Severe Haemophilia B<\/p><\/td> | 263<\/p><\/td> | 3.7<\/p><\/td> | 7.6<\/p><\/td> | 1 (0 - 4)<\/p><\/td><\/tr><\/tbody><\/table> <\/p> The National Haemophilia Database have very limited bleed-level data for patients with mild or moderate haemophilia, as these patients do not bleed frequently and therefore do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, they have excluded non-severe patients from these results, as they would make the data unlikely to be robust.<\/p> <\/p> It should be noted that the following limitations apply to this data:<\/p> <\/p> 1. The data is derived from patient-reported Haemtrack home therapy diary data.<\/p> 2. The data is limited to patients who require home-therapy.<\/p> 3. These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.<\/p> 4. About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:43:25.39Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-04", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Haemophilia"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will place copies in the library of National Haemophilia Database data on the average number of bleeds people with (a) mild, (b) moderate and (c) severe (i) Haemophilia A and (ii) Haemophilia B had in the latest year for which data is available.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"}
}
, "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"}
, "tablingMemberPrinted" : [{"_value" : "Diana Johnson"}
], "uin" : "240995"}
, {"_about" : "http://data.parliament.uk/resources/1109799", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109799/answer", "answerText" : {"_value" : " The data on the number of patients with severe haemophilia A and haemophilia B by the number of bleeds is attached.<\/p> <\/p> The National Haemophilia Database (NHD) have very limited bleed-level data for patients with mild or moderate haemophilia since these patients do not bleed frequently and do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, the NHD have excluded non-severe patients from this data, as it makes the data unlikely to be robust.<\/p> <\/p> It should be noted that the following limitations apply to this data:<\/p> - The data are derived from patient-reported Haemtrack home therapy diary data.<\/li>
- The data is limited to patients who require home-therapy.<\/li>
- These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.<\/li>
- About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.<\/li><\/ol>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "attachment" : {"_about" : "http://data.parliament.uk/resources/1109799/answer/attachment/1", "fileName" : {"_value" : "Pq240996 - bleeds for severe haemophilia.xlsx"}
, "title" : "PQ240996 attached information"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:50:49.313Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-04", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Haemophilia"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will place copies in the library of National Haemophilia Database data on the number and patients with (a) mild, (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by the number of bleeds they had in the most recent year for which data is available.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"}
}
, "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"}
, "tablingMemberPrinted" : [{"_value" : "Diana Johnson"}
], "uin" : "240996"}
, {"_about" : "http://data.parliament.uk/resources/1109800", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109800/answer", "answerText" : {"_value" : "
The number of patients with severe haemophilia A and haemophilia B for 2018 by the number of bleeds they had and age groups 0 to 18 and over 18, is attached.<\/p> <\/p> The National Haemophilia Database (NHD) have very limited bleed-level data for patients with mild or moderate haemophilia who do not bleed frequently and do not generally require home therapy. The non-severe patients using Haemtrack are skewed towards the severe end of moderate and anyone with zero bleeds is very unlikely to be reporting. For this reason, the NHD have excluded non-severe patients from these results, as it makes the data unlikely to be robust.<\/p> <\/p> It should be noted that the following limitations apply to this data:<\/p> 1. The data is derived from patient-reported Haemtrack home therapy diary data.<\/p> 2. The data is limited to patients who require home-therapy.<\/p> 3. These results are prone to reporting bias since uncompliant patients and patients treated on-demand, treated only when they bleed, are under-represented in this sample. The data may therefore paint a slightly optimistic picture.<\/p> 4. About 85-90% of clinically severely affected (less than 2% VIII/IX) patients are managed with regular prophylaxis to prevent bleeding. Prior to prophylaxis, patients treated on-demand bled between twice a week and once a fortnight and, as the figures show, the mean annualised bleed rate has been dramatically reduced to about four per year. However, our aim is for the patients to be bleed free, without which the joints will not be fully protected from bleeding.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "attachment" : {"_about" : "http://data.parliament.uk/resources/1109800/answer/attachment/1", "fileName" : {"_value" : "PQ240997 - data by age.xlsx"}
, "title" : "PQ240997 attached data"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:59:08.677Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-04", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Haemophilia"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 13 March 2019 to Question 230073 on Haemophilia, if he will publish the number of patients with (a) mild, (b) moderate and (c) severe (i) haemophilia A and (ii) haemophilia B by (A) the number of bleeds they had in the most recent year for which data is available and (B) age groups (1) 0 to 18 and (2) over 18.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/1533", "label" : {"_value" : "Biography information for Dame Diana Johnson"}
}
, "tablingMemberConstituency" : {"_value" : "Kingston upon Hull North"}
, "tablingMemberPrinted" : [{"_value" : "Diana Johnson"}
], "uin" : "240997"}
, {"_about" : "http://data.parliament.uk/resources/1109819", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109819/answer", "answerText" : {"_value" : " My Rt. hon. Friend the Secretary of State for Health and Social Care meets with NHS England regularly to discuss a variety of topics.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:39:00.7Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-04", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Tomography: Oxfordshire"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent discussions he has had with NHS England on the procurement of PET-CT scanning services in Oxfordshire.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4656", "label" : {"_value" : "Biography information for Layla Moran"}
}
, "tablingMemberConstituency" : {"_value" : "Oxford West and Abingdon"}
, "tablingMemberPrinted" : [{"_value" : "Layla Moran"}
], "uin" : "241088"}
, {"_about" : "http://data.parliament.uk/resources/1109487", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109487/answer", "answerText" : {"_value" : " The Teenage Pregnancy Unit was established to drive delivery of national work to reduce under 18 conceptions by 2010. Details of staff numbers and the costs involved are no longer held. Since 2010 this work has been devolved to local authorities. Between 2010 and 2016, the latest year for which data is available, under 18 conceptions fell by 45%.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-10", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "previousAnswerVersion" : {"_about" : "http://data.parliament.uk/resources/1109487/answer/previousversion/112580", "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
}
, "questionFirstAnswered" : [{"_value" : "2019-04-10T10:37:34.353Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Teenage Pregnancy"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what the cost to the public purse has been of the teenage pregnancy unit in each year since its creation; and how many civil servants were employed within it in each of those years.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4473", "label" : {"_value" : "Biography information for Louise Haigh"}
}
, "tablingMemberConstituency" : {"_value" : "Sheffield, Heeley"}
, "tablingMemberPrinted" : [{"_value" : "Louise Haigh"}
], "uin" : "240592"}
, {"_about" : "http://data.parliament.uk/resources/1108996", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1108996/answer", "answerText" : {"_value" : " Registering with and access to primary medical care services is the same for all patients, whether they are gypsies, travellers, or homeless people. People do not need to provide proof of address to register with a general practice (GP). NHS England is working with a range of community groups to redesign the patient registration leaflet so that people are aware of this when registering. The free NHS 111 service can assist anyone who has faced difficulty finding a GP or accessing other services in their local area.<\/p> <\/p> NHS England is aware of difficulties some individuals have faced when trying to register with a GP and is taking steps to address shortcomings with individual practices, working in partnership with the voluntary sector.<\/p> <\/p> The Voluntary, Community and Social Enterprise Health and Wellbeing Alliance is a partnership arrangement with the aim to facilitate integrated working between the voluntary and statutory sectors, to promote equality and reduce health inequalities. It receives £1.2 million for core work from the Department, with each member receiving funding of up to £60,000. Families and Travellers is a member of the Alliance and have supported the Department on a range of work to date including the Inclusion Health Audit Tool, on maternal health, mental health, end of life care and dementia.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:33:43.34Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-02", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Health Services: Travellers and Homelessness"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps (a) his Department plans to take with the NHS to respond to the findings of the Friends Families and Travellers\u2019 report entitled No room at the inn: How easy is it for nomadic Gypsies and Travellers to access primary care and (b) the NHS plans to take to ensure homeless people can access healthcare at any GP practice they choose.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4368", "label" : {"_value" : "Biography information for Neil Coyle"}
}
, "tablingMemberConstituency" : {"_value" : "Bermondsey and Old Southwark"}
, "tablingMemberPrinted" : [{"_value" : "Neil Coyle"}
], "uin" : "240011"}
, {"_about" : "http://data.parliament.uk/resources/1109014", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109014/answer", "answerText" : {"_value" : " Public Health England has been working with NHS England to support approaches to obesity as part of the NHS Long Term Plan. The NHS Long Term Plan has a number of different actions to support the drive to reduce obesity, including investment in tier 3 services for both children and adults and plans are in development for this expansion. This will result in, for example, a further 1,000 children a year being treated by 2022/23 for severe complications related to obesity.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:35:00.137Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-02", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Obesity"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to increase access to Tier 3 obesity services.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4532", "label" : {"_value" : "Biography information for Derek Thomas"}
}
, "tablingMemberConstituency" : {"_value" : "St Ives"}
, "tablingMemberPrinted" : [{"_value" : "Derek Thomas"}
], "uin" : "240051"}
, {"_about" : "http://data.parliament.uk/resources/1109018", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1109018/answer", "answerText" : {"_value" : " It would not be cost-effective for the Department to collect data on every clinical intervention, including information on tier three obesity services commissioned by clinical commissioning groups or local authorities.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-04-09", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-09T14:36:07.327Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-02", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Obesity"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 27 March 2018 to Question 133501 on obesity, for what reason his Department does not hold information on the number of tier three obesity services commissioned by clinical commissioning groups or local authorities; and whether he plans to collate that information.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4532", "label" : {"_value" : "Biography information for Derek Thomas"}
}
, "tablingMemberConstituency" : {"_value" : "St Ives"}
, "tablingMemberPrinted" : [{"_value" : "Derek Thomas"}
], "uin" : "240054"}
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}
|