The information requested is not held centrally.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4909", "label" : {"_value" : "Biography information for Lord Kamall"} } , "answeringMemberPrinted" : {"_value" : "Lord Kamall"} , "dateOfAnswer" : {"_value" : "2022-07-18", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2022-07-18T14:57:33.36Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2022-07-06", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Cystic Fibrosis: Mental Health Services and Social Workers"} , "houseId" : {"_value" : "2"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25277", "prefLabel" : {"_value" : "House of Lords"} } ], "questionText" : "To ask Her Majesty's Government what percentage of (1) paediatric cystic fibrosis centres, and (2) adult cystic fibrosis centres, in England employed (a) a social worker, and (b) a clinical psychologist, as part of their multi-disciplinary team, for each year since 2015.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4196", "label" : {"_value" : "Biography information for Lord Sharkey"} } , "tablingMemberPrinted" : [{"_value" : "Lord Sharkey"} ], "uin" : "HL1539"} , {"_about" : "http://data.parliament.uk/resources/390599", "AnsweringBody" : [{"_value" : "Department of Health"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/390599/answer", "answerText" : {"_value" : "
It is important that patients suffering from pernicious anaemia, the result of a vitamin B12 (cobalamin) deficiency, receive a prompt and appropriate diagnosis. Pernicious anaemia develops gradually, and can cause a range of symptoms, including fatigue, lethargy, feeling faint and headaches, which vary from patient to patient. Because of the gradual progression of the condition, the variety of symptoms, which are shared with a range of other conditions, diagnosis at early onset can be challenging.<\/p>
To support the diagnosis of pernicious anaemia, the British Committee for Standards in Haematology (BCSH) has published Guidelines for the diagnosis and treatment of Cobalamin and Folate disorders,<\/em> which sets out that cobalamin status is the recommended first line diagnostic test. However, the guidance states that there is no gold standard test for the condition and makes it clear that the clinical picture of a patient is the most important factor in assessing the significance of the test results. This means clinicians should take into account all of the symptoms the patent is experiencing, their medical history, age and other relevant factors when considering the implications of a patient\u2019s cobalamin status. The BCSH guidance highlights the risk of neurological impairment if treatment is delayed.<\/p> Whilst the number of people with neurofibromatosis Type 1 (NF1) in England is estimated to number 11,267, the number of patients with a confirmed diagnosis is not collected.<\/p> <\/p> In the following table we have provided the number of finished admission episodes (FAEs) for patients with a primary diagnosis of NF1 who were treated at the two national specialist centres in 2012-13, the most recent period for which data is available. An FAE is a continuous period of admitted patient care under one consultant within one health care provider. It should be noted the figures do not represent a count of patients, as a person may have more than one episode of care within the same stay in hospital or in different stays in the same year.<\/p> <\/p> <\/p> FAEs in 2012-13 for patients with primary or secondary diagnosis of NF1 (non-malignant)<\/p> <\/p><\/td><\/tr> Trust<\/p><\/td> Numbers<\/p><\/td><\/tr> Central Manchester University Hospitals NHS Foundation Trust<\/p><\/td> 213<\/p><\/td><\/tr> Guys and St. Thomas\u2019 NHS Foundation Trust<\/p><\/td> 124<\/p><\/td><\/tr><\/tbody><\/table> <\/p> <\/p> <\/p> <\/p> <\/p> Source:<\/em> Hospital Episode Statistics (HES), Health and Social Care Information Centre<\/p> <\/p> Information concerning the number of patients waiting to be treated at the two national centres is not available.<\/p> <\/p>"}
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], "questionText" : "To ask Her Majesty\u2019s Government how many patients with neurofibromatosis Type 1 are waiting to be treated at the two designated national specialist care centres.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/2024", "label" : {"_value" : "Biography information for Lord Hunt of Kings Heath"}
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The BCSH operates independently of Department and NHS England and produces evidence based guidelines for both clinical and laboratory haematologists on the diagnosis and treatment of haematological disease, drawing on the advice of expert consultants and clinical scientists practicing in the United Kingdom. It would be for the BCSH, not the Department, to consider whether any adjustments to current best practice in the diagnosis and treatment of patients with pernicious anaemia were needed, including whether any new or additional tests were appropriate. A copy of the BCSH guidance document has already been placed in the Library and<\/del> is attached.<\/p>
More general clinical guidance on the diagnosis and management of pernicious anaemia can also be found on the National Institute for Health and Care Excellence (NICE) Clinical Knowledge Summaries website. This is a freely accessible online resource that covers the causes, symptoms, diagnosis and treatment of pernicious anaemia, as well as potential complications of the condition. In addition to this, NHS Choices provides similar, though less technical, information on pernicious anaemia for the public.<\/p>"}
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, "attachment" : {"_about" : "http://data.parliament.uk/resources/390599/answer/attachment/1", "fileName" : {"_value" : "colbalamin and folate disorders.pdf"}
, "title" : "BCSH Guidelines pernicious anaemia"}
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, "title" : "BCSH Guidelines pernicious anaemia"}
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, "date" : {"_value" : "2015-07-16", "_datatype" : "dateTime"}
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], "questionText" : "To ask Her Majesty\u2019s Government what action they are taking to address the problems associated with the late diagnosis of pernicious anaemia, in the light of the results of the survey published in the British Nursing Journal<\/i> in April 2014.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
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, {"_about" : "http://data.parliament.uk/resources/79647", "AnsweringBody" : [{"_value" : "Department of Health"}
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