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tabling member printed	Sir Christopher Chope
min answer › question first answered	2019-05-20T16:38:02.36Z
answer › answering member printed	Seema Kennedy
question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 1 July 2019 to Question 269610 on Spinal Muscular Atrophy: Drugs, what the maximum length of time is for the period of further data collection.

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registered interest

date

exactly:

or between:
and

answering body

answering dept id

answering dept short name

answering dept sort name

hansard heading

house id

legislature


pref label

question text

tabling member constituency

tabling member printed

uin

answer

is ministerial correction

date of answer

exactly:

or between:
and

answer text

answering member constituency

answering member printed

question first answered

answering member


label

tabling member


label

1136680

registered interest

date

03/07/2019

answering body

Department of Health and Social Care

answering dept id

answering dept short name

Health and Social Care

answering dept sort name

Health and Social Care

hansard heading

Spinal Muscular Atrophy: Drugs

house id

legislature

25259

	pref label	House of Commons

question text

To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 1 July 2019 to Question 269610 on Spinal Muscular Atrophy: Drugs, what the maximum length of time is for the period of further data collection.

tabling member constituency

Christchurch

tabling member printed

Sir Christopher Chope

uin

272725

answer

is ministerial correction

date of answer

08/07/2019

answer text

<p>The Managed Access Agreement (MAA) for nusinersen for treating spinal muscular atrophy states that the data collection will be in place for a minimum of three years and up to the automatic expiry of the MAA on the fifth anniversary, unless the MAA expires earlier as a result of the publication of the National Institute for Health and Care Excellence’s reappraisal of nusinersen.</p>

answering member constituency

South Ribble

answering member printed

Seema Kennedy

question first answered

08/07/2019 15:49:09

answering member

4455

	label	Biography information for Seema Kennedy

tabling member

242

	label	Biography information for Sir Christopher Chope