NHS Improvement has advised that the Trust responded to the hon. Member\u2019s letter on 1 May.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/1585", "label" : {"_value" : "Biography information for Stephen Hammond"} } , "answeringMemberConstituency" : {"_value" : "Wimbledon"} , "answeringMemberPrinted" : {"_value" : "Stephen Hammond"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T11:29:32Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-29", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Lancashire Care NHS Foundation Trust: Correspondence"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, whether he holds information on when the hon. Member for West Lancashire will receive a response to correspondence sent to Lancashire Care NHS Foundation Trust on 19 December 2018 regarding mental health care; and if he will make a statement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1538", "label" : {"_value" : "Biography information for Rosie Cooper"} } , "tablingMemberConstituency" : {"_value" : "West Lancashire"} , "tablingMemberPrinted" : [{"_value" : "Rosie Cooper"} ], "uin" : "248620"} , {"_about" : "http://data.parliament.uk/resources/1123700", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123700/answer", "answerText" : {"_value" : "
The Green Paper remains a priority for the Government and will address a longstanding policy problem. The Green Paper will be published at the earliest opportunity.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-05-02", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-02T14:03:44.787Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-29", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Social Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, with reference to his oral contribution of 7 January 2019, Official Report, column 69, for what reasons the Social Care Green Paper was not published before April 2019; and what his Department's timescale is for the publication of that document.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/534", "label" : {"_value" : "Biography information for Chris Ruane"} } , "tablingMemberConstituency" : {"_value" : "Vale of Clwyd"} , "tablingMemberPrinted" : [{"_value" : "Chris Ruane"} ], "uin" : "248593"} , {"_about" : "http://data.parliament.uk/resources/1123403", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123403/answer", "answerText" : {"_value" : "
Services for patients with Ehlers\u2013Danlos syndromes (EDS) are provided at a local and national level. NHS England commissions services for patients, adults and children, with EDS from specialist rheumatology centres. A Complex EDS service for adults and children is being delivered at two centres in England, London North West University Healthcare Trust and Sheffield Children\u2019s NHS Foundation Trust. The two expert centres ensure that a correct diagnosis of EDS has been made and investigate complex cases of EDS. Some patients may also be seen in more local rheumatology services, which are commissioned by clinical commissioning groups.<\/p>
From October 2018, the National Genomic Test Directory has been in place and specifies the genomic tests that will be commissioned directly by NHS England and the patients who will be eligible to access this testing for diagnostic purposes. EDS with a likely monogenic cause is included in the National Test Directory.<\/p>
<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T16:03:07.267Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-26", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Ehlers-Danlos Syndrome"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps his Department is taking to reduce the waiting time for patients with Ehlers\u2013Danlos syndromes to see a specialist.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4472", "label" : {"_value" : "Biography information for Holly Lynch"} } , "tablingMemberConstituency" : {"_value" : "Halifax"} , "tablingMemberPrinted" : [{"_value" : "Holly Lynch"} ], "uin" : "248055"} , {"_about" : "http://data.parliament.uk/resources/1123404", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123404/answer", "answerText" : {"_value" : "
Ehlers-Danlos Syndromes (EDS) are a group of rare inherited connected tissue disorders, affecting around one in 20,000 people. EDS can go undiagnosed, or misdiagnosed, for many years.<\/p>
Building upon the success of the 100,000 Genomes Project, in which EDS was included as part of the rare disease arm, the NHS Genomics Medicine Service (GMS) was launched in October 2018. The GMS brings together existing clinical genetics services and new genomic laboratory infrastructure to provide consistent and equitable access to genomic medicine.<\/p>
The National Genomic Test Directory which underpins the GMS was updated in March 2019 and specifies which genomic tests are commissioned by the National Health Service in England, the technology by which they are available, and the patients who will be eligible to access a test. EDS with a likely monogenic cause is included in the National Test Directory.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T16:06:15.913Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-26", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Ehlers-Danlos Syndrome"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to improve the diagnosis time for patients with Ehlers\u2013Danlos syndrome.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4472", "label" : {"_value" : "Biography information for Holly Lynch"} } , "tablingMemberConstituency" : {"_value" : "Halifax"} , "tablingMemberPrinted" : [{"_value" : "Holly Lynch"} ], "uin" : "248056"} , {"_about" : "http://data.parliament.uk/resources/1123438", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123438/answer", "answerText" : {"_value" : "
Guidance regarding the NHS-funded Nursing Care rate and a care home resident\u2019s overall care fees, can be found in the National Framework for NHS Continuing Healthcare and NHS-funded Nursing Care.<\/p>
This makes clear that the care home provider should set an overall fee level for the provision of care and accommodation, which should include any registered nursing care provided by them. If an individual is eligible for NHS-funded Nursing Care the clinical commissioning group will pay the NHS-funded Nursing Care rate direct to the care home, unless there is an agreement in place for this to be paid via a third party (e.g. a local authority). The balance of the fee will then be paid by the individual, their representative or the local authority unless other contracting arrangements have been agreed.<\/p>
Contracts between individuals and/or local authorities, with providers, should have terms and conditions which are transparent and fair, including setting out what happens if a resident is admitted to hospital or what happens if a resident dies.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T16:01:41.95Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-26", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Care Homes"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what advice his Department provides to care homes on the use of funded nursing care payments for the fee charged to self-funded residents; and if he will make a statement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/360", "label" : {"_value" : "Biography information for Lord Coaker"} } , "tablingMemberConstituency" : {"_value" : "Gedling"} , "tablingMemberPrinted" : [{"_value" : "Vernon Coaker"} ], "uin" : "247980"} , {"_about" : "http://data.parliament.uk/resources/1123441", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123441/answer", "answerText" : {"_value" : "
The Department is aware that the supplier of Sabril tablets has experienced a delay in delivery and as a result the short term local distribution issues are now expected to be resolved in mid-May 2019.<\/p>
The supplier has confirmed that there are no current supply issues affecting Sabril granules and supplies are available.<\/p>
We understand the importance of this medicine and we continue to monitor the situation and work with the supplier to resolve the situation as quickly as possible.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T15:20:37.013Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-26", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "NHS: Drugs"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 12 April 2019 to Question 242165 on NHS: drugs, whether the drug distribution issues have been resolved.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4418", "label" : {"_value" : "Biography information for Justin Madders"} } , "tablingMemberConstituency" : {"_value" : "Ellesmere Port and Neston"} , "tablingMemberPrinted" : [{"_value" : "Justin Madders"} ], "uin" : "248045"} , {"_about" : "http://data.parliament.uk/resources/1123446", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123446/answer", "answerText" : {"_value" : "
The United Kingdom National Screening Committee (UK NSC) is in the process of reviewing the evidence to screen for the major causes of sudden cardiac death (SCD) in young people between the ages of 12 to 39 as per its three-yearly cycle and a public consultation will open in summer 2019. A wide range of relevant stakeholders will be consulted during the next SCD review.<\/p>
The UK NSC is an independent committee that advises Ministers and the National Health Service in all four UK countries on all aspects of screening and supports implementation of screening programmes. Conditions are reviewed against evidence review criteria according to the UK NSC\u2019s evidence review process.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-05-01", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-01T15:26:40.02Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-04-26", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Heart Diseases: Screening"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, whether the review into screening for risk of sudden cardiac death has commenced.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1438", "label" : {"_value" : "Biography information for Mr Kevan Jones"} } , "tablingMemberConstituency" : {"_value" : "North Durham"} , "tablingMemberPrinted" : [{"_value" : "Mr Kevan Jones"} ], "uin" : "247990"} , {"_about" : "http://data.parliament.uk/resources/1123028", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1123028/answer", "answerText" : {"_value" : "
The Department is committed to working in partnership with its arm\u2019s length bodies, National Health Service organisations, trade unions and staff to deliver its manifesto commitment to tackle rates of bullying which are too high.<\/p>
Ministers commissioned the national Social Partnership Forum (SPF) to tackle bullying. The SPF approach to \u2018Creating positive workplace cultures and tackling bullying in the NHS - a collective call to action\u2019 is entering its third year. Further information is available at the following link:<\/p>