https://phescreening.blog.gov.uk/2018/03/02/a-reminder-about-private-screening-and-a-last-opportunity-to-order-leaflets-about-it/<\/a><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4067", "label" : {"_value" : "Biography information for Steve Brine"}
}
, "answeringMemberConstituency" : {"_value" : "Winchester"}
, "answeringMemberPrinted" : {"_value" : "Steve Brine"}
, "dateOfAnswer" : {"_value" : "2019-03-21", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-03-21T17:10:05.113Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-03-14", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Health: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to ensure and monitor that women have full information about the screening available in the public and private sectors and the conditions being screened for, before they embark on the screening pathway.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "232550"}
, {"_about" : "http://data.parliament.uk/resources/1087267", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1087267/answer", "answerText" : {"_value" : "NHS Fetal Anomaly Screening Programme offers screening to all eligible pregnant women in England to check the baby for 12 fetal anomalies which include Down\u2019s, Edwards\u2019 and Patau\u2019s syndromes. Fetal anomalies are described as structural abnormalities of the developing fetus.<\/p>
<\/p>
The characteristics, causes and complications of Down\u2019s Syndrome are described on NHS.UK and there is additional information on the support available to families expecting, or who have had a baby with Down\u2019s Syndrome.<\/p>
<\/p>
Public Health England provides a Fetal Anomaly Screening Programme Handbook which offers practical guidance to support healthcare professionals in the operational delivery of the screening pathway. NHS England encourages clinical staff to refer to these sources of information when explaining Down\u2019s Syndrome to families.<\/p>
<\/p>
NHS Fetal Anomaly Screening Programme requires that there is equal access to uniform and quality-assured screening across England, and women are provided with high quality information so they can make an personal informed choice about their screening and pregnancy options. Education and training resources are available for staff covering all stages of the process, from informing women of test availability, through to understanding and supporting their decisions.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-03-20", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-03-20T16:22:26.253Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-03-12", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Down's Syndrome"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 18 February 2018 to Question 217546, on Down's Syndrome, what plans she has to address the effect of her Department's description of Down's Syndrome as an abnormality on (a) people with Down's Syndrome who read or hear that description and (b) familities who read or hear that description of a member of their family either before or after birth.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "231430"}
, {"_about" : "http://data.parliament.uk/resources/1087268", "AnsweringBody" : [{"_value" : "Women and Equalities"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1087268/answer", "answerText" : {"_value" : "
The Government Equality Office does not provide advice on sexual and reproductive rights and options, which is a matter for the Department of Health and Social Care.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4399", "label" : {"_value" : "Biography information for Victoria Atkins"}
}
, "answeringMemberConstituency" : {"_value" : "Louth and Horncastle"}
, "answeringMemberPrinted" : {"_value" : "Victoria Atkins"}
, "dateOfAnswer" : {"_value" : "2019-03-18", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-03-18T17:55:53.473Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "31"}
, "answeringDeptShortName" : {"_value" : "Women and Equalities"}
, "answeringDeptSortName" : {"_value" : "Women and Equalities"}
, "date" : {"_value" : "2019-03-12", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Down's Syndrome"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Minister for Women and Equalities, following the Answer to 18 February 2019 to Question 217546 on Down's Syndrome: Abortion, what steps the Government Equalities Office is taking to ensure that women have a complete picture of all the options available to them.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "231431"}
, {"_about" : "http://data.parliament.uk/resources/1087269", "AnsweringBody" : [{"_value" : "Department for Work and Pensions"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1087269/answer", "answerText" : {"_value" : "
This department undertakes research into people\u2019s experience of support into work schemes, including the experiences of disabled people. The Department has not conducted or commissioned research on life experiences for people with Down\u2019s Syndrome in the 21st<\/sup> Century.<\/p> <\/p>
Equal rights for disabled people, including people with Down\u2019s Syndrome, are provided for under the reasonable adjustments provisions in the Equality Act and the Public Sector Equality duty. Each Government Department and public authority is under a duty to make adequate provision for disabled people including people with Down\u2019s Syndrome.<\/p>
<\/p>
Disability in the UK is mainstreamed. This means that every department is ultimately responsible for considering disability in the development and implementation of its policies and services.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4105", "label" : {"_value" : "Biography information for Justin Tomlinson"}
}
, "answeringMemberConstituency" : {"_value" : "North Swindon"}
, "answeringMemberPrinted" : {"_value" : "Justin Tomlinson"}
, "dateOfAnswer" : {"_value" : "2019-03-19", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-03-19T14:57:51.597Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "29"}
, "answeringDeptShortName" : {"_value" : "Work and Pensions"}
, "answeringDeptSortName" : {"_value" : "Work and Pensions"}
, "date" : {"_value" : "2019-03-12", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Down's Syndrome"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Work and Pensions what research her Department has conducted on life for people with Down's Syndrome in the 21st century.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "231432"}
, {"_about" : "http://data.parliament.uk/resources/1087271", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1087271/answer", "answerText" : {"_value" : "
Since 2010, the National Institute for Health Research has funded three studies which provide evidence on the effects of screening for sickle cell anaemia and deafness on individuals and families who live with these conditions:<\/p>
- \u201cInvolving fathers in ante-natal screening for sickle cell disorders: improving informed decision making\u201d, which explored fathers\u2019 attitudes and perceptions of the ante-natal testing for sickle cell disorders, identifying potential factors which influence uptake of testing to improve take-up;<\/p>
- \u201cRethinking Strategies for Positive Newborn Screening Result Delivery (ReSPoND): a process evaluation of co-designing interventions to minimise impact on parental emotional well-being and stress\u201d. This project is active and aims to bring parents and health professionals together to co-design interventions to facilitate effective communication of positive results to parents by health professionals to minimise any long-term negative health and psychological consequences; and<\/p>
- \u201cThe diagnostic accuracy of hearing tests and cost-effectiveness of school entry hearing screening programmes\u201d, which asked about the impact for children, and their families, who do not \u201cpass\u201d the screen and are then confirmed to have a hearing loss (true positives) or not (false positives); and the impact for a child who does \u201cpass\u201d the screen but is later found to have a hearing loss.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2019-03-20", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-03-20T14:41:52.867Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-03-12", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Pregnancy: Screening"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 18 February 2019 to Question 217546, on Down's Syndrome, what research his Department has conducted on the effect of screening for (a) sickle cell anaemia and (b) gene-linked deafness on people and families who live with those conditions.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "231433"}
, {"_about" : "http://data.parliament.uk/resources/1055868", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1055868/answer", "answerText" : {"_value" : "
The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.<\/p>
<\/p>
The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.<\/p>
<\/p>
NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-02-14", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : {"_value" : "217543"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-02-14T12:06:28.35Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-02-06", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Abortion"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, for what reason NICE in developing its guidelines on termination of pregnancy has not included an assessment of the physical, emotional and economic effect of premature births and their correlation with previous abortions.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "217542"}
, {"_about" : "http://data.parliament.uk/resources/1055869", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1055869/answer", "answerText" : {"_value" : "
The Department referred the topic of termination of pregnancy to the National Institute for Health and Care Excellence (NICE) for the development of a guideline on service delivery of termination of pregnancy. NICE, as part of the planning for this guideline explored the views of stakeholders on what would be most useful to focus on through a workshop, meetings and through a scope consultation. The final scope of the termination of pregnancy guideline was based on the input that NICE received from the stakeholders that engaged with NICE.<\/p>
<\/p>
The scope of the termination of pregnancy guideline clearly sets out that the NICE guideline is for women who have already decided to have a termination of pregnancy or have undergone a life-saving termination of pregnancy.<\/p>
<\/p>
NICE is looking at the evidence for common harms such as, haemorrhage and infection where there may be evidence of a difference in long-term outcomes. NICE will also be considering what information women who have requested a termination of pregnancy be given before they have the procedure if the legal grounds are met.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-02-14", "_datatype" : "dateTime"}
, "groupedQuestionUIN" : {"_value" : "217542"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-02-14T12:06:28.4Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-02-06", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Abortion"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, for what reason NICE has omitted from its new guidance on termination of pregnancy an assessment of the the long-term effect of abortion on the (a) mortality, (b) future premature births, (c) infertility, (d) mental illness and (e) other health issues of women (i) under 25 and (ii) of other ages.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "217543"}
, {"_about" : "http://data.parliament.uk/resources/1055870", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1055870/answer", "answerText" : {"_value" : "
Spinal surgery for spina bifida for babies in the womb is among new, innovative treatments that will be routinely available on the National Health Service for the first time.<\/p>
<\/p>
The procedure for unborn children with spina bifida, whose spine and spinal cord do not develop properly, allows pregnant women to be treated closer to home and their families.<\/p>
<\/p>
Pain relief for the unborn baby will be delivered intra-operatively. This is administered before the fetal surgery, after the uterus is opened. The fetus will be monitored during the procedure by ultrasound to check the fetal heart rate. The surgery takes place between 20 and 26 weeks of gestation.<\/p>
<\/p>
This proposed new treatment was independently assessed for its clinical benefit and cost by the Clinical Priorities Advisory Group comprising doctors, health experts and patient representatives.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-02-14", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-02-14T12:08:12.487Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-02-06", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Spina Bifida: Surgery"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, whether painkiller will be administered to unborn babies with spina bifida who undergo spinal surgery; and at what age those unborn babies will undergo that surgery.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "217544"}
, {"_about" : "http://data.parliament.uk/resources/1055872", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1055872/answer", "answerText" : {"_value" : "
The Department funds research on health and social care through the National Institute for Health Research. The Department has not commissioned any such studies directly concerned with the long-term effects of abortion. However, a study currently underway, aims to provide the research and practical evidence base to deliver quality improvement in preconception care, to prevent unplanned pregnancies and abortion, and to mitigate the adverse impacts of unplanned pregnancies. This study is due to report in December 2021.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-02-14", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-02-14T12:07:16.003Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-02-06", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Abortion"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what research his Department has commissioned in the last five years into the long-term effect of abortion on (a) future miscarriages, (b) premature births, (c) suicide and (d) other health issues among women (i) under 25 and (ii) of other ages.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/3958", "label" : {"_value" : "Biography information for Fiona Bruce"}
}
, "tablingMemberConstituency" : {"_value" : "Congleton"}
, "tablingMemberPrinted" : [{"_value" : "Fiona Bruce"}
], "uin" : "217545"}
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