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<p>The National Institute for Health and Care Excellence has published a clinical
guideline on the assessment and management of motor neurone disease (MND), to support
its diagnosis. The guideline recommends coordinated care for people with MND, using
a clinic based, MND specialist, multi-disciplinary team approach. The core multi-disciplinary
team should consist of healthcare and other professionals with expertise in MND, and
should include specialist nurses.</p><p>The Government has committed to delivering
at least £50 million to support MND research over five years, from 2022 onwards, as
part of a package of £375 million for research into neurodegenerative diseases. In
June 2023, the Government announced that more than £35 million of the £50 million
pledged to cutting-edge MND research has now been allocated, just two years into a
five-year funding commitment. Work continues at pace to support MND researchers in
submitting high-quality bids for open funding calls. Further information is available
at the following link:</p><p><a href="https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research"
target="_blank">https://www.gov.uk/government/news/government-continues-delivering-on-50-million-funding-pledge-for-motor-neurone-disease-research</a></p><p>NHS
England commissions specialised services to support people living with MND, as set
out in the published service specification for specialised neurology services. The
support provided includes the provision of multi-disciplinary care from specialist
clinicians, including neurologists, specialist nurses, speech and language therapists,
dietetics and nutrition support, and physiotherapy, depending on individual clinical
need. The service specification for specialised neurology services is available at
the following link:</p><p><a href="https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf"
target="_blank">https://www.england.nhs.uk/wp-content/uploads/2013/06/d04-neurosci-spec-neuro.pdf</a></p><p>In
addition, NHS England commissions a specialised communication aid service known as
Augmentative and Alternative Communication, as set out in the published service specification.
This service supports and prioritises individuals with rapidly degenerative conditions,
including MND. The service specification for Augmentative and Alternative Communication,
is available at the following link:</p><p><a href="https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf"
target="_blank">https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2016/03/aac-serv-spec-jan-2016.pdf</a></p>
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