Thank you for raising this important issue. I realise that the availability of Orkambi is currently the subject of negotiation involving Vertex Pharmaceuticals, NHS England and the National Institute for Health and Care Excellence (NICE).<\/p>
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As these negotiations are ongoing, I will ask my officials to monitor progress on this issue and update you as soon as there is greater clarity.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/1584", "label" : {"_value" : "Biography information for John Penrose"} } , "answeringMemberConstituency" : {"_value" : "Weston-super-Mare"} , "answeringMemberPrinted" : {"_value" : "John Penrose"} , "dateOfAnswer" : {"_value" : "2018-11-26", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2018-11-26T11:40:48.57Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "21"} , "answeringDeptShortName" : {"_value" : "Northern Ireland"} , "answeringDeptSortName" : {"_value" : "Northern Ireland"} , "date" : {"_value" : "2018-11-19", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Lumacaftor/ivacaftor: Northern Ireland"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Northern Ireland, if she will meet families of cystic fibrosis sufferers in Northern Ireland who are seeking to secure the availability of Orkambi on the NHS; and if she will make a statement.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/1437", "label" : {"_value" : "Biography information for Lady Hermon"} } , "tablingMemberConstituency" : {"_value" : "North Down"} , "tablingMemberPrinted" : [{"_value" : "Lady Hermon"} ], "uin" : "192815"} , {"_about" : "http://data.parliament.uk/resources/1010415", "AnsweringBody" : [{"_value" : "Northern Ireland Office"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1010415/answer", "answerText" : {"_value" : "
My deepest sympathies go out to anyone facing uncertainty as a result of the changes at Johnston Press. The Secretary of State for Digital, Culture, Media and Sport has made an assessment of the challenges facing local and regional newspapers, both from the resale of Johnston Press and more broadly, in the whole of the UK including Northern Ireland. Details can be found at:<\/p>
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