Services for patients with genetic haemochromatosis are commissioned locally through clinical commissioning groups (CCGs) which have a statutory responsibility to commission services which meet the needs of their local population. For example, Leeds CCG commissions the consultant led haematology service at Leeds Teaching Hospitals, which includes support for haemochromatosis. Sustainability and transformation partnerships (STPs) are enabling service coordination across wider footprints and the NHS Long Term Plan sets out the ambition for all STPs to evolve into integrated care systems (ICSs) by April 2021. ICSs are an \u2018evolved\u2019 form of a STP, making faster progress in integrating care across their area, bringing together organisations to provide more seamless care for patients.<\/p>
The Government is committed to making the United Kingdom a leader in embedding genomics in healthcare and offer a consistent, world class approach to the genetic identification of rare diseases, including genetic hemochromatosis. The Genomics Medicine Service was announced in October 2018, supported by the National Genomic Test Directory which specifies which genomic tests are commissioned by the NHS in England, the technology by which they are available, and the patients who will be eligible to access a test. Genetic haemochromatosis is included in the National Genomic Test Directory.<\/p>
<\/p>
<\/strong><\/p> <\/p> <\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4008", "label" : {"_value" : "Biography information for Dame Caroline Dinenage"}
}
, "answeringMemberConstituency" : {"_value" : "Gosport"}
, "answeringMemberPrinted" : {"_value" : "Caroline Dinenage"}
, "dateOfAnswer" : {"_value" : "2019-07-22", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-07-22T16:27:07.037Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-07-17", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Social Security Benefits: Haemochromatosis"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what recent steps he has taken to improve her Department's support for people with haemochromatosis in (a) England and (b) Yorkshire and the Humber.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4658", "label" : {"_value" : "Biography information for Alex Sobel"}
}
, "tablingMemberConstituency" : {"_value" : "Leeds North West"}
, "tablingMemberPrinted" : [{"_value" : "Alex Sobel"}
], "uin" : "278593"}
, {"_about" : "http://data.parliament.uk/resources/1139911", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1139911/answer", "answerText" : {"_value" : " In addition to mainstream mental health services, NHS England commissions two bespoke services for veterans experiencing mental health difficulties.<\/p> The first is the Transition, Intervention and Liaison Service (TILS) which supports serving personnel who need additional support as they are leaving the armed forces and veterans who have mental health issues. The TILS is also the entry point to the Complex Treatment Service (CTS), the second service commissioned by NHS England. The CTS is able to provide a range of more intensive care and treatment for veterans with military related complex mental health difficulties, many of whom will have experienced trauma. Veterans can often access bespoke and quicker referral pathways such as TILS, which is commissioned to provide an initial assessment within two weeks.<\/p> In December last year, NHS England also announced an extra £10 million to expand the already established Veterans\u2019 Mental Health TILS and the Veterans\u2019 Mental Health CTS, as well as seeking to close the gaps in current mental health provision to capture those individuals that are nearing crisis.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4065", "label" : {"_value" : "Biography information for Dame Jackie Doyle-Price"}
}
, "answeringMemberConstituency" : {"_value" : "Thurrock"}
, "answeringMemberPrinted" : {"_value" : "Jackie Doyle-Price"}
, "dateOfAnswer" : {"_value" : "2019-07-22", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-07-22T16:08:41.527Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-07-17", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Post-traumatic Stress Disorder: Veterans"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps his Department has taken to improve support for ex-military personnel with post-traumatic stress disorder.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4658", "label" : {"_value" : "Biography information for Alex Sobel"}
}
, "tablingMemberConstituency" : {"_value" : "Leeds North West"}
, "tablingMemberPrinted" : [{"_value" : "Alex Sobel"}
], "uin" : "278594"}
, {"_about" : "http://data.parliament.uk/resources/1137511", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1137511/answer", "answerText" : {"_value" : " The NHS Long Term Plan reaffirmed the commitment to modernise radiotherapy, as well as making specific commitments to commission the National Health Service new state-of-the-art Proton Beam facilities in London and Manchester. The plan also committed to reforming the specialised commissioning payments for radiotherapy hypofractionation to support further equipment upgrades.<\/p> The Long Term Plan also set out NHS England\u2019s commitment to review the National Tariff, in particular to ensure that appropriate incentives are in place to encourage providers to deliver modern techniques, including hypofractionation, and to upgrade and replace equipment.<\/p> Over the last two years, £130 million has been invested in modernising radiotherapy equipment, with over 80 machines funded for replacement or upgrade across the country since October 2016.<\/p> <\/p> <\/p> <\/strong><\/p> <\/strong><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-07-16", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-07-16T14:37:11.133Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-07-08", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Radiotherapy"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what plans he has in place to ensure that every cancer patient who would benefit from radiotherapy is able to access that treatment.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4658", "label" : {"_value" : "Biography information for Alex Sobel"}
}
, "tablingMemberConstituency" : {"_value" : "Leeds North West"}
, "tablingMemberPrinted" : [{"_value" : "Alex Sobel"}
], "uin" : "274632"}
, {"_about" : "http://data.parliament.uk/resources/1128955", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1128955/answer", "answerText" : {"_value" : " The United Kingdom\u2019s national action plan for antimicrobial resistance (AMR), published on 24 January 2019, takes a fully integrated and comprehensive One-Health approach for tackling AMR, and includes challenging five-year commitments across human and animal health, agriculture, the environment and food.<\/p> Without more research into AMR in the environment we cannot design effective interventions to minimise risk and protect public health, food production and natural ecosystems. The national action plan therefore includes commitments to deepen our understanding about AMR in the environment, including a specific commitment to explore the establishment of a river catchment-based research programme with clear standards for sample collection, analysis and review, with the aim of delivering AMR monitoring data that can be used to evaluate existing management interventions and inform new policy initiatives.<\/p> The Environment Agency is working with the Department for Environment, Food and Rural Affairs and water companies to undertake an extensive programme of investigations to assess a wide range of chemicals entering rivers through wastewater treatment works. As part of this programme, levels of four antibiotics have been monitored in treated sewage effluent in order to quantify levels. The choice of antibiotics was based on the levels of prescription and environmental toxicity studies. Outputs will inform the development of future policy and regulatory decisions.<\/p> The Department is establishing a UK AMR national action plan delivery board which will drive and oversee delivery of this work.<\/p> <\/strong><\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/4455", "label" : {"_value" : "Biography information for Seema Kennedy"}
}
, "answeringMemberConstituency" : {"_value" : "South Ribble"}
, "answeringMemberPrinted" : {"_value" : "Seema Kennedy"}
, "dateOfAnswer" : {"_value" : "2019-06-06", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-06-06T13:21:36.687Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-06-03", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Antibiotics: Rivers"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps he is taking to reduce the concentration of antibiotics in UK rivers.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4658", "label" : {"_value" : "Biography information for Alex Sobel"}
}
, "tablingMemberConstituency" : {"_value" : "Leeds North West"}
, "tablingMemberPrinted" : [{"_value" : "Alex Sobel"}
], "uin" : "259425"}
, {"_about" : "http://data.parliament.uk/resources/1122120", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1122120/answer", "answerText" : {"_value" : " We have now reached agreement with the European Union on an extension until 31 October 2019 at the latest, with the option to leave earlier as soon as a deal has been ratified. Although Parliament has rejected leaving without a deal multiple times, this remains the legal default at the end of the extension period, unless a deal is passed by Parliament.<\/p> In light of the extension, Departments will make sensible decisions about the timing and pace at which some of this work is progressing, but we will continue to prepare for all exit scenarios. We remain focused on ensuring our smooth and orderly withdrawal from the EU with a deal as soon as possible.<\/p> The Department is considering the impact on our EU exit preparations and we are working closely with our stakeholders to review our position.<\/p> While we never give guarantees, we are confident that, if everyone does what they need to do, the supply of medicines and medical products, including for supplies of clinical trials and investigations, will be uninterrupted in the event we leave the EU without a deal.<\/p> In terms of EU exit preparations for local National Health Service organisations, on 18 April 2019 Professor Keith Willett, EU Exit Strategic Commander at NHS England and NHS Improvement, wrote to clinical commissioning group and trust Chief Executives to update them on the further extension to Article 50, and the actions that now need to be taken locally to continue to prepare for the United Kingdom\u2019s exit from the EU. Further details are available in Professor Willett\u2019s letter that NHS England and NHS Improvement has published online at the following link:<\/p> https://www.england.nhs.uk/wp-content/uploads/2019/04/20130418-KW-EU-exit-letter-final-.pdf<\/a><\/p> These actions will also apply to cardiac units as they are within trusts.<\/p>"}
, "answeringMember" : {"_about" : "http://data.parliament.uk/members/1585", "label" : {"_value" : "Biography information for Stephen Hammond"}
}
, "answeringMemberConstituency" : {"_value" : "Wimbledon"}
, "answeringMemberPrinted" : {"_value" : "Stephen Hammond"}
, "dateOfAnswer" : {"_value" : "2019-04-30", "_datatype" : "dateTime"}
, "isMinisterialCorrection" : {"_value" : "false", "_datatype" : "boolean"}
, "questionFirstAnswered" : [{"_value" : "2019-04-30T10:04:54.583Z", "_datatype" : "dateTime"}
]}
, "answeringDeptId" : {"_value" : "17"}
, "answeringDeptShortName" : {"_value" : "Health and Social Care"}
, "answeringDeptSortName" : {"_value" : "Health and Social Care"}
, "date" : {"_value" : "2019-04-18", "_datatype" : "dateTime"}
, "hansardHeading" : {"_value" : "Heart Diseases: Health Services"}
, "houseId" : {"_value" : "1"}
, "legislature" : [{"_about" : "http://data.parliament.uk/terms/25259", "prefLabel" : {"_value" : "House of Commons"}
}
], "questionText" : "To ask the Secretary of State for Health and Social Care, what steps his Department is taking to prepare cardiac units for the UK leaving the EU without a deal.", "registeredInterest" : {"_value" : "false", "_datatype" : "boolean"}
, "tablingMember" : {"_about" : "http://data.parliament.uk/members/4658", "label" : {"_value" : "Biography information for Alex Sobel"}
}
, "tablingMemberConstituency" : {"_value" : "Leeds North West"}
, "tablingMemberPrinted" : [{"_value" : "Alex Sobel"}
], "uin" : "245973"}
, {"_about" : "http://data.parliament.uk/resources/1105241", "AnsweringBody" : [{"_value" : "Department of Health and Social Care"}
], "answer" : {"_about" : "http://data.parliament.uk/resources/1105241/answer", "answerText" : {"_value" : " The National Institute for Health and Care Excellence (NICE) is currently developing highly specialised technology (HST) guidance on Brineura (cerliponase alfa) for treating neuronal ceroid lipofuscinosis type 2. Further information can be found at the following link:<\/p> <\/p>