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1138888

	registered interest
	date	15/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sickle Cell Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 May 2019 to Question 256313 on Sickle Cell Diseases, which services (a) NHS England, (b) clinical commissioning groups and (c) other public bodies commission for people with sickle cell disease; and what the per capita annual cost is of providing each of those services.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277137
	answer	answer is ministerial correction date of answer 19/07/2019 answer text <p>NHS England commissions specialised services for people living with sickle cell disease. These services are part of the specialised haemoglobinopathy services commissioned by NHS England across the country. NHS England spends over £60 million on sickle cell disease within these services annually - £60.4 million in 2017/18. Information about the services provided by individual clinical commissioning groups or other public bodies is not collected or held centrally.</p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 19/07/2019 09:46:21 answering member 4455 label Biography information for Seema Kennedy previous answer version 129855 answering member constituency South Ribble answering member printed Seema Kennedy answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1138889

	registered interest
	date	15/07/2019
	answering body	Department of Health and Social Care
	answering dept id	17
	answering dept short name	Health and Social Care
	answering dept sort name	Health and Social Care
	hansard heading	Sickle Cell Diseases: Health Services
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Health and Social Care, pursuant to the Answer of 23 May 2019 to Question 256313, which services (a) NHS England, (b) clinical commissioning groups and (c) other public bodies commission for sickle cell disease patients with (i) stroke, (ii) chronic kidney disease, (iii) end-stage renal disease and (iv) pulmonary hypertension; and what the annual per capita cost is of providing each of those services.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277138
	answer	answer is ministerial correction date of answer 19/07/2019 answer text <p>NHS England does not commission separate services for sickle cell patients with stroke, chronic kidney disease, end-stage renal disease or pulmonary hypertension and so cannot provide annual per capita costs. These services are commissioned on behalf of all patients that require them, which would include people living with sickle cell disease.</p><p>NHS England has recently undertaken a review of haemoglobinopathy services to ensure that patients living with conditions such as sickle cell disease are able to access the high-quality services they need for their condition across the country. NHS England is now commissioning a networked-based model of care for specialised haemoglobinopathy services which will included specialist haemoglobinopathy teams across the country, regional haemoglobinopathy coordination centres and a National Haemoglobinopathy Panel. The new model will enable advice to be provided to local clinicians on the management of patients with sickle cell disease 24 hours a day, seven days a week. Haemoglobinopathy coordination centres will organise and run networks for sickle cell disease, providing leadership and education for local services.</p><p><strong> </strong></p><p><strong> </strong></p><p><strong> </strong></p> answering member constituency South Ribble answering member printed Seema Kennedy question first answered 19/07/2019 09:45:39 answering member 4455 label Biography information for Seema Kennedy
	tabling member	1533 label Biography information for Dame Diana Johnson

1138890

	registered interest
	date	15/07/2019
	answering body	Department for Work and Pensions
	answering dept id	29
	answering dept short name	Work and Pensions
	answering dept sort name	Work and Pensions
	hansard heading	Social Security Benefits: Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Work and Pensions, how many people with sickle cell disease were in receipt of (a) personal independence payments and (b) employment support allowance or their universal credit equivalents in the most recent period for which data are available; and what the annual cost to the public purse of providing that support in each of those groups is.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277139
	answer	answer is ministerial correction date of answer 18/07/2019 answer text <p>The information requested on the number of people with Sickle Cell Disease in receipt of Employment and Support Allowance (ESA) and Universal Credit (UC) and the cost to the public purse of providing support for claimants with Sickle Cell Disease for ESA and UC is not readily available and to provide it would incur disproportionate cost.</p><p> </p><p>Information on health conditions of ESA claimants is only available by high level medical conditions, including Diseases of the Blood and Blood forming organs and certain diseases involving the immune mechanism, is published on Stat-Xplore.</p><p> </p><p>The latest data on PIP claims in payment can be which can be broken down by month from April 2013 to April 2019 and by disability which includes Sickle Cell Anaemia can be found on Stat-Xplore too: <a href="https://stat-xplore.dwp.gov.uk/" target="_blank">https://stat-xplore.dwp.gov.uk/</a></p><p>Guidance on how to use Stat-Xplore can be found here:</p><p><a href="https://stat-xplore.dwp.gov.uk/webapi/online-help/Getting-Started.html" target="_blank">https://stat-xplore.dwp.gov.uk/webapi/online-help/Getting-Started.html</a></p><p> </p><p>The latest data on the PIP expenditure broken down by disability subgroup including Haemolytic disease, of which Sickle Cell Disease is one disease is in this category is published and can be found at: <a href="https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/741592/pip-expenditure-by-medical-condition-2017-18.ods" target="_blank">https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/741592/pip-expenditure-by-medical-condition-2017-18.ods</a></p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 18/07/2019 13:36:17 answering member 4105 label Biography information for Justin Tomlinson
	tabling member	1533 label Biography information for Dame Diana Johnson

1138891

	registered interest
	date	15/07/2019
	answering body	Department for Work and Pensions
	answering dept id	29
	answering dept short name	Work and Pensions
	answering dept sort name	Work and Pensions
	hansard heading	Social Security Benefits: Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Work and Pensions, how many people in receipt of (a) personal independence payment and (b) employment support allowance and their universal credit equivalents have sickle cell disease with (i) stroke,(ii) sickle chronic kidney disease, (iii) end-stage renal disease and (iv) pulmonary hypertension in the most recent period for which figures are available; and what the annual cost to the public purse of providing that support in each of those groups is.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277140
	answer	answer is ministerial correction date of answer 18/07/2019 answer text <p>With regard to Personal Independence Payment (PIP), Employment and Support Allowance (ESA) and Universal Credit (UC), the information requested is not readily available and to provide it would incur disproportionate cost.</p><p> </p><p>With regards to PIP, we only record the main disabling condition for a claimant on analytical datasets and so cannot answer questions on combinations of conditions without incurring disproportionate cost.</p><p> </p><p>Information on health conditions of ESA claimants is only available by high level medical conditions, including Diseases of the Blood and Blood forming organs and certain diseases involving the immune mechanism, is published here:</p><p><a href="https://stat-xplore.dwp.gov.uk/" target="_blank">https://stat-xplore.dwp.gov.uk</a></p><p> </p><p>Guidance for users is available at:</p><p><a href="https://stat-xplore.dwp.gov.uk/webapi/online-help/Getting-Started.html" target="_blank">https://stat-xplore.dwp.gov.uk/webapi/online-help/Getting-Started.html</a></p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 18/07/2019 13:25:29 answering member 4105 label Biography information for Justin Tomlinson
	tabling member	1533 label Biography information for Dame Diana Johnson

1138892

	registered interest
	date	15/07/2019
	answering body	Department for Work and Pensions
	answering dept id	29
	answering dept short name	Work and Pensions
	answering dept sort name	Work and Pensions
	hansard heading	Carer's Allowance: Sickle Cell Diseases
	house id	1
	legislature	25259 pref label House of Commons
	question text	To ask the Secretary of State for Work and Pensions, how many carers of people with (a) sickle cell disease and (b) sickle cell disease and (i) stroke, (ii) chronic kidney disease, (iii) end-stage renal disease and (iv) pulmonary hypertension received carer’s allowance in the most recent period for which figures are available; and what the annual cost to the public purse of providing that support in each of those groups is.
	tabling member constituency	Kingston upon Hull North
	tabling member printed	Diana Johnson
	uin	277141
	answer	answer is ministerial correction date of answer 18/07/2019 answer text <p>As of November 2018, around 860,000 carers received Carer’s Allowance. The Department is forecast to spend around £3bn in 2019/20 supporting these carers to provide support to people with a range of conditions, disabilities and illnesses.</p><p> </p><p>The information requested on the number of Carer’s Allowance claimants caring for people with multiple specific conditions is not available and could only be obtained at disproportionate cost.</p> answering member constituency North Swindon answering member printed Justin Tomlinson question first answered 18/07/2019 14:07:48 answering member 4105 label Biography information for Justin Tomlinson
	tabling member	1533 label Biography information for Dame Diana Johnson