Linked Data API

Filter

These are the filters currently being used to limit the search results. Click on the remove filter icon to remove the filter.

tabling member printed	Sir Christopher Chope
min answer › question first answered	2019-05-20T16:38:02.36Z
uin	269611
answer › answering member printed	Seema Kennedy

Sort by

This list shows the properties that you can sort by. Click on to sort in ascending order and to sort in descending order. The properties that you're currently sorting by are shown at the top of the list. Click on remove this sort to remove a sort and or to reverse the current sort order. Click on the remove all sorting icon to remove all the sorting. Note that sorting can significantly slow down the loading of the page.

View

Choose what information you want to view about each item. There are some pre-defined views, but starred properties are always present no matter what the view. You can star properties by clicking on the icon. The currently starred icons have a icon; clicking on it will unstar the property.

Items per page

Choose how many items to view on each page. The more items you view, the longer the page will take to load.

Show Search Form

Search Results

registered interest

date

exactly:

or between:
and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

question first answered

answering member


label

tabling member


label

1135044

registered interest

date

26/06/2019

answering body

Department of Health and Social Care

answering dept id

answering dept short name

Health and Social Care

answering dept sort name

Health and Social Care

hansard heading

Spinal Muscular Atrophy: Drugs

house id

legislature

25259

	pref label	House of Commons

question text

To ask the Secretary of State for Health and Social Care, for what reason the announcement by NICE on 15 May 2019 that it would facilitate access by people with spinal muscular atrophy to a new drug for prescription on the NHS was followed several weeks later by an announcement that the drug would be available only to a specific group of those people; and if he will make a statement.

tabling member constituency

Christchurch

tabling member printed

Sir Christopher Chope

uin

269611

answer

is ministerial correction

date of answer

01/07/2019

answer text

<p>The National Institute for Health and Care Excellence (NICE) has advised that on 15 May 2019 it confirmed that it was able to recommend nusinersen for the treatment of spinal muscular atrophy. In the announcement, NICE said the treatment would be made available under the terms of the managed access agreement between NHS England and NHS Improvement and Biogen. However, the full detail of the agreement was not given in the announcement and NICE accepts this was misleading for some of the patient population. NICE provided clarification at the earliest opportunity and has apologised to individuals affected.</p>

answering member constituency

South Ribble

answering member printed

Seema Kennedy

question first answered

01/07/2019 15:53:48

answering member

4455

	label	Biography information for Seema Kennedy

tabling member

242

	label	Biography information for Sir Christopher Chope