The following patient groups are currently involved across the programme of task and finish groups. The National Institute for Health and Care Excellence (NICE) has advised that it continues to seek further members for the task and finish groups, and a full list of members is still to be finalised.<\/p>
- Alzheimer's Research UK;<\/p>
- Breast Cancer Now;<\/p>
- Cancer52;<\/p>
- Cystic Fibrosis Trust ;<\/p>
- Diabetes UK;<\/p>
- Genetic Alliance UK;<\/p>
- Leukaemia CARE;<\/p>
- Multiple Sclerosis Society;<\/p>
- Muscular Dystrophy UK;<\/p>
- Myeloma UK;<\/p>
- Neuroendocrine Cancer UK;<\/p>
- Prostate cancer UK; and<\/p>
- Sarcoma UK.<\/p>
<\/p>
In recruiting patient organisations to the NICE methods review task and finish groups, patients on the methods working group were asked to nominate representatives with a range of experience. Additional representatives were nominated by NICE where particular expertise or input was required. The organisations involved in the task and finish groups cover a broad spectrum of disease areas including cancer, non-cancer and rare diseases. <\/strong><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4380", "label" : {"_value" : "Biography information for Jo Churchill"}
}
, "answeringMemberConstituency" : {"_value" : "Bury St Edmunds"}
, "answeringMemberPrinted" : {"_value" : "Jo Churchill"}
, "dateOfAnswer" : {"_value" : "2020-02-06", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : {"_value" : "11444"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2020-02-06T17:20:14.56Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2020-02-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "National Institute for Health and Care Excellence"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, which patient organisations are members of the (a) modifiers considered in decision-making, (b) exploring uncertainty, (c) types of evidence, (d) health-related quality of life, (e) technology specific issues, (f) discounting, (g) cost-minimisation methods (h) costs used in HTA, (i) equality considerations in guideline development, (j) general approach to decision-making and (k) position of technologies in care pathway, NICE methods review task and finish groups.", "registeredInterest" : {"_value" : "true", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/394", "label" : {"_value" : "Biography information for Mr Clive Betts"}
}
, "tablingMemberConstituency" : {"_value" : "Sheffield South East"}
, "tablingMemberPrinted" : [{"_value" : "Mr Clive Betts"}
], "uin" : "11443"}
, {"_about" : "http://data.parliament.uk/resources/1175548", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1175548/answer", "answerText" : {"_value" : " The following patient groups are currently involved across the programme of task and finish groups. The National Institute for Health and Care Excellence (NICE) has advised that it continues to seek further members for the task and finish groups, and a full list of members is still to be finalised.<\/p> - Alzheimer's Research UK;<\/p> - Breast Cancer Now;<\/p> - Cancer52;<\/p> - Cystic Fibrosis Trust ;<\/p> - Diabetes UK;<\/p> - Genetic Alliance UK;<\/p> - Leukaemia CARE;<\/p> - Multiple Sclerosis Society;<\/p> - Muscular Dystrophy UK;<\/p> - Myeloma UK;<\/p> - Neuroendocrine Cancer UK;<\/p> - Prostate cancer UK; and<\/p> - Sarcoma UK.<\/p> <\/p> In recruiting patient organisations to the NICE methods review task and finish groups, patients on the methods working group were asked to nominate representatives with a range of experience. Additional representatives were nominated by NICE where particular expertise or input was required. The organisations involved in the task and finish groups cover a broad spectrum of disease areas including cancer, non-cancer and rare diseases. <\/strong><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4380", "label" : {"_value" : "Biography information for Jo Churchill"}
}
, "answeringMemberConstituency" : {"_value" : "Bury St Edmunds"}
, "answeringMemberPrinted" : {"_value" : "Jo Churchill"}
, "dateOfAnswer" : {"_value" : "2020-02-06", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : {"_value" : "11443"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2020-02-06T17:20:14.623Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2020-02-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "National Institute for Health and Care Excellence"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, how patient organisations were recruited to the 11 NICE methods review task and finish groups.", "registeredInterest" : {"_value" : "true", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/394", "label" : {"_value" : "Biography information for Mr Clive Betts"}
}
, "tablingMemberConstituency" : {"_value" : "Sheffield South East"}
, "tablingMemberPrinted" : [{"_value" : "Mr Clive Betts"}
], "uin" : "11444"}
, {"_about" : "http://data.parliament.uk/resources/1175549", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1175549/answer", "answerText" : {"_value" : " The National Institute for Heath and Care Excellence (NICE) has advised that a six week public consultation on the proposals for changing its methods and processes will take place this summer. We understand that further work on the timetable is in progress and will be communicated in due course.<\/p> The wider health charity sector will have an opportunity to review the proposals for change from the task and finish groups during this consultation.<\/p> NICE also held a webinar with stakeholders in November 2019 to share how and why health technology evaluation is changing and what it means for patients. The webinar is available on the NICE website at the following link:<\/p>