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<p>The activities described in the Department’s ‘UK Strategy for Rare Diseases: implementation
plan for England’ are those that are shared between the Department and a number of
partner organisations in implementing the UK Strategy for Rare Diseases. This implementation
plan applies to England only.</p><p> </p><p>The UK Rare Disease Policy Board, which
has representation of all four United Kingdom nations, oversees the implementation
of the UK Strategy for Rare Diseases across the UK. The UK Rare Disease Policy Board
publishes on a biennial basis an update on the implementation activities across the
whole of the UK. The next report was published on 28 February 2018 and will highlight,
in greater detail, initiatives and achievements across the four nations over the past
two years, as well as look at UK-wide developments and challenges in the rare diseases
landscape that will be important in the forward look to 2020.</p><p> </p><p>The UK
is involved in European Reference Networks, virtual centres of knowledge, skills and
expertise in the field of rare diseases and complex conditions, which provide a platform
to create partnerships between healthcare providers. The UK participates in 23 out
of the 24 networks (involving 113 separate UK groups) and leads six networks.</p>
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