Evidence suggests that life expectancy for people with sickle cell disease is improving. This is due to a number of factors including:<\/p>
- Improved newborn screening coverage to enable earlier diagnosis;<\/p>
- Use of the National Haemoglobinopathy Registry to monitor individuals\u2019 health, treatment and their annual reviews;<\/p>
- Access to specific diagnostics and medication, such as hydroxyurea; and<\/p>
- A Commissioning for Quality and Innovation (CQUIN) incentive has been in place for the last two years to improve access to apheresis for individuals with sickle cell disease.<\/p>
All these factors are reflected in the service specification quality indicators which providers are required to report against so that implementation can be monitored.<\/p>
It is anticipated that NHS England\u2019s new model for specialised haemoglobinopathy services will be in place by early 2020. The new model is designed to improve access to specialist advice and care for patients, irrespective of where they live. The equality impact assessment on the new service model indicates that it will advance the promotion of equality and support the further reduction of health inequalities. This will be through ensuring that patients with thalassemia and sickle cell conditions have equitable access to high quality specialist care and support within specialised commissioned centres irrespective of where in the country they live. These centres will promote best practice in service delivery.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-06T13:13:01.52Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Sickle Cell Diseases: Health Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent assessment his Department has made of potential levels of inequality in (a) the life expectancy and (b) NHS service provision for patients with sickle cell disease compared to other NHS patients.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"} } , "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"} , "tablingMemberPrinted" : [{"_value" : "Diana Johnson"} ], "uin" : "259466"} , {"_about" : "http://data.parliament.uk/resources/1129388", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1129388/answer", "answerText" : {"_value" : "
A wide range of contraceptive choices, including long-acting reversible contraception (LARC), are available free of charge in a range of primary and community venues and local authorities are mandated to provide reasonable access to all methods of contraception. The proportion of women attending sexual and reproductive health services who use LARC methods has been steadily rising over the last ten years. The Department will work with Public Health England to consider what more we can do to ensure that all women have access to the full range of contraception.<\/p>
<\/strong><\/p> <\/strong><\/p> <\/p> <\/p> <\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-06-06T13:19:12.64Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Contraceptives"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what plans his Department has to promote the uptake of long-acting reversible contraception methods.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"}
}
, "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"}
, "tablingMemberPrinted" : [{"_value" : "Diana Johnson"}
], "uin" : "259467"}
, {"_about" : "http://data.parliament.uk/resources/1129389", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1129389/answer", "answerText" : {"_value" : " The Government has mandated local authorities to commission comprehensive open access sexual health services, including free sexually transmitted infection testing and treatment, and notification of sexual partners of infected persons.<\/p> The precise level of spending on sexual health services is a matter for individual local authorities, reflecting local need.<\/p> <\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-06-06T13:15:28.037Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Genito-urinary Medicine: Expenditure"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps his Department is taking to ensure that spending on sexual health services reflects local levels of need.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"}
}
, "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"}
, "tablingMemberPrinted" : [{"_value" : "Diana Johnson"}
], "uin" : "259112"}
, {"_about" : "http://data.parliament.uk/resources/1129390", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1129390/answer", "answerText" : {"_value" : " In June 2019, Public Health England (PHE) published a Syphilis Action Plan, to improve detection, surveillance and clinical management at the following link:<\/p> https://www.gov.uk/government/publications/syphilis-public-health-england-action-plan<\/a><\/p> To reduce the transmission of sexually transmitted infections (STIs), including gonorrhoea and syphilis, PHE launched the \u2018Protect Against STIs\u2019 health promotion campaign in 2017/18 to promote condom use and positive sexual relationships among 16 to 24-year olds. This campaign can be viewed at the following link:<\/p>