As part of the NHS Long Term Plan, the National Health Service has committed to sequencing 500,000 whole genomes by 2023/24.<\/p>
During 2019, the NHS will begin to offer whole genome sequencing (WGS) as part of clinical care for:<\/p>
- Seriously ill children likely to have a rare genetic disorder;<\/p>
- People with one of 21 rare conditions where current evidence supports early adoption of WGS as a diagnostic test;<\/p>
- People with specific types of cancer for which there is likely to be the greatest patient benefit from using WGS \u2013 children with cancer, sarcoma and Acute Myeloid Leukaemia.<\/p>
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As the price of whole genome sequencing falls and the evidence improves, we envisage that it will be extended to more conditions and therefore more patients.<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-06-19", "_datatype" : "dateTime"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-19T16:17:13.117Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-06-14", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Genomics: Health Services"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of patients that will benefit from whole genome sequencing in the first year of its introduction; and what steps is he taking to ensure the adequacy of trained professionals to provide that service.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/394", "label" : {"_value" : "Biography information for Mr Clive Betts"} } , "tablingMemberConstituency" : {"_value" : "Sheffield South East"} , "tablingMemberPrinted" : [{"_value" : "Mr Clive Betts"} ], "uin" : "264725"} , {"_about" : "http://data.parliament.uk/resources/1132107", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1132107/answer", "answerText" : {"_value" : "
Information on the number of hospices which have closed in England since 2010 is not held.<\/p>
There are currently around 223 registered independent hospices, and a very small number of public hospices run internally by National Health Service trusts. Around a quarter of these are children\u2019s hospices. The vast majority of hospices are primarily charity-funded but receive some statutory funding from clinical commissioning groups (CCGs) and the Government for providing local services. CCGs are responsible for determining the level of NHS-funded hospice care locally and they are responsible for ensuring that the services they commission meet the needs of their local population.<\/p>
As part of the NHS Long Term Plan, NHS England committed to increase its investment in children\u2019s palliative care over the next five years by match funding CCGs who commit to increase their investment in local children\u2019s palliative and end of life care services.<\/p>
Subject to CCGs increasing investment, NHS England will match this by up to £7 million a year by 2023/24. This increase is in addition to the Children\u2019s Hospice Grant, which provides an annual contribution of £11 million. NHS England is currently establishing financial reporting systems to monitor the baseline investment of CCG in children\u2019s palliative and end of life care services. This will enable match funding payments to be made to CCGs where the investments are increased above the investment baseline in the previous year. As baselining will be ongoing through 2019/20, and therefore match funding will not be available in this year, NHS England will be increasing the children\u2019s hospice grant to £12 million for this period.<\/p>
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<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-06-18", "_datatype" : "dateTime"} , "groupedQuestionUIN" : {"_value" : "264390"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-18T14:49:29.84Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-06-13", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Hospices: Children"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, what estimate he has made of the number of children's hospices in England; and what assessment he has made of the adequacy of support for hospices provided by his Department.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4077", "label" : {"_value" : "Biography information for Emma Reynolds"} } , "tablingMemberConstituency" : {"_value" : "Wolverhampton North East"} , "tablingMemberPrinted" : [{"_value" : "Emma Reynolds"} ], "uin" : "264389"} , {"_about" : "http://data.parliament.uk/resources/1132108", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1132108/answer", "answerText" : {"_value" : "
Information on the number of hospices which have closed in England since 2010 is not held.<\/p>
There are currently around 223 registered independent hospices, and a very small number of public hospices run internally by National Health Service trusts. Around a quarter of these are children\u2019s hospices. The vast majority of hospices are primarily charity-funded but receive some statutory funding from clinical commissioning groups (CCGs) and the Government for providing local services. CCGs are responsible for determining the level of NHS-funded hospice care locally and they are responsible for ensuring that the services they commission meet the needs of their local population.<\/p>
As part of the NHS Long Term Plan, NHS England committed to increase its investment in children\u2019s palliative care over the next five years by match funding CCGs who commit to increase their investment in local children\u2019s palliative and end of life care services.<\/p>
Subject to CCGs increasing investment, NHS England will match this by up to £7 million a year by 2023/24. This increase is in addition to the Children\u2019s Hospice Grant, which provides an annual contribution of £11 million. NHS England is currently establishing financial reporting systems to monitor the baseline investment of CCG in children\u2019s palliative and end of life care services. This will enable match funding payments to be made to CCGs where the investments are increased above the investment baseline in the previous year. As baselining will be ongoing through 2019/20, and therefore match funding will not be available in this year, NHS England will be increasing the children\u2019s hospice grant to £12 million for this period.<\/p>
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<\/p>"} , "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"} } , "answeringMemberConstituency" : {"_value" : "Gosport"} , "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"} , "dateOfAnswer" : {"_value" : "2019-06-18", "_datatype" : "dateTime"} , "groupedQuestionUIN" : {"_value" : "264389"} , "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"} , "questionFirstAnswered" : [{"_value" : "2019-06-18T14:49:29.903Z", "_datatype" : "dateTime"} ]} , "answeringDeptId" : {"_value" : "17"} , "answeringDeptShortName" : {"_value" : "Health and Social Care"} , "answeringDeptSortName" : {"_value" : "Health and Social Care"} , "date" : {"_value" : "2019-06-13", "_datatype" : "dateTime"} , "hansardHeading" : {"_value" : "Hospices: Children"} , "houseId" : {"_value" : "1"} , "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"} } ], "questionText" : "To ask the Secretary of State for Health and Social Care, how many children's hospices have closed in England in each year since 2010; and in which regions of England were those hospices located.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"} , "tablingMember" : {"_about" : "http://data.parliament.uk/members/4077", "label" : {"_value" : "Biography information for Emma Reynolds"} } , "tablingMemberConstituency" : {"_value" : "Wolverhampton North East"} , "tablingMemberPrinted" : [{"_value" : "Emma Reynolds"} ], "uin" : "264390"} , {"_about" : "http://data.parliament.uk/resources/1132150", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"} ], "answer" : {"_about" : "http://data.parliament.uk/resources/1132150/answer", "answerText" : {"_value" : "
The Challenge on Dementia 2020 sets out the ambition for two thirds of people with dementia to receive a formal diagnosis. This has been achieved and exceeded nationally. Our focus now is on reducing the variation in local diagnosis rates and NHS England have published guidance and put programmes in place to further improve the quality and timeliness of diagnosis across the country.<\/p>
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NHS Digital collects data on the number of patients with a recorded dementia diagnosis in their clinical record and report this on a monthly basis, so that the National Health Service (general practitioners and commissioners) can make informed choices about how to plan their services around their patient\u2019s needs. The data is available at the following link:<\/p>
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