The United Kingdom Rare Disease Strategy, published in 2013, sets out our commitment to raising awareness about all rare diseases including idiopathic pulmonary fibrosis (IPF) and our strategic vision for improving the lives of all those affected. The Strategy promotes improvements to ensure that people living with a rare disease receive high-quality care.<\/p>
The Government recognizes the need for awareness raising and training of health care professionals for rare diseases. This is being taken forward through the work of the UK Rare Diseases Policy Board and NHS England\u2019s Rare Diseases Implementation plan, which commits NHS England to engaging with the Royal College of General Practitioners (GPs) and the Nursing and Midwifery Council on opportunities for GPs and health visitors to recognise and facilitate earlier diagnosis of rare diseases.<\/p>
There are limited drug treatment options for IPF and two drugs, Pirfenidone and Nintedanib, are commissioned following National Institute for Health and Care Excellence Technology Appraisals. Alongside this, the Department funds research into rare diseases such as IPF through the National Institute for Health Research (NIHR).<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"} } , "answeringMemberConstituency" : {"_value" : "South Ribble"} , "answeringMemberPrinted" : {"_value" : "Seema Kennedy"} , "dateOfAnswer" : {"_value" : "2019-05-15", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-05-15T16:35:47.667Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-05-03", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Idiopathic Pulmonary Fibrosis"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to improve (a) early diagnosis and (b) treatment of idiopathic pulmonary fibrosis.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4093", "label" : {"_value" : "Biography information for Stephen McPartland"} } , "tablingMemberConstituency" : {"_value" : "Stevenage"} , "tablingMemberPrinted" : [{"_value" : "Stephen McPartland"} ], "uin" : "250788"} , {"_about" : "http://data.parliament.uk/resources/1061027", "AnsweringBody" : [{"_value" : "Home Office"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1061027/answer", "answerText" : {"_value" : "
As previously advised in the response to Question 218262, the UK-France Migration Committee meets on a bi-monthly basis and is hosted alternately by the UK Home Office and French Interior Ministry. It is not Home Office policy to release detailed information on meetings that ministers and/or officials attend<\/p>
As regards payments to the French Government, no additional payments have been made beyond those detailed in the response to Question 217548, dated 12th February 2019.<\/p>"}
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As previously advised in the response to Question 218262, the UK-France Migration Committee meets on a bi-monthly basis and is hosted alternately by the UK Home Office and French Interior Ministry. It is not Home Office policy to release detailed information on meetings that ministers and/or officials attend<\/p>
As regards payments to the French Government, no additional payments have been made beyond those detailed in the response to Question 217548, dated 12th February 2019.<\/p>"}
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], "questionText" : "To ask the Secretary of State for the Home Department, pursuant to the Answer of 12 February 2019 to Question 217548 on Human Trafficking and Immigration: France, whether any other payments in cash or kind have been made to France in connection with (a) border security, (b) infrastructure and (c) countering organised crime and people trafficking in addition to those set out in that answer.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
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