : {"_value" : "Winchester"}
, "answeringMemberPrinted" : {"_value" : "Steve Brine"}
, "dateOfAnswer" : {"_value" : "2018-11-14", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2018-11-14T11:31:09.66Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2018-11-05", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what proportion of Clinical Commissioning Groups fund family history clinics.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4610", "label" : {"_value" : "Biography information for Bambos Charalambous"}
}
, "tablingMemberConstituency" : {"_value" : "Enfield, Southgate"}
, "tablingMemberPrinted" : [{"_value" : "Bambos Charalambous"}
], "uin" : "188157"}
, {"_about" : "http://data.parliament.uk/resources/917326", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/917326/answer", "answerText" : {"_value" : "
The United Kingdom National Screening Committee recently recommended that the use of Non-Invasive Prenatal Testing should be evaluated as an additional screening test in the antenatal screening programme for Down\u2019s syndrome, Edwards\u2019 syndrome and Patau syndrome. In addition to this, the use of next generation sequencing is currently being evaluated in the diagnostic pathway for babies found to be screen positive for cystic fibrosis.<\/p>
<\/p>
From October 2018, the National Health Service\u2019s Genomic Medicine Service will, for the first time, be supported by a comprehensive directory of genomic tests for specified cancers and rare diseases that encompasses the entire testing repertoire from Whole Genomic Sequencing to tests for single genes, molecular markers and other functional genomic tests.<\/p>
<\/p>
This National Genomic Test Directory will be updated on an annual basis to keep pace with scientific and technological advances with a systematic review process in place to ensure continued value through the co-ordinated replacement of older tests with new and emerging approaches.<\/p>
<\/p>
The Test Directory will be updated annually, following advice from an expert scientific and clinical committee that will be established to operate in accordance with NHS England\u2019s specialised services commissioning processes.<\/p>
<\/p>
The Chief Medical Officer for England\u2019s annual report \u2018Generation Genome\u2019 provided a comprehensive overview of the role of clinical genomic testing and is being taken forward via the Minister-chaired National Genomics Board.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2018-06-13", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2018-06-13T15:36:59.763Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2018-06-05", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what assessment (a) his Department and (b) Public Health England have made of the role of (i) genetic testing and (ii) population level genomic data to improve public health.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4131", "label" : {"_value" : "Biography information for Jim Shannon"}
}
, "tablingMemberConstituency" : {"_value" : "Strangford"}
, "tablingMemberPrinted" : [{"_value" : "Jim Shannon"}
], "uin" : "150116"}
, {"_about" : "http://data.parliament.uk/resources/917327", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/917327/answer", "answerText" : {"_value" : "
The United Kingdom has a strong history of conducting cohort studies of this kind. The Department\u2019s National Institute for Health Research welcomes funding applications for research into any aspect of human health, including localised population-based genetic research studies. These applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2018-06-12", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2018-06-12T13:53:59.777Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2018-06-05", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genetics: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, whether there are plans in place to undertake a localised population-based genetic research study in England; and if he will make a statement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4131", "label" : {"_value" : "Biography information for Jim Shannon"}
}
, "tablingMemberConstituency" : {"_value" : "Strangford"}
, "tablingMemberPrinted" : [{"_value" : "Jim Shannon"}
], "uin" : "150117"}
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