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The National Institute for Health and Care Excellence has published a clinical guideline on the assessment and management of motor neurone disease (MND), to support its diagnosis. The guideline recommends coordinated care for people with MND, using a clinic based, MND specialist, multi-disciplinary team approach. The core multi-disciplinary team should consist of healthcare and other professionals with expertise in MND, and should include specialist nurses.<\/p>
The Government has committed to delivering at least £50 million to support MND research over five years, from 2022 onwards, as part of a package of £375 million for research into neurodegenerative diseases. In June 2023, the Government announced that more than £35 million of the £50 million pledged to cutting-edge MND research has now been allocated, just two years into a five-year funding commitment. Work continues at pace to support MND researchers in submitting high-quality bids for open funding calls. Further information is available at the following link:<\/p>
https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research<\/a><\/p> NHS England commissions specialised services to support people living with MND, as set out in the published service specification for specialised neurology services. The support provided includes the provision of multi-disciplinary care from specialist clinicians, including neurologists, specialist nurses, speech and language therapists, dietetics and nutrition support, and physiotherapy, depending on individual clinical need. The service specification for specialised neurology services is available at the following link:<\/p> https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf<\/a><\/p> In addition, NHS England commissions a specialised communication aid service known as Augmentative and Alternative Communication, as set out in the published service specification. This service supports and prioritises individuals with rapidly degenerative conditions, including MND. The service specification for Augmentative and Alternative Communication, is available at the following link:<\/p> https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf<\/a><\/p>"}
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], "answer" : {"_about" : "http://data.parliament.uk/resources/1696290/answer", "answerText" : {"_value" : " To improve awareness of postural tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practices (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:<\/p> <\/p> https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&chapterid=247<\/a><\/p> <\/p> The National Institute for Health and Care Excellence has also produced a clinical knowledge summary, last revised in November 2023, which outlines the method healthcare professionals should follow for diagnosing PoTS. This summary is available at the following link:<\/p> <\/p> https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/<\/a><\/p> <\/p> GPs are asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.<\/p> <\/p> Services for PoTS are locally commissioned and, as such, it is the responsibility of the local commissioning teams within integrated care boards to ensure that their locally commissioned services meet the needs of their local population.<\/p> <\/p> The Department invests over £1 billion per year in health research through the National Institute for Health and Care Research (NIHR). The NIHR funds research in response to proposals received from scientists rather than allocating funding to specific disease areas. The NIHR welcomes funding applications for research into any aspect of human health, including PoTS, although it is not usual practice to ring-fence funds for particular topics or conditions. Applications are subject to peer review and judged in open competition, with awards made on the basis of the importance of the topic to patients and health and care services, value for money, and scientific quality.<\/p>"}
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], "answer" : {"_about" : "http://data.parliament.uk/resources/1696292/answer", "answerText" : {"_value" : " To improve awareness of postural tachycardia syndrome (PoTS) amongst healthcare professionals, and specifically general practices (GPs), the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link:<\/p> <\/p> https://elearning.rcgp.org.uk/mod/book/view.php?id=12386&chapterid=247<\/a><\/p> <\/p> The National Institute for Health and Care Excellence has also produced a clinical knowledge summary, last revised in November 2023, which outlines the method healthcare professionals should follow for diagnosing PoTS. This summary is available at the following link:<\/p> <\/p>