{ "format" : "linked-data-api", "version" : "0.2", "result" : {"_about" : "http://eldaddp.azurewebsites.net/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&answer.answeringMemberPrinted=Jackie+Doyle-Price", "definition" : "http://eldaddp.azurewebsites.net/meta/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&answer.answeringMemberPrinted=Jackie+Doyle-Price", "extendedMetadataVersion" : "http://eldaddp.azurewebsites.net/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&_metadata=all&answer.answeringMemberPrinted=Jackie+Doyle-Price", "first" : "http://eldaddp.azurewebsites.net/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&_page=0&answer.answeringMemberPrinted=Jackie+Doyle-Price", "hasPart" : "http://eldaddp.azurewebsites.net/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&answer.answeringMemberPrinted=Jackie+Doyle-Price", "isPartOf" : "http://eldaddp.azurewebsites.net/answeredquestions.text?tablingMember.label=Biography+information+for+Martyn+Day&answer.answeringMemberPrinted=Jackie+Doyle-Price", "items" : [{"_about" : "http://data.parliament.uk/resources/1024698", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/1024698/answer", "answerText" : {"_value" : "<p>Currently, rare diseases are defined as conditions affecting no more than five in 10,000 people in the European Union. The new European Clinical Trial Regulation (Regulation (EU) No 536/2014) will introduce an \u2018ultra-rare\u2019 condition and states that clinical trials for the development of orphan medicinal products and those of medicines affecting no more than one person in 50,000 in the EU (ultra-rare diseases) should be fostered, and in such areas, a rapid yet in-depth assessment is of particular importance. The new clinical trials regulation is expected to be implemented in the EU in late 2020. The Government has confirmed that United Kingdom law will remain aligned with the parts of the new EU clinical trials Regulation that are within the UK\u2019s control.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
        , "answeringMemberConstituency" : {"_value" : "Thurrock"}
        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
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        , "questionFirstAnswered" : [{"_value" : "2018-12-20T17:10:46.507Z", "_datatype" : "dateTime"}
        ]}
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      , "answeringDeptShortName" : {"_value" : "Health and Social Care"}
      , "answeringDeptSortName" : {"_value" : "Health and Social Care"}
      , "date" : {"_value" : "2018-12-13", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Orphan Drugs"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
      }
      ], "questionText" : "To ask the Secretary of State for Health and Social Care, whether he is taking steps to introduce a revised definition for ultra-orphan medicine.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
      }
      , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"}
      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
      ], "uin" : "202090"}
    , {"_about" : "http://data.parliament.uk/resources/1024700", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/1024700/answer", "answerText" : {"_value" : "<p>The Government is committed to the safe and effective regulation of medicines in the United Kingdom; ensuring patients and the public have fast access to new, innovative medicines, including medicines for rare diseases.<\/p><p> <\/p><p>The agreement of an implementation period will ensure that access to medicines continues, and patient safety is maintained, in both the UK and European Union markets. Beyond that, the Political Declaration sets out a plan for a free trade area for goods, underpinned by deep regulatory co-operation, as well as a joint commitment to explore close cooperation with the European Medicines Agency.<\/p><p> <\/p><p>The Government also continues to prepare for the unlikely outcome that we leave the EU without any deal in March 2019. The Department has been engaging with all pharmaceutical companies that supply the United Kingdom with pharmacy or prescription-only medicines from, or via, the EU/European Economic Area, on their contingency plans in the event of a no deal EU Exit.<\/p><p> <\/p><p>Whatever the exit scenario, we will work to ensure that the UK will remain a world leader for the treatment of rare diseases after the UK leaves the EU, that UK patients are able to access the best and most innovative medicines including medicines for rare diseases and that their safety is protected. The UK life sciences industry has much to offer in creating, developing, trialing and commercialising medicines that will benefit UK patients and strengthen the ability of the UK to compete internationally.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
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        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2018-12-20", "_datatype" : "dateTime"}
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        , "questionFirstAnswered" : [{"_value" : "2018-12-20T17:07:43.307Z", "_datatype" : "dateTime"}
        ]}
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      , "date" : {"_value" : "2018-12-13", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Rare Diseases: Drugs"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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      ], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure that the UK remains a world leader for the treatment of rare diseases after the UK leaves the EU.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
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      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
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    , {"_about" : "http://data.parliament.uk/resources/846144", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/846144/answer", "answerText" : {"_value" : "<p>The Department has not issued guidance to medical staff dealing with hospital deaths where the deceased has requested to be preserved using cryogenics. There are no current plans to amend the Human Tissue Act or bring forward legislative proposals in this area.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
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        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2018-02-28", "_datatype" : "dateTime"}
        , "groupedQuestionUIN" : [{"_value" : "128839"}
        , {"_value" : "128840"}
        ], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
        , "questionFirstAnswered" : [{"_value" : "2018-02-28T14:53:51.82Z", "_datatype" : "dateTime"}
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      , "answeringDeptId" : {"_value" : "17"}
      , "answeringDeptShortName" : {"_value" : "Health and Social Care"}
      , "answeringDeptSortName" : {"_value" : "Health and Social Care"}
      , "date" : {"_value" : "2018-02-21", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Patients: Death"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
      }
      ], "questionText" : "To ask the Secretary of State for Health and Social Care, what guidelines his Department has in place for medical staff dealing with hospital deaths where the deceased has requested to be preserved using cryonics.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
      }
      , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"}
      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
      ], "uin" : "128838"}
    , {"_about" : "http://data.parliament.uk/resources/846145", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/846145/answer", "answerText" : {"_value" : "<p>The Department has not issued guidance to medical staff dealing with hospital deaths where the deceased has requested to be preserved using cryogenics. There are no current plans to amend the Human Tissue Act or bring forward legislative proposals in this area.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
        , "answeringMemberConstituency" : {"_value" : "Thurrock"}
        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2018-02-28", "_datatype" : "dateTime"}
        , "groupedQuestionUIN" : [{"_value" : "128838"}
        , {"_value" : "128840"}
        ], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
        , "questionFirstAnswered" : [{"_value" : "2018-02-28T14:53:51.883Z", "_datatype" : "dateTime"}
        ]}
      , "answeringDeptId" : {"_value" : "17"}
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      , "answeringDeptSortName" : {"_value" : "Health and Social Care"}
      , "date" : {"_value" : "2018-02-21", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Human Tissue (Quality and Safety for Human Application) (Amendment) Regulations 2018"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
      }
      ], "questionText" : "To ask the Secretary of State for Health and Social Care, if he will amend the draft Human Tissue (Quality and Safety for Human Application) (Amendment) Regulations 2018 to include the regulation of cryopreservation of (a) complete bodies and (b) heads.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
      }
      , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"}
      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
      ], "uin" : "128839"}
    , {"_about" : "http://data.parliament.uk/resources/846146", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/846146/answer", "answerText" : {"_value" : "<p>The Department has not issued guidance to medical staff dealing with hospital deaths where the deceased has requested to be preserved using cryogenics. There are no current plans to amend the Human Tissue Act or bring forward legislative proposals in this area.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
        , "answeringMemberConstituency" : {"_value" : "Thurrock"}
        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2018-02-28", "_datatype" : "dateTime"}
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        , {"_value" : "128839"}
        ], "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
        , "questionFirstAnswered" : [{"_value" : "2018-02-28T14:53:51.93Z", "_datatype" : "dateTime"}
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      , "answeringDeptId" : {"_value" : "17"}
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      , "answeringDeptSortName" : {"_value" : "Health and Social Care"}
      , "date" : {"_value" : "2018-02-21", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Human Tissue (Quality and Safety for Human Application) (Amendment) Regulations 2018"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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      ], "questionText" : "To ask the Secretary of State for Health and Social Care, if he will make it his policy to bring forward legislative proposals for the regulation by the Human Tissue Authority on the removal of (a) bodies and (b) heads for cryopreservation.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
      }
      , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"}
      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
      ], "uin" : "128840"}
    , {"_about" : "http://data.parliament.uk/resources/746855", "AnsweringBody" : [{"_value" : "Department of Health"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/746855/answer", "answerText" : {"_value" : "<p>The Department funds research mainly through the National Institute for Health Research (NIHR). The Medical Research Council (MRC), an independent research funding body which receives its grant in aid from the Department for Business, Energy and Industrial Strategy also funds medical research.<\/p><p> <\/p><p>The usual practice of the NIHR and of the MRC is not to ring-fence funds for expenditure on particular topics: research proposals in all areas compete for the funding available. Applications are subject to peer review and judged in open competition, with awards being made on the basis of the importance of the topic to patients and health and care services, value for money and scientific quality.<\/p><p> <\/p><p>The MRC currently spends approximately £5.3 million per annum on research relating to Motor Neurone Disease (MND). The MRC, as part of the Network of Centres of Excellence in Neurodegeneration, has recently made available up to £1 million to support research in the United Kingdom.<\/p><p> <\/p><p>Spend by the NIHR in the Health Research Classification System (HRCS) health category \u2018neurological\u2019 has increased from £29.9 million in 2010/11 to £52.6 million in 2015/16 (the latest year for which data is available). There are no HRCS health sub-categories such as for MND or other specific neurological conditions, and information on total annual NIHR spend on research into treating MND is not held.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
        }
        , "answeringMemberConstituency" : {"_value" : "Thurrock"}
        , "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
        , "dateOfAnswer" : {"_value" : "2017-07-06", "_datatype" : "dateTime"}
        , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
        , "questionFirstAnswered" : [{"_value" : "2017-07-06T15:45:09.69Z", "_datatype" : "dateTime"}
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      , "answeringDeptShortName" : {"_value" : "Health"}
      , "answeringDeptSortName" : {"_value" : "Health"}
      , "date" : {"_value" : "2017-06-29", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Motor Neurone Disease"}
      , "houseId" : {"_value" : "1"}
      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
      }
      ], "questionText" : "To ask the Secretary of State for Health, if he will make it his policy to double research funding for Motor Neurone Disease.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
      }
      , "tablingMemberConstituency" : {"_value" : "Linlithgow and East Falkirk"}
      , "tablingMemberPrinted" : [{"_value" : "Martyn Day"}
      ], "uin" : "2092"}
    , {"_about" : "http://data.parliament.uk/resources/746856", "AnsweringBody" : [{"_value" : "Department of Health"}
      ], "answer" : {"_about" : "http://data.parliament.uk/resources/746856/answer", "answerText" : {"_value" : "<p>The Department Task and Finish Working Group on Brain Tumour Research is bringing together clinicians, charities, patients, and officials to discuss how, working together with research funding partners, we can address the need to increase the level and impact of research into brain tumours. The Working Group is chaired by Professor Chris Whitty, the Department's Chief Scientific Adviser. The Working Group met for the third time on 17 May, and plans to report to the Parliamentary Under Secretary of State for Health (Lord O\u2019Shaughnessy) by autumn 2017.<\/p>"}
        , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
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        , "answeringMemberConstituency" : {"_value" : "Thurrock"}
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      , "date" : {"_value" : "2017-06-29", "_datatype" : "dateTime"}
      , "hansardHeading" : {"_value" : "Brain: Tumours"}
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      , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
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      ], "questionText" : "To ask the Secretary of State for Health, if he will bring forward proposals to increase funding for brain tumour research over the current Parliament; and if he will make a statement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
      , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4488", "label" : {"_value" : "Biography information for Martyn Day"}
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